So fed up of being inflamed and sore
Posted , 12 users are following.
Any advise welcome! I had a vulva biopsy on 29th December, since then I have been inflamed and sore (whole area not just around the biopsy) itching doesn't seem to be my biggest problem. I have tried fucibet (was told only to use for 7 days), emuaid, coconut oil, nappy rash cream, aqueous cream and bi-carb all of which haven't helped, have started using Vaseline today. Have I over done things and just confused my skin with all the different solutions I've tried, I just want to sit and have a good cry now. I am at my wits end as I don't know what to do for the best :'( my follow up apt isn't for another 4 weeks. If I just put up with the inflammation and soreness will it just get worse or will it calm down if I leave well alone.
2 likes, 17 replies
alison54950 jackie770271
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hanny32508 jackie770271
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And what worked best for me was the bicarbonate and coconut treatment. Rinsing after every bathroom visit, every other day a bicarbonate bath. Plus the alkaline diet. And of course at the very beginning the more frequent use of Globetasol. (now only occasionally) Meanwhile I am a good year on the go.
There is a lot that I keep doing to remain where I am today. LS will never leave, or be cured, but you can eventually make it liveable.
Any further questions - just ask.
lorna65 jackie770271
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I am red & sore all day every day, so I know how you feel,and I have tried every kind of lotion & potion going.
I use just the tiniest smidgen of Dermovate, it makes it reder and stings a little for about 10 minutes, then all is calm, I also use Epaderm as a barrier, as I have said I have tried all the other creams, even got some sent over from the states, but they just made it worse.
Hope this helps X
andrea58721 jackie770271
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kate207 jackie770271
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andrea58721 kate207
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Re knickers. I don't wear them at all!! (confession Only cotton slips and skirts. I found all knickers irritating to the LS.
Guppy007 jackie770271
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I don't think you can beat Lube for a while, and then maybe go back to the coconut oil, some ladies like Emu oil but I don't think its good for me anymore because I realized I am allergic to feathers, and of course this oil comes from a big bird.
Remember we are all different and what works for one person may not work for another, that's why I suggested the Lube, as it could be that you really have overdone things and just need to not put anything on there for a couple of days.
I also think its a good idea not to wear underwear for a while too...let us know how you get on.
justine89448 jackie770271
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deb09833 jackie770271
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suedm jackie770271
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Cool the area with cool air with hairdryer - cover the area with your barrier ointments to stop drying out which will make the area even more sore
Go commando wear (long ) skirts and dont sit for long periods at a time
As long as you have thoroughly washed and cleaned the area of all the lotions and potions I doubt you will have damaged the area further - because I imagine that you are not allergic to any of the product- but it maight be worth while checking the ingredients and see if you have set up an allergic reaction. Go with the simplest purist ointments and stay with that for a reasonable period and then try another if it isnt working
Write down what you are doing - ie with the ointments then keep a diary of your food and drink intake and your moods, that way you may be able to pin point what it is that is affecting you. Perhaps take a photograph - with a camera NOT a phone to keep as reference and to show your clinic next month
Good luck I hope it soon calms down
Sue
jackie770271
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suedm jackie770271
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British Association of Dermatologists have a survey for one month only, about vulval disease, results will be used for media awareness. Please take the survey
https://patient.info/forums/discuss/important-survey-358964
Emis Moderator comment: I have replaced the link to the survey with a link to the discussion about it. If you want to advise users of the survey use the link above as it will not go for moderation.
suedm jackie770271
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the link is being moderated at the moment so do look for it as it may be time limited
jackie770271 suedm
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athena93317 jackie770271
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jackie770271 athena93317
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