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so fed up now believes me

Posted , 5 users are following.

rachel76740
rachel76740

Hi all please help .I've been having problems with back pain affecting my walking for years now but about 6 month ago I started having really bad panic attacks they have now stopped I was then told by talking therapy I got depression and anxiety. About 3 months ago it got to the stage where my legs give out uncontrolled shaking, problem moving as in walking about .my hands wrist and elbow swell for no reason and very painfull and stiff .I fill like I need oiling.my whole body feels like I've done around with mike Tyson some days .I'm always tired. My muscle keep cramping up .physeo told me it's all in my head but another doctor took bloods to see if it's artherits. My daughters doctor saw my hands and said looks like rhumitiod and fibrositis. I feel no 1 believes me other than my husband and kids that are picking up the pieces of my problems can any tell what is wrong with me. im not unfit on a good day I can do loads on a bad day wiping my bum feels like too much of an effort please help

1 like, 14 replies

14 Replies

  • Carinaeta
    Carinaeta rachel76740

    Posted

    Its not in your head Rachel. Everyone on this forum will support that. So many people with fibro are told its not real, its all imagined. Why would ANYONE imagine being like this? smile I think you need to see a different doctor and/or ask to be referred to a consultant. Doctors cant refuse to refer you if you insist, they dont like doing it becuase I think it costs the practice, but you can insist on seeing a rhuematologist. It may still be a lengthy process to get a diagnosis but at least youll be on the way to getting one. Also make a day to day list of symptoms, including how you feel for the consultant to look at. The last thing you need when you are this ill is an unsympathetic doctor, change him! 
    • rachel76740
      rachel76740 Carinaeta

      Posted

      The physio said we're the same age look at you and look at me .patronise or what.she went on to say your bloods will come back normal.she said I have got no core strength and I'm unfit .I bet on a good day I could out run her on a bad day I walk like I've pood my pants .The pain reduces me to tears my husband has had to carry me to bed as my legs wouldn't work yet this is so say all in my head .I get blood results tomorrow and my husband is coming with me he wants answers as well. I'm only 44 with 3 young children that don't under stand what's going on but there ready to help there only 8 11 12 .its stopping me doing family activitys with them there missing out on so much because of me.its heartbreaking
    • rachel76740
      rachel76740

      Posted

      Just spoke to my talking therapist and she is going to speak to my Dr as she feels there is a big possibility I do have fibrositis and feels until they sort out wot is going on with my body that I won't get better with the anxiety side of things .fingers crossed I get answers tomorrow
  • grahammolyneux
    grahammolyneux rachel76740

    Posted

    I've had a similar experience after injuring my neck I have three prolapsed discs but I have pain everywhere.

    It has been diagnosed now as fibromyalgia so take a look into this. There is a great forum on this site for this condition.

    hope you find a way for some relief soon

  • christine26761
    christine26761 rachel76740

    Posted

    Feeling for you Rachel, be strong...if you can...I have arthritis too along with Fibro and ot her issue..you should never feel that it's in your head..it takes ages so times for  the medical profession to know what we are suffering from..then it's getting the meds right.....I get very swollen and sore in places due to arthritist times too, it's horrid, I feel like I've been run over by a semitrailer....do hope they get you sorted soon......no wonder we get depressed and anxious. Just remember you are not alone in this..,,be blessed..:-)  Australia

    ps..lots of hot water bottles eveywhere it hurts, are a real help, but you probably know this,,

  • anne90395
    anne90395 rachel76740

    Posted

    Hello Rachel,

    My heart goes out to you, you are putting up with so much. I think we all go through that barrage of tests, and no-one believing there is anything wrong. That is the diagnosis of Fibromyalgia, a process of elimination. If you don't have a sympathetic GP please find another one. You don't mention the fatigue and tiredness, which I think is a key element of Fibro. Glad to hear you have such a supportive husband, that is great. good luck

    Take care, Anne

    • rachel76740
      rachel76740 anne90395

      Posted

      I'm always sleeping sum days I just stay in bed and sleep it's funny but i seem to sleep more after a bad episode.its like it drains me .I always need to sleep for 1 /2 hours in afternoon but never feel better for it usually wake up with a tight scalp
  • rachel76740
    rachel76740

    Posted

    Blood test all good but Dr wants me to see ruematoligist .He said its to alimatate arthritis. He said it I does look like it could be fibromyalgia as all the symptoms are what you exspirence with fibromyalgia
    • christine26761
      christine26761 rachel76740

      Posted

      Sounds very promising for a correct diagnoses, then you can get real help..hang in there, be positive..if you can..usually after all that and seeing the Rhumo you'll probably get the correct diagnoses...  FINALLY YOU SAY..probably the Rhumo will tap thise special Fibrio points..be blessed..:-) xxx
    • Flowerlady
      Flowerlady rachel76740

      Posted

      Hi Rachel....Hope all goes well for you when visiting the Rheumatologist..We, all on here will be thinking of you. Keep coming on here it's a great site..Keep well Anne...
  • Carinaeta
    Carinaeta rachel76740

    Posted

    thats great, it was a rheumatologist who diagnosed me with fibromyalgia, I was sent to one because my doctor thought i had arthritis too, he'll examine your joints and prod you about a bit, but im sure youre on the way to a diagnosis now. Good Luck and hope things get better for you soon.
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