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So grateful

Posted , 7 users are following.

Tired_teddy
Tired_teddy

I'm so grateful for this website. I feel relieved that I found it and that I'm not the only one who feels the way I do. Thanks to those who've made me feel welcome and hello to those I'm yet to meet xxx 

4 likes, 11 replies

11 Replies

  • anthony00827
    anthony00827 Tired_teddy

    Posted

    Good on you mate thats the way if we all talk about fibro and its so called related conditions we may get some answers Tony from OZ.
  • Flowerlady
    Flowerlady Tired_teddy

    Posted

    This damn Fibro takes over our lives, so we should ALL stick together on here XXXX
    • anthony00827
      anthony00827 Flowerlady

      Posted

      Great idea at last I have found people with this strange problem who are willing to speak about Fibro I still have problems explaining the pain and the way it makes me feel from pains in the chest neck so my brain thinks Im having a heart attack to pain in my ribs that keeps me awake foot pain some where out there is a cure forgot about brain fog and feeling like australian slang hope nobody is offended ***** popping pills that dont work but then you have 2 hrs feeling kind of normal and you battle on Cheers Tony from oz.
    • Flowerlady
      Flowerlady anthony00827

      Posted

      Morning Tony,

      Nice to chat on here to a male suffering as we ladies do. I were diagnosed 3 years ago now, and I am sure the pain is getting worse. Went to see the Rheumatologist three weeks ago, still waiting for results as he thinks I may have ME as well. Great news!!

    • angelasashes
      angelasashes anthony00827

      Posted

      My main frustration is trying to explain to people who ask what the symptoms are like, yr tempted when asked how are you to just reply ...oh I'm ok as it can get a bit depressing repeating yr self and even then I don't think they quite understand, only if you have it can you begin to sympathise.

      your also accused of being miserable.. Cheer up they say!

      take care....

       

  • anne90395
    anne90395 Tired_teddy

    Posted

    Hello,

    Absolutely, I completely endorse your views. I am just coming to terms with this, having symptoms for 2 years and only just being diagnosed. Almost wish it was more visible to others, as it is so difficult for them to understand. x

  • angelasashes
    angelasashes Tired_teddy

    Posted

    Hi I have just joined as well as I need a bit of support from. Fellow sufferers I've had fm for fourteen years and sjorgrens syndrome for five I don't seem to be kept informed as to why these things are happening to me I've started getting restless leg syndrome. And irritable bladder syndrome which is most uncomfortable. Any help or advise is gratefully received as gps don't have time to sit a talk to you for hours. 

     

  • Tired_teddy
    Tired_teddy

    Posted

    I sometimes think I'm going mad. My symptoms seem to change all the time. I've more or less given up trying to explain to other people. I actually had someone say to me - do you not think it's all in your head! 
    • Flowerlady
      Flowerlady Tired_teddy

      Posted

      You are not going mad at all. All of us 'pals' on here are suffering the same as you. It is all the outsiders that don't understand what we have to put up with. I, after being diagnosed three years ago have peopls saying' but you look ok'. Yes we do look ok, but boy do we suffer alot of pain. Talking of strange things happening. last night and up till now the toes on my right foot only are tingling, Just like a very light pins and needles sensation. Does anyone else have this? I have not told my family, just you people..question
    • Tired_teddy
      Tired_teddy Flowerlady

      Posted

      Thanks Anne you are so very right. Yes I get that sensation too. Sometimes feet sometimes hands. In fact I have it in my hands today and keep dropping things x 
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