1. Community
  2. Bones, joints and muscles
  3. Polymyalgia Rheumatica and GCA

So far so good

Posted , 15 users are following.

Silver49
Silver49

I'm not sure what has happened but I have not received any notifications for a long time now. I am over 6 months off prednisolone and feel that life is getting back to normal. I have lost almost 1.5 st and some of what I would think may have been withdrawals have gone. Carbs no longer cause me the same weight issue but I am eating less of them. I thought I would check in to give some hope to those who may be struggling as I was there too and was on pred for over 4 years. I have had some stress in my life since coming off but my body seems to be coping with no return of PMR to date.

2 likes, 18 replies

18 Replies

Prev
  • Emis_Moderator
    Emis_Moderator Silver49

    Posted

    Hi Silver49,

    Your email address was showing as blocked in our system so I have removed the report. This means you should start receiving emails again although they may go to your spam/junk folder.

    Regards,

    Alan

  • nick67069
    nick67069 Silver49

    Posted

    Glad you are PMR-free at last. Many just ride off to sunset and never let us know, so thanks for coming back to visit.

  • Silver49
    Silver49

    Posted

    I am unable to complete a reply without it disappearing, so briefly. Weight loss is partly cutting carbs and partly no longer on steroids. I did have a spell of being uncertain about coming off as I had similar pains to the ones I had with PMR and thought it had either not left or had returned. I was very tempted to go back on a low dose but stuck it out and came through the pains. I think it was withdrawal and I had other physical problems which I also put down to withdrawal. GP was very good and ran a number of blood tests and ultrasound which came back negative bar one which I think is due to the weight gain so now on a steady loss and will see him again in May. It is not an unduly concerning result. My sleep pattern has taken months to settle but now it has my energy levels have returned to what I can expect for my age. I sometimes surprise myself with how much I do achieve. Thank you all for your kind words and I shall pop back from time to time to update. I wish you all a downward journey with the steroids and hope that, like me, you can be steroid free.

Back to top
Prev

Report or request deletion

Thanks for your help!

We want the community to be a useful resource for our users but it is important to remember that the community are not moderated or reviewed by doctors and so you should not rely on opinions or advice given by other users in respect of any healthcare matters. Always speak to your doctor before acting and in cases of emergency seek appropriate medical assistance immediately. Use of the community is subject to our Terms of Use and Privacy Policy and steps will be taken to remove posts identified as being in breach of those terms.