Smile

loxie · 2015-09-16T08:27:25.433+00:00

My partner pointed to this that he spotted online the other day and said cheerfully 'oh, this is definitely you' - gee thanks

kaz_40 loxie

Posted 9 years ago

morning loxie thinking off you today hope your appointment goes well for you. will you let me know how you get on. My memory isnt good at all Im going to speak to my gp I am really worried how bad it is. lack of sleep I dont think helps either. hope you have a good day and weekend. take care gentle hugs xx

kaz_40 loxie

Posted 9 years ago

Hi Loxie How did you get on today?hun ? x

loxie kaz_40

Posted 9 years ago

Hi Kaz, thanks so much for asking. I amazingly didnt have to wait too long to get seen and the doctor I saw was very pleasant. He actually asked me if I'd brought a list and was happy for me to work through it. He listened! He made copious notes, asked further questions and clarified everything. Very reassuring. He then did quite a few simple tests, like testing my arms' resistance strength, pin prick tests, a couple of very basic word tests etc. At the end of it all, he said he was sure it wasn't anything neurological or neuromuscular (I actually forget the word he used - there's the brain fog again). His view was that some or all of the pain may be neck related, eg trapped nerve etc., and that the fatigue was most likely the culprit with forgetting words during a sentence etc. He also thinks I need a thorough thyroid test as almost all of my symptoms could be attributed to hypothyroidism. He's going to refer me for an MRI for the neck and told me to go back to the GP and request a further thyroid test. Here we go on the merry go round again. To be honest, I'll actually be grateful if they find a trapped nerve and/or thyroid issue, at least then I may get some 'proper' treatment. As soon as my GP's mentioned fibromyalgia, they sort of switched off and went for the prescription pad, to which I rebelled **grin**. More waiting but at least today seemed productive.

Meg53 loxie

Posted 9 years ago

How exciting Loxie, it sound like you are making progress, more tests I know but at least they will hopefully help you solve your neck pain. Good news you don't have dementia, it is such a scarey threat hovering over all of us---sigh----- Best of luck with the tests hope they ---finally --- get to the bottom of it.xxx

kaz_40 loxie

Posted 9 years ago

Hi Loxie sooo pleased the person you saw listened for 1 and 2nd was very thorough with you. he sounds great Im not surprised one bit that he doesnt think its anything neurological neuromuscular. I saw a neurologist he did tests etc he actually appologised to me. He said Im sooo sorry all tests have come back normal Im sooo sorry I cant do anything for you, he kept appologising it was dec 12th 2013 I came ou the hospital in floods of tears as I just wanted to know what the hell was wrong with me. I have had hashimotos disease Ive an under active thyroid Im on levothyroxine for life. Havving a problem with your thyroid can cause serious problems if left untreated. so Im pleased your being tested for it. which to be honest your gp should of done that before now. at least he is trying to help you which is excellent. hope you have a good weekend hun take care gentle hugs xx

kaz_40 loxie

Posted 9 years ago

fibro fog strikes again

forgot to say I had mri from head to toe it showed arthritus in my neck and all of my back. I was getting quiet bad pain in my neck and back. Im never ever free from back neck leg pain its their 24/7. today legs didnt want to work thats abattle I have every day with out anything else thrown on top. but hey ho battle on onwards upwards take care hun thinking of you gentle hugs xx

loxie kaz_40

Posted 9 years ago

I did get my thyroid tested some time ago. The neurologist asked me if I'd ever had my thyroid levels checked and I said yes and then he asked what the outcome was. I replied that all I got told was 'theyre ok' whatever that means, he asked what were the results? No idea I replied, I wasn't shown the results - what did they actually test for he asked, again no idea, I said 'I was at the mercy of the GP' who didn't find it appropriate to tell me much'. He didnt look happy at that. I'm going to go back and tell her the neurologist himself said I should have my thyroid function tested and that I want a 'thorough' test - I'm so sick to death of being fobbed off and ignored to be honest. I really feel for you having hashimotos and fibro - you must feel totally slaughtered most of the time. I woke up in serious pain this morning and it's been bad all day, my neck, shoulders, arms and lower back are all killing me. Took paracetamol but it didnt touch it. Tried to do a little light gardening in the hope of loosening up the tension but go so exhausted I didnt manage much. Just want to lie down and sleep now but gotta fix dinner soon. Probably be too tired to eat it after all that.

kaz_40 loxie

Posted 9 years ago

Hi Loxie My dr tests my throid level every year, tablet has been adjusted twice since I was diagnosed. Ive never been told what the results were. I only got told if tablet needed adjusting.I dont think any one cares where us lot are concerned were just left to get on with it, is what Ive found. Ive never had any help support from any where just told what Id got that was that. hope your pain soon eases hun take care gentle hugs xxxx

kaz_40 Meg53

Posted 9 years ago

morning meg53 How are you doing hun? hows things with you? My back is very painful today legs dont want too work but Im plodding on. weve been buisy painting the bathroom hubby doing final coat tonight then its all done. hope your not in too much pain. take good care of yourself. hope you have a good week. gentle hugs xx

Meg53 kaz_40

Posted 9 years ago

Hi Kaz thank you for asking, my back is also very sore, will have to get another scan to see what is going on, I am over medical adventures. Sorry to hear your back is bad, you just don't need that.

Your new bathroom project sounds good, there is nothing like a fresh new bathroom. It is lucky your hubby is so handy it so helps with costs. Would love to know what colours you are using in there? We need to update our bathrooms will have to save up for it. You also take care of yourself and hopefully not to painful a week. Very very gentle hugs xxx🌹

kaz_40 Meg53

Posted 9 years ago

Morning meg doing well with our backs arnt we hun? I had trouble moving last night mine was sooo bad got up this morning have got severe pain in my neck??? the not so joy of having fibro. never mind plod on. the colour we are useing on the bathroom is by dulux endurance sweet pink. we picked 2 colours both by dulux sweet pink and pretty pink. we brought little pots of each colour to try pretty pink came out lighter than the sweet pink. I wasnt sure on the colour at 1st but its really grown on me and looks lovely. I would really like to totally refurbish the bathroom altogeather but your looking at around £5,000 to do it. I dont have that sort of money. so we are just painting and adding new accessories. When I had chat to my gp about my back, she said at forst about sending me for another scan, then changed her mind and said its fibro thats causing the severe pain? so I dont know, I just plod on as best I can.all weve done in the bathroom is white glossed the paint work then use dulux on the walls. we only ever use dulux or crown paints. Ive tried B&Q own in the past didnt like the paint. so we stick to what we are happy with. take care very gentle hugs xxx hope you have a good day your back eases soon for youx

Meg53 kaz_40

Posted 9 years ago

Your bathroom sounds nice and warming, we need all the cosseting we can get. Yep we can only afford the fixtures too, retiling would just cost too much right now.

We are birds of a feather when it comes to aches, both my neck and lower back are giving me real problems at present I wake up stiff and sore, soooo much fun!!! I am trying to concentrate on the positives in my life and not dwell on the negatives.

Have a great day.xxx🌷

kaz_40 Meg53

Posted 9 years ago

Hi Meg Hope your pains soon ease hun. My neck back arnt good at all but plodding on. We now have car problems so it will be the weekend when hubby gets bathroom fitted. plus hes working sat got car to sort out and visit his mom so weve got buisy weekend. friday tomorrow weeks are flying by. its sunny where I live just put washer on going to have breakfast now. I would love a walk in shower and the bathroom all redone but cant do it financially at the min. so new fixtures and a re paint. hope you have a good day today take care gentle hugsxxx

Meg53 kaz_40

Posted 9 years ago

No... not the car, sounds like hubby is going to be frantic this weekend, sounds like lots of cups of tea required. Pain not so bad, sleep below average, never mind, we will plod along.

Have as good a weekend as you can with hopefully some fun along the way.xxx

kaz_40 Meg53

Posted 9 years ago

morning meg Hope you have a good day, and a lovely weekend with not too much pain. My hubby going to buisy this weekend bless him. hes working sat morning then got our car to do, see his mum and paint?. Im not tooo good today my chest isnt very good I feel very weak. I would of stayed in bed I feel so unwell but we have a parcel delivery coming. I had a lousy night with me not feeling well hubby snoring and son coughing, no sleep for me. Im going to have a lie down on the sofa now wait for this parcel. Take care hun gentle hugs xx

Meg53 kaz_40

Posted 9 years ago

You poor thing hope you get a great sleep tonight? I find if I get a bad sleep then the pain is worse the next day. Be gentle with yourself and maybe wear earplugs to bed?xxx

kaz_40 Meg53

Posted 9 years ago

Hi Meg How are you? Im in bed with viral infection costcondritis and fibro flare. Ivehad high tempersture struggling to get it down. hope your not in too much pain will message when feeling better take care hun gentle hugs xx

Meg53 kaz_40

Posted 9 years ago

Bad news, hope you are not in too too much pain. Hope you are drinking lots of fluids so you keep rehydrated. Have you been able to get medical attention? Sending good vibes your way.

I am okay, get a bit fed up from time to time but trying to focus on the positives in my life, instead of mourning my past existence. xxx

Meg53 kaz_40

Posted 9 years ago

Hi Kaz, hope you are on the mend from your viral costcondritis?

I know viruses sometime take a while to fight, so hang in there and I do hope you are being well take care of. Air Hugs, Megxxxl

kaz_40 Meg53

Posted 9 years ago

Morning meg still bed hun feeling quiet poorly. I thought wed I was starting to turn a corner but yesterday felt so ill. husband had monday off to take care of me. its a nasty virus made worse by fibro. its going to take time to get over its knocked me for six. how are you doing hun. you take care hope you have a good weekendxx

christine26761 kaz_40

Posted 9 years ago

Poor you beautiful lady, gentle hugs from Australia..I was wondering where you were, soooo sad your soo unwell

. Will be praying especially for you to get better really soon kaz..be blessed..have a very relaxing weekend with much less pain etc...:-) xxx

kaz_40 Meg53

Posted 9 years ago

afternoon meg how are you? hows things with you. I have managed to get up to day, 1st time up in a week Im still very chesty feel weak but will get their. Its a nasty virus to have made worse by the fibro. Hope you have a good weekend take care gentle hugs x

Meg53 kaz_40

Posted 9 years ago

Hi there Kaz, glad to hear you are on the mend, I was quite worried about you. I hope you had chicken soup, as I believe it helps you heal, a personal bias of course.

I had a lovely weekend, and apart from the ever present fatigue my other aches and pains etc, etc, behaved themselves, and I was even able to socialise. Still going through patches when I can"t sleep, wish I knew the cure, that works for my body!

Please look after yourself, we missed you. Megxxx

kaz_40 Meg53

Posted 9 years ago

afternoon meg how are you? I am getting their slowly still very tired feel weak. But Im up dressed which is something Im just resting though. as every time I move Im getting muscle spasams in my back. christine is asking us all to put our photo of us on the forum. so we can put a face to a name Im hopeing to do mine later. As having to use sons phone, are you going to add a picture. some of the girls have put theirs on its great to see a photo of who we are speaking to. Hope your not in too much pain hun take care gentle hugs xx

Meg53 kaz_40

Posted 9 years ago

Good to hear you are on the mend Kaz, if not somewhat slowly. Please don't do what I do, and do too much too quickly. Can you get a therapeutic massage to help relieve your back muscles. I splashed out yesterday and had one pure bliss, apparently the right side of my body was incredibly tight, interesting.

As for a photo, hmmm not sure, don't want to scare people, I am very camera shy, hate having my photo taken, I always pull faces and end up looking dorky, I will have to think about that one and see if my hubby can take a flattering photo, a work in progress.

Be gentle with yourself. Megxxx

kaz_40 Meg53

Posted 9 years ago

morning meg How are you today? Funny you should mention a massage I am thinking of having one. A full body massage and a facial my treat to myself. I am going to book the lady I had when I got married shes lovely I had a few body massages leading up to my wedding 12 years ago. so going to treat myself. I had a relapse last night felt quiet poorly again I couldnt stop sneezing kept going hot cold. I think its going to be a slow process in recovery never mind onwards upwards. Im camera shy I have to admit I avoid having my picture done at all costs. if its a wedding picture last 1 my nephews I hid in the back ground. until he grabbed me said I want one with my auntie I couldnt get out of it. hope you have a good day with not much pain take care gentle hug xx

Meg53 kaz_40

Posted 9 years ago

Go for it Kaz you certainly deserve to be pampered and treated like a princess. What is more a massage helps loosens up the muscles which help a little with the old aches and pains. I am even doing very gentle stretches to loosen up the hamstrings, which the Lady Masseur said were quite tight and maybe contributing to my sore back and hips, I will try anything.

I do do hope you recover soon but please take things carefully. Megxxx

kaz_40 Meg53

Posted 9 years ago

Hi meg Hope your having a good day and not too much pain. Im getting their all be it slowly. Im hopeing I can get out at the weekend, as havnt been out in 3 weeks. Now the bathroom is done hubby wants to do the kitchen just got to decide on the colour. its sunshinning here washer has just finished going to see if I can muster the energy to put it out, and then have some lunch. Im going to treat myself to a massage soon and facial. we all deserve a treat and be kind to ourselves. take care meg gentle hugs xxx kaz

Meg53 kaz_40

Posted 9 years ago

I will keep my fingers and toes crossed that you can get out this weekend, I am sure you must be experiencing cabin fever?

Your hubby must be extremely capable. How exciting that you will have a freshened up kitchen. Do'nt ask me about colours I have no idea, good luck choosing. Our kitchen is cream with dark work surfaces, I wish they were a softer lighter colour but it still looks okay.

Pain not too bad but just so tired all the time, even when I do get sleep it just doesn't go away. Enjoy your weekend xxxMeg💐

kaz_40 Meg53

Posted 9 years ago

morning meg Its lovely sunny here in shropshire, Im hopeing to go out tomorrow Ive got everything crossed too haha. Ive got the headache from hell today and costocondritus never mind onwards upwards. hope you have a lovely chilled out weekend with not much pain. Know how you feel with the tiredness Im exactley the same. flaming fibro hate it with a passion. you take care hun thinking of you gentle hugs xx

Meg53 kaz_40

Posted 9 years ago

Hi Kaz oh no not a headache, I wonder what brought that on, not tight muscles or something you ate. Do hope you get a great sleep so tomorrow you can go out and enjoy that beautiful sunshine. We are visiting our son and daughter in law, so lovely to spend time with them. I am a bit sore what with change of scene and different food but will keep going and collapse when I get home. Relax and enjoy the day. Air hugs Megxxx💐

kaz_40 Meg53

Posted 9 years ago

morning meg how are you? Hows your sleep? Hope you have a lovely time with your son and daughter in law. I am hopeing to go out today to a garden centre. Will see how I go on as wasnt well last night again last night. fibro definitly isnt helping matters. never mind plod onwards upwards. hope you have a lovely weekend hun take care big hug from me to you. xx

Meg53 kaz_40

Posted 9 years ago

Yes lovely to see them and spend time with them on and off during the weekend, do wiss they lived closer but glad they are getting on with their lives. Do hope you went out, good for your well being but understand only too well you can't always cope when the pain threshold is too high. Many gentle hugs( I love hugs) Megxxx🐬

kaz_40 Meg53

Posted 9 years ago

Hi Meg pleased to hear you had a lovely time with your son and daughter in law. its good to spend time with loved ones I think it helps to take our mind off our condition when we have other distractions. I went to a small family run garden nursary picked up a plant and 2 plant pots. It hurt my back being in the car

. My son was going to see a band play wanred taking to the venue so we took him. half hour to get their half hour back home. by the time I got home felt exhausted in pain didnt feel good

. I lay on the sofa till bed time. Im still not over this virus fibro making it worse never mind onwards upwards. Take care meg enjoy the rest of the weekend big hug coming to you xx

Smile

70 Replies

Report or request deletion

Thanks for your help!