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I'm a 23 year old male. Bear with me on this.
About 40 days ago, I went to the doctors for a blood test.
Usually I'm fine with blood tests, they don't scare me at all, I've never fainted.
I had the blood test and then went upstairs to the doctor, my head went funny, i nearly fainted.
I saw the doctor, but didn't mention the lightheadeness,
she checked me over about a couple of longstanding issues, firstly a problem i've had with nails on my right hand, ridged, with a yellow line running through them. she also checked out my hip also right side, from looking at me, my flat feet, my general thin appearance, the stretch marks around my waist and on my left shoulder (my sister and a couple of cousins also have stretch marks in similar places), she suspected a mild case of marfan syndrome, which i'd never heard of . At the time i had the blood test i had just started a course of 50mg of sertraline, which i feel had been making me tired. I've also been suffering with really cold feet previously and a tightness in my throat, which gets worse after shaving, an uncomfotable feeling when swallowing, which had been attributed to anxiety. I also have had a sore on my leg, i badly banged it, for about 4 months, which isn't healing properly
About 5 years ago i had a weird six months of pain down my right side, a strange dripping feeling, weakness, i developed a small lump in my neck which is still there. This is when the nails on my right hand became weird and ridged and i also lost a lot of weight. they tested my thyroid function but nothing came up. i also at the time develop a weird ridge in my forehead in the skull itself, doctors have just said its normal.
There is a history of rheumatoid arthritis in my family on my mums side. My sister had juvenile idiopathic arthritis aged 6, she also had morphea/localised scleroderma. since the age of 14 she's had severe M.E, her morphea has also been coming back, she is for the most part bed bound.
Anyway, after i left the doctors i started getting pain in my chest and left arm, and a shooting pain in my calf, i was struggling to walk around. I got home and the pain got worse over the course of the day, that night i fainted (never have before) i felt awful incredily weak, a lot of pain down left side. paramedics came testing the usual things- everything came back normal, though i was a bit tachycardic. I was taken to a&e, they couldn't find anything, said the blood tests i had previously that day were fine, i was sent home.
The pain continued, I saw another paramedic a couple days later, she tested my bp, ecg, blood sugar, listened to my heart-everything fine.
A few days later i was feeling increasingly weak with pain and pressure in my chest, went to a&e, they said they'd find out what was wrong, everything came back fine, they said i was generally weak, but couldn't find anything. my gp came to see me, tested my strength, bp, she commented on my sensitivity and weakness, she also said that my white blood cell count was a bit low, she suspected it could be glandular fever.
I went privately to see a cardiologist, the first time i've ever been private, i was just so frightened by my symptoms. he checked everything, thought i didn't have any classic signs of marfans externally. I had an echocardiogram which showed my heart and ascending aorta to be normal. my blood pressure was different between my two arms 110/55-115-60.
My doctor saw me again, she said that my reflexes were very pronounced, that i was generally weak and my posture was a bit off.
She ordered some more blood tests, which may sound silly, but i've been reluctant to have as this all seemed to start after the initial blood test.
I've been having chest pain and tightness, pressure in my neck, pressure and pain in my back, upper left side, pain in my arm and leg on that side. horrible heartburn and some pain in my chest when swallowing. I've had throbbing, pulsing twitching all over my body, particularly in my calf where it went on for days, it was a visible twitching in the centre. i feel so weak and constantly tired. i went for a walk on christmas eve, which was a real struggle, i was so slow, i eventually picked up the pace a bit but my left leg was aching the whole time, when i got back there was a lump on my left thigh, amongst some small broken veins, i've had for quite a few years, they're hardly noticeable, the lump faded with rest, the place it was looked a bit red. a few day ago, i got an erection for the first time in awhile, the small veins became very prominent then when it became flacid, a small black lump appeared, my scrotum is also very tight, red and burning. Everytime i urinate, i feel like i've finished, but then some more comes out afterwards, it's like it gets stuck.
My eyes and ears have been affected. My vision is like bitty, like lots of floaters or static in my vision, i went to my optician, he said my eyes look fine, i've been short sighted since age 5, he said my eyes are slightly worse but thats it.
My ears- constant ringing, sometimes thunderous rumbling on left side. I've also been extremely sensitive to sound, like my inner ears feels like it shakes at any slightly raised noise.
I've been eating ok, though i have no real appetite, i am losing weight especially on my left side.
Everytime i walk especially upstairs or for a long time, i start getting shooting pain up my leg when i bend my left leg.
The little veins in my left hand have become prominent, very dark.
I've getting pain shooting up my neck on the left side.
I'm sorry about the ramble, i'm very worried and feeling worse everyday, i'm sleeping well though eratically, but feel exhausted. I've been debilitated the last month.
I have no idea what it could be: vascular? rheumatic? autoimmune?
my family history suggests autoimmune or rheumatic- my dads side have had varicose veins from a young age? Could it be some kind of connective tissue disorder? is there anything underlying that would mean a bad reaction to a blood test? vasculitis?
I'd just like some advice, what i should do.
I feel so unwell, i want to go back to a&e, though i think they'd just turn me away, i've never felt in my whole life, so unwell, i feel i should be in hospital.
I'm only posting here as my sister has ME, wasn't sure where else to post.
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