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So confused

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mandae
mandae

Hi all, I'm new here but need help.Can someone please help me understand this. I saw my neuro for the first time last week and yesterday received a copy of the letter sent to my doctor but I don't understand what the thing written mean, it says,

pathological findings have been pale disc on left, hypaesthesia on right side of face mainly v2and v3, slightly more reflexes on right side but not brisk.

the Obote clinical features are pointing towards demyelinating disorder such as ms.

i am waiting for a brain and spinal mri and don't go back to neuro until 30th December. My doctors are useless and I don't know what any of that means except that it is prob ms. Is there please anyone here who can help me.

0 likes, 3 replies

3 Replies

  • mariat63
    mariat63 mandae

    Posted

    Hi Mandae, I'm sorry I can't help with the Neuro report (apart from suggesting you Google the individual phrases). I share your confusion and frustration, though. I had my first Neuro appt in May and see him next in October. I've had the MRIs and the doctor printed the reports off for me, telling me to Google the terms! Limboland is not a nice place to spend so much time in! Let me know how you get on x
  • Jayive
    Jayive mandae

    Posted

    Hi, please don't worry, wait until you know for certain what your diagnosis is. It is common for the neurologist to wait some months, or years, before giving a confirmation. And, if you do have MS, nowadays there are a variety of treatments available.

    I have had MS for over 20 years and still manage to have a normal life, I just learned to 'Listen to my body' and not to overdo things when I feel tired.

    If you are diagnosed you can join the MS society who can provide you with booklets on many subjects and also have a contact phone number.

     

  • GloShivWeb
    GloShivWeb mandae

    Posted

    This to me just states your symptoms that I am sure you are well aware of. That is the problem with MS it is hard to diagnose because everyone has different symptoms. If this is all new to you I am sure you are scared. I have had MS since 1988 and have kept a full time job so it is possible to live a full life with MS.

    The MRI and other scans will give the doctors a better idea of how extensive your case is. If it is MS or any other immune disease it will not hurt to boost your immunity now to better deal with what your body is having to deal with. That said my first 3 years were the worst because I was having to learn to take care of myself and how this disease works. So I am going to give you some pointers:

    1. Take a multivitamin with lots of B complex or add a B complex vitamin make sure one of them has Panethetic Acid.

    2. Never get hot to the point of sweatting. You can still do exercises or sports but you must limit heat exposure. Warm showers or baths. Keep a cool damp cloth or water with you if you are out in the heat.

    Thats it for me I just try to live by these rules it has helped tremendously. I hope you know whats up soon. And I agree the MS Society is there for you.

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