So frustrated !!!

Posted , 5 users are following.

Been dealing with a sinus infection for 2 months. I have taken doxycycline and levaquin . I got somewhat better but it didnt completely go away . Went back to ENT and did another culture and CT and started on clindamycin. CT showed pansinusitis and alot of inflammation. The clindamycin is giving me alot of gas and bloating its been 4 days. I have been eating 2 yogurts a day . Got a call yesterday from ENT that the culture had grown corynbacterium species and that the lab hadnt sent the sensitivities so they recommended since the clindamycin was giving me stomach trouble to stop and wait till next week for sensitivities. I am afraid that if I stop and then clindamycin is the antibiotic of choice then i would have to start all over again. I am totally mentally and physically tired of all this and i am worried because the clindamycin has a black box warning for C diff. Has anybody ever taken clindamycin ? My doctor didnt say anything about probiotics but i thought by taking yogurt would help. Any suggestions concerning this would be greatly appreciated. Thank you.

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  • Posted

    ive had same simce root canal treatment 5 months ago , so fed up of sinus pain , feel i have some simus infection that just womt go away , its not helping my anxiety at all , every day i wake up its still there .

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    • Posted

      Am so sorry you are going through this. Have you gone to an ENT so they can do a culture and a CT scan of sinuses ? What symtoms do you have ? I finally went and they did a culture which was negative but the CT wasnt good. Alot of inflammation and mucosal thickening . They did another culture because it had gotten worse alot of phelem, pain in my cheek bones and jaw. So they gave me another antibiotic temporarily because the culture takes a week. Well now they called me and told me that they found a bacteria but the lab hadnt sent the sensitivities so to stop the antibiotic till they get the report because it might not be the antibiotic i should be taking. I am kinda glad because the antibiotic they gave me was causing alot of stomach issues. I feel like am on a roller coaster when will this finally end. . I can truely understand your frustration. Keep me posted .

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  • Posted

    I can understand your frustration.

    I have been dealing with sinus issues for about fifteen years or so. Prior to that they were fine.

    I have seen two different specialists and been on several different antibiotics over those years. Overall I would suggest that their effectiveness is pretty limited, perhaps overall potentially more harmful than good..?

    I have had bilateral maxillary surgery and those sinuses are reasonably OK.

    However following a pretty bad cold my sinuses became an issue again.

    After a six weeks course of antibiotics, with no change, I'm now due for another CT scan tomorrow due to sinus issues, this time the Ethmoid ones.

    The specialist that I'm seeing is good but it still leaves a lot of frustration and discomfort and pain in dealing with this issue.

    I do irrigate twice daily and add other things to the saline mix.

    I also have over the last few weeks started to increase my good bacteria, more so after taking those antibiotics for so long.

    I am using Kefir as it is much richer in those than yogurt.

    My own thoughts so far with my experiences is that antibiotics are not a single solution to chronic sinus issues. Dealing with infections within those cavities, as well as their biofilms, can be most difficult.

    Best wishes.

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  • Posted

    iam sure my maxillery sinus was infected after root canal on upper tooth , i have had the said tooth removed in the hope things will improve , but 2 months later still not had xrays on teeth but feel theyre looking in wrong place, may ask for refferal to ent , i feel like a nuisence backwards and forwards to docs and dentist

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    • Posted

      Thank you for all the info. When i took the levaquin my stomach was fine but the clindamycin was really raising havoc with my stomach and has a black box warning for c diff . Now that i stopped the antibiotic i have so much phlem it just doesnt quit . i feel like i have a cold but i dont. I made an appt with an allergist becsuse my ENT thinks that alot of it is being caused by allergies . I also went to get some probiotics but there are so many to choose from any suggestions will be very helpful . Also where can i get the menthol crystals ? And how much do you use ? SO hopefully i will get some answers this week because i am truely miserable .

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    • Posted

      Do you irrigate already and if so do you already add something other than just the saline solution to the mix.?

      How often do you irrigate.?

      When you note the mucus does it tends to be yellow or green or just clear and thick.?

      I'm assuming you must have an infection to be given all those antibiotics.

      Posting what part of the world you live in will help when people suggest products.

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    • Posted

      I'm in the UK and can buy menthol crystals from a pharmacy.

      There are very many different types of probiotics - I guess it's a matter of trial and error. Perhaps try kefir as it's recommended here and see how that goes? You may have to give it a week before you can tell if it makes a difference but I guess a litre of kefir (which should last a week) is cheaper than a bottle of capsules. Other posters might have a better answer.

      If it's something in your sinus that's got a bio-film protecting it antibiotics won't touch it. D Mannose is used to get rid of bio-films in the bladder but I have no idea if or how this would work for the sinus - it's to do with the acid I believe. Again, maybe another poster will have more of an idea.

      Good luck

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    • Posted

      HI Vimes,Sorry i havent responded but I was in the hospital with atrial fibrillation. While i was in hospital i was coughing alot and congestion. They said that the ct i had read there are frothy secretions within the right maxillary sinus and fluid within the right sphenoid sinus suggesting possible superimposed acute component.Correlate for symtoms of acute sinusitis. And mucosal thickening suggestive of rhinitis. They gave me a prescription for singular . To answer your questions , I live in the US . I only irrigate with saline once a day. My mucus last week was yellowish green first thing in the am but then during day clears out. Today i have been really congested and some yellow but not like last week and cough . The ENT did a culture which grew Corynbacterium species. They said that it wasnt common and still awaiting lab for a senstivity report. I have an allergest appt next week. I am so congested. I am doing the saline rinse, allegra, singular and something for the cough. I dont know what else to try .

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    • Posted

      Hi Miriam, thanks for the info , concerning the kefir, do you drink like a cup a day ? I saw the menthal crystals on amazon. I will order some. Also i find it very interesting about the D mannose. My daughter uses it for reacurrent UTI and i am going to look it up .I am also wondering I take protonix which is an acid reducer every day for GERD and am wondering if this could have something to do with this since you mention the acid thing , Because even though i take antibiotics, it helps but just comes right back to hunt me . I sound like i have a terrific cold and cough but I dont have a cold. The ENT wanted me to take some steroids but with my history of A fib which i just had an episode i really dont want to go that route now. This is soooo frustrating. I really appreciate all your help and Vimes maybe something will work . Thanks again .

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    • Posted

      I do hope that you are feeling better from your hospital stay 😃

      I live in the UK.

      Prior to me having Sinus surgery on both of my maxillary sinuses one was completely blocked (structurally) and full and the other was nearly blocked and full of liquid / air bubbles, typical of being very infected. The surgery sorted out the openings as well as removing the diseased / infected material in their.

      Doing that has been successful in opening up those sinuses for irrigation but I still seem to be prone to having chronic rhinosinusitis symptoms.

      I started to think more of my gut health due to the fact that around 80% of our immune system resides in our gut.

      So probiotics and kefir is taken each day. I do know for a fact that by doing so it has greatly improved my digestion and bowel habits. And I'm sure it is also helping to put back what several rounds worth of antibiotics have depleted from me.

      As noted before I consider oral antibiotics to be very much wasted in my experience of dealing with sinus issues, and even detrimental overall to a persons immune system.

      I typically irrigate twice a day, sometimes up to three times. That to me is crucial in making sure that everything up in your sinuses keeps moving as freely as possible. I used to use only the saline solution but now, with the agreement of my specialist, I'm using a 10% solution of povidone iodine, several drops within my saline mix, to help with its antiseptic, antibacterial, antiviral, anti-fungal properties. This to me makes a difference.

      I have also recently bought a steamer, the type that people use for their face. This has a nasal attachment and does extra to what the traditional irrigation offer. It gives me the impression that it is loosening up the otherwise very thick and difficult to move mucous.

      After having another CT scan on Monday of last week I will see my specialist on Thursday of next week to see where we go.

      Dealing with chronic rhinosinusitis is not simple nor fun at all. It is complicated as there seems to be no one single solution that works for all and something other than oral antibiotics needs to be considered for the first approach from doctors and specialists. I have read of a person using an antibiotic mix within their irrigations and others using probiotics directly in their nostrils, a special mix of probiotics designed for that.

      Even though I have mention kefir be also aware of your diet and whether that might contribute to the congestion, keeping off dairy is suggested by some. But I do use kefir and will continue to do so.

      I have used other things within my saline mix to help but please consider irrigating more than once per day. Perhaps talk to your doctor about it.

      Best wishes

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    • Posted

      Hi Sunflower,

      I would go with whatever Vimes suggests re the kefir - or you could start with a small cup a day and see how that goes. I was thinking that a litre carton would be 5 small cups - enough to see if it makes anything worse, anyway!

      Vimes is right in saying that dairy can increase mucous production, although youghurt and kefir seem not to do this, perhaps because of the activity of the cultures they contain.

      I've already commented that both Levaquin (and the other fluoroquinolones) and clindamycin can encourage c.diff - in fact I think all antibiotics (ABx) can play havoc with your microbiome , which is so important for your heath. It's very important to re-establish a healthy microbiome after taking ABx and I always make sure I have live yoghurt or something if I need antibiotics.

      Re the GERD - this can be caused by dietary problems and I think you can find advice on line about improving your friendly stomach and gut bacteria. Many people - including most doctors - think that acid stomach problems are caused by too much acid whereas the opposite is more often true - the stomach has too little acid! This causes digestive problems but the symptoms are taken as being from an excess of acid. If you take protonix or other proton-pump inhibitors (e.g. names ending in "-prazole") for too long your stomach struggles to produce enough acid to counter the effects of the inhibitor. This just turns the problem into a vicious circle - and makes it very hard to stop taking the PPI. Look on line for dangers of PPIs and also the natural alternatives and food to eat or cut out. There's a book called clever guts by michael mosley which is a real eye-opener!

      Many people believe that stomach problems can lead to breathing and sinus problems so it may be that all these things are linked. A healthy microbiome is a very important key to a healthy body!

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  • Posted

    The live yoghurt, kefir and any kind of probiotic should definitely help as the antibiotics are wiping out your good gut bacteria as well as whatever is in your sinus.

    Both clindamycin and Levaquin (and all the other fluoroquinolones e.g. Cipro) carry warnings about C.diff. Because of the way they clear out the gut bacteria they leave C.diff without any of the competition that normally keeps it in its place -so it goes wild!

    I agree with Vimes that antibiotics are not necessarily the best solution for sinus problems - or most of our problems for that matter. It seems to be that doctors will hand them out rather than thinking of safer remedies. I had chronic sinusitis for months (the pain!) and the doctor finally suggested (after 3 rounds of ABx) that I tried menthol crystals dissolved in boiling water - inhale the steam (but don't scald your nose!). I also take evening primrose 1000mg daily which is said to help and I have to say I haven't had sinus problems since.

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