so frustrated
Posted , 6 users are following.
Ive had lots of issues over the last 6yrs. Pain all over my body, numbness and tingling, headaches, fatigue, weight loss and gain etc. I was diagnosed with fibromyalgia and hypermobility syndrome in July and referred to physio for some help with pain, only to be sent back to the doctors for more tests as he thought there was something else underlying that had been missed. Now im waiting yet again to see an osteopath and have an MRI done. What are they checking for? Im so frustrated and upset about the whole process its really taking its toll on me, has anyone else experienced this sort of thing?
5 likes, 129 replies
kkylie
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Warm regards
Kkylie xx
georgeGG kkylie
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kkylie
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I have no idea if I actually have ms, or if they're checking me for this condition. Although I have many of the symptoms and complaints, they could be caused by a lot of other disorders also, so I didn't want to poke my nose in where it may not have been wanted either! The amount of times that I have confided in someone and they've called me a hypochondriac has sort of knocked my confidence in believing that someone would actually give a monkeys what I'm going through lol!
I only ever speak to my husband about it when I am really suffering....... you guys may be the only sensible and experienced folks that I have who could give me good advice and a shoulder to cry on. I have only just realised how lonely having conditions like this can make you feel😢
Cheers!
Kylie
georgeGG kkylie
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frustrated61 kkylie
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georgeGG frustrated61
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kkylie
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I wish you well in becoming a grandad! (Again or otherwise)
Congrats to you and your family!
Warm Regards
Kylie
frustrated61 kkylie
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Again, thank you for your post!
Frustrated
georgeGG frustrated61
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frustrated61 georgeGG
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You most definitely have that right about babies smelling so darn good...with exception, after the big do-do kicks in LOL. It is the same in my household, my husband loves the babies but the toddlers, not so much. DOn't get me wrong, he does love all his grandchildren (now 8), 2 children, 1 with 7 and one with 1 (so far, they only just begun!), but running around after them, that frustrates him,(probably because they are faster, shh) lol. [email]LOL@you[/email] both being in a sweat! That is so darned funny! Fortunate for the internet, I can be both! lmbo! However, I assure you both, I'm the "momma" lol. Okay, I'm clearly trying to outdue each remark I make, because I find myself laughting harder each time. In any case, I hope just one of these remarks made both you and Kylie smile. Laughter is such a "high" for lack of a better word. I get great release from stress when I laugh. I find if I don't have at least ONE session of laughter throughout the day, my head swells and I cry (one has to release the pressure somehow, right). It's less wrinkles to laugh and so much more winkles when sad and angry. Ok, 'nuf of those lessons.
My lil' guy is Logan. Quite fitting for this two syllabi family George, he has already eased my anxieties! So has this forum!
Great respect!
Frustrated
georgeGG frustrated61
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kkylie
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I am waiting in the docs now with my neck and shoulders. My fingers are even hurting while i type this, so im having a very bad day today. I get searing/aching/burning pains in my shoulders and neck which is very hard to deal with. But today I just cant seem to cope with it. Been crying like an infant for the last hour or so. Someone told me about trigger point injections and as im already doped to my eyeballs im thinking this might work for a change....... id try anything at this point im in utter agony......
Sorry for being morbid folks, ive fallen out with my husband too as he is absolutely sick of seeing the doctors. So im literally facing this one alone 😕
frustrated61 kkylie
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I've had many "trigger point" injections. They do help. Depending on how much level of pain you're in, my pain doc usually does those injections all throughout the particular area. I surely hope and pray that it does work for you. If it doesn't happen immediately give it a day or so and it should kick in. After a day or so, if it doesn't kick in, you should phone the doctor and let them know when and if it did kick in at all. I (now) always keep records as to when I get the injections, when it did kick in and when it seized to work; this will allow the doctors to either use more meds in the injections or rethink what they need to do next.
I am so sorry about you and your husband. I totally can understand that situation. Being in pain, myself, for over 10 years, I realized this was taking a toll on my husband as well. I wasn't clear why he'd react this way as he wasn't feeling the pain I was dealing with. Then after long sessions with a therapist, I did come to fruition that unfortunate as it is, most cannot deal with a long term illness. I did go to my husband and told him how much I did appreciate him being there for me and totally understand what he is going through. It's hard for those who are not in the situation as you and myself and George are in dealing with so much that we at times don't quite understand and would love to get away from it, if even for an hour. This type of affliction changes people. I'm sure your husband loves you very much but he's feeling a bit slighted with having his lifestyle changed so dramatically. Don't get me wrong, I was bittered at the thought he'd even "try" to make me feel sorry for him. In the end, I did. I told him if he would feel better with all this and he had to leave, then he had to follow what his heart was telling him. The final of all this, is he was just having a bad minute/day/week/month. However long it too for him to shake that feeling, it was ok with me because after all is said and done, I knew he'd always be there for me and me always there for him. I guess in a nutshell, after being married for over 38 years, we know one another like no one else would and we shiver at the thought of "training" another lol. Kylie, give him all the time he needs to adjust totally to this new situation. Don't assure him you'll be better soon, just assure him you'll always be there for him when he's feeling so alone and down. Make sense?
My heart holds heavy with your situation. Just know, it does and can work, even when things seem so bleak. The part in your wedding vows "for better or worse" goes both ways. It may be helpful, too, if you tell him this. If it were him in your shoes, you'd be there for him until death due you part.
Sappy, yes, real, yes and hopeful, yes.
God Bless, Kylie and I wish you on the mend soon!
your friend,
Frustrated
frustrated61
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I did forget to mention, there was a point where my husband, like yours. was so sick and tired of seeing doctor after doctor that he even wanted to drop me off and let me fend for myself. When things get that bad, it's time for an intervention. Possibly through therapy for both or through faith for both. Religion doesn't mean going to church, it means how one feels about it through your heart. You can be a very faithful, spiritual person by self alone, for me, church is a means of being with those who feel, share the same beliefs but the biggest that turned me away from church, was them always wanting more and more and seemed to lose direction. I give financially to many different organizations, such as CASA, Michigan Humane Society ASPC and I support local needs. I'm not saying "wow, I'm a saint!" lol what I am saying, you can give from your heart sitting on your sofa, too meaning "church" has always been with me in my heart and soul.
As much as that sadded me that he'd abandoned me right at the time I needed him most,(sound familar?) you are never quite alone or abandoned. I'm not sure how much of a "believer" or how you are with your "faith", but prayer has gotten me through so much you cannot even imagine. Keep believing your husband will change his heart, he will. Keep believing you will get some solace with your pain, and you will. Keep believing you and your husband will reconnect, and it will happen.
I wish you the strength you need to get through this. Being strong and asking for help, isn't a sign of weakness, it's a sign of strength.
Again your friend,
Frustrated
frustrated61
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"I jump off my soapbox" and throw hugs to everyone
frustrated61
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"I jump off my soapbox" and throw hugs to everyone
georgeGG kkylie
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I am so sorry to learn that you are having such a very bad day. I am sorrier still to learn that your husband is now letting you suffer alone. I know how much I rely on the loving support and care of my wife. I know I am the one with the disease but she is affected by it in all that she does. I also know from observation the dreadful additional pain when the husband withdraws his support. After many years of suffering, for my mother suffered from MS, my father ceased to care for her. Witnessing this added pain increased the pain of us four children heightening the ever present suffering of the household. I know this sorry tale cannot be of comfort to you, but I can say "I understand, at least to some extent", and along with Macmillan "You are not alone."
georgeGG frustrated61
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frustrated61 georgeGG
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frustrated61 georgeGG
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georgeGG frustrated61
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frustrated61 georgeGG
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frustrated61 georgeGG
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*hugs*
georgeGG frustrated61
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Thank you for those kind afirming words. Laid on my soul with many hugs. So rare a joy in this busy, over stresssed world. So here are hugs 😃😃😃 of thanks to you frustrated, hugs of thanks to you 😃😃😃 kkylie.
PS I think it every time I use your forum name, frustrated does not really suit the open hearted kindness you show us in this discussion. But do not think of changing it for it makes me smile - every time.
frustrated61 georgeGG
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You're going to make me cry. That was the nicest ever! Thank you. I've been feeling a bit "unwelcomed" here (not in this thread) but a few others and you've just made my YEAR! Thank you for your appreciation as I truly appreciate everything you have to suggest, ask, say, period!
My name "frustrated" is a lengthy story but to shorten it, Everytime I put in a name, it was taken unless I wanted to add "name43112229994. LOL I clearly would have forgotten it after the first 4 lolol.
So, with each input of a "name" coming back as being already taken. Guess what, I was "Frustrated"!!!
Be well, my friend and again, thank you for your kindness.
Frustrated