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  3. Hidradenitis Suppurativa

So frustrated, depressed, and feeling like there is not hope.

Posted , 5 users are following.

kellylee213
kellylee213

I am beyond frustrated looking for help with this condition.....my Dr. referred me to a dermatologist and they were not accepting new patients, I live in a large city and crazy enough this is the response I am getting. The worst part is, its only after I describe my condition do they tell me they are not accepting new patients or they say they don't accept my insurance even though it was my insurance web site I got the information from. I have been living with this for years not knowing what was wrong with me, I would ask my dr. in NH and I always got the same answer "we know its not MRSA" but just not sure. I have had multiple visits to the ER, Urgent Care, DR. office for lancings and dressing changes. Even being admitted into the hospital after it turned to cellulitis. I have been in Philadelphia for going on 3 years and it was just this past March that a dr. referred me to a dermatologist. NOW it seems impossible to find one. The worst part of the year is about to hit for me, SUMMER! I am so lost and just don't know what to do! Does anyone have any suggestions? 

0 likes, 3 replies

3 Replies

  • aussie76
    aussie76 kellylee213

    Posted

    I've had some dermatologists which were very apologetic in not being able to treat it and some which were convinced they could, but didn't.

    In the long run it's been diet.

    Can you see a dietitian and discuss autoimmune inflammatory conditions....

    Many people report nightshade intolerance (in particular potato), dairy or nuts.

    Good luck, keep searching forums and see what people are saying. It's coming to light in the past few years.

  • tammyjo311
    tammyjo311 kellylee213

    Posted

    in Philly huh??..I lucked out by finding one through a plastic Surgeon who specialized in HS and she is the Director at George Washington University Hospital in Washington Dc..blessed to have found her, we will begin Humira soon, but diet is saving me right now...diet is key for sure...are you a member of the FB group for HS??..you may find someone in your area who has one in this area of Specialty!...i wish you luck and peace in finding one
  • hsierra
    hsierra kellylee213

    Posted

    Hi I kelly. I have recently started taking tumric pills 450 mg this has help me. In the morning I eat very light and take one pull. At night I eat and take 2 pills. Remember you body heals faster when you are sleeping. I have noticed the difference in 5 day my flare up are light lumps are shrinking and the smell is gone. Me being alittle over weight I was shocked try this it works. Tumric so in total I take 1350 mg of Tumric hope this helps
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