So Far on My List .I have my Thyroid doctor MONDAY.

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I am not a doctor, I am not even in the medical field. I just think if we work together we can solve this . I think it isn't fair living in pain.

So far from my list of info.

Monday I see the Thyroid doctor.

I still need to see an infectious disease doctor. I have already seen a neurologist, rheumatoid arthritis, urologist, and a primary.

I need the following test:

Elevated Blood Calcium

Bone disease

Muscle disease

Parathyroid disease

Adrenal Body Type Progression

Adrenal Stress Index test

female hormone panel

ApA Biofilm bacteria

 Marshal pathogens

a hair mineral analysis

Assay (abnormal immune system response)

Sarcoidosis

nti-thyroid antibodies (which means my body is attacking my thyroid and is called Hashimoto's Thyroid Disease)

Metabolic treatment of fibro

Autoimmune thyroid disorder

Pituitary gland needs to be checked

I need T3 and an antithroglobulin and peroxidase (autoimmune disease)

T4

MRI of my entire body.

If I have Low cortisol- possibly test with salivia 3 times a day ( hydrocortisone not to exceed 15mg a Day)  (circadian pattern)

Low iron

Auto immune System

Iodine deficiency

 

 

My primary has ran a CBC and a Lime disease, and a thyroid test.They haven't said anything about the Lyme test yet.

The infectious disease doctor is to check me for any “black mold”, there has been evidence of black mold being in the sinus cavity. I also will be able to have mycotoxin tested then.  It can occur at any age, personally I can’t tell you everywhere I went between 1-8 years of age. The whole better to be safe than sorry. What about Lead Paint? Back then We didn't know any different.

If I do have fibro, and it takes me forever to walk from the parking lot to the store’s front door, why can’t I get a handicap sticker?

Elimination of toxins

Detoxification and treatment of Biotoxins

comparing hypothyroidism with fibromyalgia

fatigue, brain fog, and depression

muscle and joint pain, which sometimes can be quite severe. 

I would like more information on having treatment with low dose of LDN (endorphins) in treatment.Has anyone tried it?

Research backs up thyroid/fibro

Home remedies that others have shared, I am planning on trying ASAP

S-adenosylmethione(SAME)

Acupuncture (there is a place where they have a sliding fee, here locally)

Capsacian lotion

Magnesium

Epsom salt

LCarnitine

CoQ10

Tocotrienols

B12

VitaminD

Htp5

We use EPA/DHA (fish oils) to do this.

100 mg of 5-HTP before bedtime helps

Lipoicd acid an antioxidant that crosses the blood brain barrier and helps the brain and liver recover from toxic insult. We use 200 mg twice a day and it seems to be very helpful

 

This is the typical throid test- it mean squatt

STOP GOING BY THE TSH LAB- can be the same for years before it rises and one could have hypothyroid for years

Can’t rely on blood test only , they don’t tell us about the underlying cause of the condition

Adrenal Glands are often compromise(hysterectomy)(anemia) refined sugars /Sleep/ stress

Hormone imbalance –estrogen dominance /progesterone might be others as well may need a hormone panel -when I had my hysterectomy they took one ovary - I might not be making enough progesterone.

What I need to do :

Eat Well- this is really hard for me now, as the medicine makes me ill when I think of food.

Sleep well- Funny I have never done this , why start now? I got my result from the sleep apnea thing and I have 96-98 percent of air when lying on my side and 25 percent when on my back, almost sever when on my back ( I never knew that I slept on my back) . I am getting an automachine it adjust amount of air according to the immediate needs .

Ok, but what about the fact I get up 5-10 times in 5 hours to go pee (38 yo) and now hubby caught me sleep walking - I was cleaning the kitchen .

Exercise- I go to work with hubby when not at school as he likes to babysit me. I go up and down stairs abou5 times a day and walk in my home getting birds, some weighing 5 lbs (almost)

Managing stress-I feed on stress, I am the one who wants more and more . I was raised in a home that you can do anything, and that is how I live. I am literally stressed extreemly when sitting not doing anything. I was taught I could rest when I die.

Possible issues with the thyroid that could be diagnosised as fibro

First is an undiagnosed or undertreated deficiency of thyroid hormone. Second is the resistance

of patients' tissues to thyroid hormone. "Resistance" means that patients' tissues need higher than

"normal" amounts of thyroid hormone to maintain normal metabolism.

***What might be normal for you might not be normal for me? The table to show the normalcy is garbage."

nutritional deficiencies,physical fitness, and drugs that slow metabolism

the proof that too little thyroid hormone regulation is the main underlying cause of fibromyalgia becomes irrefutable,

The evidence that too little thyroid hormone regulation is the main cause of fibromyalgia .

Symptoms. Fibromyalgia patients' symptoms are exactly the same as those of patients who have hypothyroidism and the "peripheral" form of thyroid hormone resistance. Many medical writers have reported this, as the following list of references

A significant percentage of female patients with high anti-thyroid antibodies but "normal" TSH and thyroid hormone levels have chronic, widespread pain that is often diagnosed as "fibromyalgia

Fibromyalgia patients as a group also have a high incidence of thyroid function test results showing "primary" and "central" hypothyroidism.

abnormalities occur in both hypothyroidism and peripheral thyroid hormone resistance.[

women with fibromyalgia had low resting metabolic rates and low basal body

thyroid hormone therapies other than T4-replacement

 Is too little thyroid hormone regulation the main cause of fibromyalgia? The answer is a resounding yes! That the proof for this conclusion is irrefutable is clear only through one course of action—examining the evidence for the conclusion through the logic of science's most advanced state of inquiry, deductively formulated theory.

 

Brain-

Sympathetic division (fight or flight)-when our environment threatens us our body has to

Parasympathetic Division (rest and digest)-when our environment is relaxing our body will

Brain releases CRH (corticotrophin releasing hormone-stress

Progesterone (ovaries produce for pregnancy/ I have only 1 ovary )

inactive T4 hormone to the active T3 hormone by inhibiting the enzyme that does the

proteins and niacin to repair the tissues in danger from the tiger. As a result, your body diverts the amino acid tryptophan away from serotonin production and towards protein synthesis. Tryptophan is only 1% of the amino acids you consume. The reaction that makes tryptophan into 5-hydroxytryptophan (5-HTP) and then into serotonin is just three steps and needs B-6 and an enzyme, but stress and elevated cortisol can impair the conversion.

Fight or Flight and Growth Hormone: seritonin

sleep and fibromyalgia patients never get to stage four sleep.(deep sleep)

Growth hormone allows the muscles to import amino acids for tissue repair from the wear and tear

growth hormone, you do not get tissue repair. This results in soreness from any level exertion or muscle work.

There are many tests for thyroid function, but in people with fibromyalgia the thyroid stimulating hormone (TSH) seems to go up and down, so TSH is not a useful marker. Instead,  measure the real hormones involved in regulating the body’s metabolism, which are T4 and T3 (T4 is the version that circulates throughout the body and is converted into the active version, T3, as it enters all cells before going to work). Test for auto-antibodies, especially if the thyroid gland is tender.

Ask your doctor for a TSH (thyroid stimulating hormone) test. Many labs will consider your TSH level normal if it comes back between .5 and 5, though they have different scales of normal. Most people are at their optimum with TSH between 1 and 2. If your test comes back at a 3 or 4, most doctors will tell you that your test results are normal.

Do not take this for an answer. You can either educate yourself or share with your physician the book called Thyroid Power: Ten Steps to Total Health. This book is excellent for getting your thyroid hormones at optimal levels through medication.

 

Armour Thyroid

 

I am not a doctor, I am not even in the medical field. I just think if we work together we can solve this . I think it isn't fair living in pain.

 

1 like, 9 replies

9 Replies

  • Posted

    Wow, that is a thorough break-down. It all makes sense. I'm sure we can all relate to this.

    Very interesting !! wink xx

    • Posted

      I am just sharing , I would love it if the pain in all of our lives could vanish .
    • Posted

      I believe we all feel like this.  Just waiting to be painfree and in my case just to have a restful sleep without pains and night sweats.  One day it will happen. 

      Gentle hugs wink x

    • Posted

      Absolutely Bee " one day it will happen" that's our hope..be blessed:-) xxxxx

       

  • Posted

    I hope Monday's appointment is useful for you? It sounds like you have lots of areas to explore, so best of luck and we would be interested to hear how you go?👍🏻
  • Posted

    Hope you get answers on Monday..thinking of you, be blessed have a lovely weekend., I'm left wondering why you have seen a Rhmotologist yet...they are the specialists that diagnose Fibro..also they are a great help in most of our cases..:-) xxx
    • Posted

      Sorry..diagnosable..why you HAVENT seen...questionrolleyes
    • Posted

      Oh , I have seen the RA. he refused to do any test for arthritis. Here I am 38, was diagnosised and treated with arthritis in both knees at 12. Then about 4 months after my hysterectomy I complained about my lower back, they xrayed it, the doctor claimed it showed the begining of arthritis. I tol;d the RA, and he didn't do one single test, but the trigger points. Diagnosed me an gave me medicing(that barely works) . I did the research ,I had a friend who this actually occured too being diagnosed with fibro and cured with thyroid medicine. Then some one on here share more info about thyroid and fibro. IT MAKES SENSE.
    • Posted

      hiya diagnosisalie,  It took me 10 years of terrible symptoms and misdiagnosisthat lead to me treated for various illnesses...grr 10 yrs of my time and my families time..it wasn't until I was hospitalise with a 150 kilometre trip by an ambulance, to the hospital to be diagnosed right..then they could start giving me correct meds...the hospital and ambo thought it was a heart attach...the Rhumo came and did a few big tests for a few days..and finally told me what it was...celebration time!!!! ..now 20 odd years later I only get flare ups,...so there light at the end of the tunnel...actually whenever I get asthma or the flu or anything else..it just like I don't have one symtom of Fibro...it's just the way the brain works apparently...for me anyway. This Fibro works sooo differently for everyone...do hope you get put on something that really works for you..I am on double the recommended dose if Magnesuim .vitamins D. I also have Osteo Arthritis, so I take over the counter meds fir that..the only prescription med I take for Fibro is Amithriptiline..,25mg every night befire bed..I sleep like a baby..no pain or muscle spasms or cramps..I have to be woken up or I'd sleep all day, but oce. I'm up and showered I'm ok....never had it increased in over 16 yrs...have a lovely day, be blessed....)-:xxx

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