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So many question's???

Posted , 8 users are following.

marie_loui19398
marie_loui19398

Hi All,  I have not been able to talk or listen alot lately~  Too many doctors appointments! lol  Unfourtunetly its true!

 I went  to new Rhuemy here in Florida, He dosen't think I have Pmr, and has cut me down from 4mg  2x a day of Medrol, to slowly come down 1mg....about 8 months till off.  He also sent me to Physical therapy 3x a week. Too help my VERY weak upper arms.  He thinks that my sed rate was not ever that high?  It was 32 at its highest.  I don't know the difference you use in Britain~   

 Then I went to allergist, who told me a plan to come off this medrol in 8 weeks!  so He can do allergy tests?

 Now I have to have the full Hystroctomy next tuesday. Done by the new Davinci robot.

Then I went to My gp/regular Doctor, who said you have to come off the steriods now, in order to have this surgery, they don't want me to have an infection/low immune system. He said just do 8,7,6,5 etc in a few weeks you'll be off them.

Do you beleive all this!  Anyway, does anyone know if its ok to have this surgery/ or any, while on steriods?  I am in last stage before cancer sets in, and need this done now.  Today I go see Gp again, will get New blood results fro Lupus, Lyme diseae, etc, they are testing me for everything.   I also Had x-rays of both shoulders, and will learn about them today too.

 also I have been on this new diet plan who promises to beat this auto immune disease.  Its called Auto immune Paleo Diet.  Has anyone ever heard of this?  They say PMR is all caused from eating incorrectly and I have a leaky gut!

  I am so confused about everything!  Worried too about surgery this tuesday the 28th.

 Im hoping Eileen and you all, can please try to answer all these questions.  I really do appricate it, Thank u all, and Bless your hearts~  Marie

 

 

3 likes, 20 replies

20 Replies

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  • marie_loui19398
    marie_loui19398

    Posted

    Hi All, Thanks for all the advice!  I have good news, all my blood work/ 12 tubes...show No Lupus, No lyme diease, etc. etc.  My sed rate was 7.  Last year its highest was 32, was not on medrol then.

     I've got the ok for surgery, no problem with medrol.

    My GP gave me  a shot in each shoulder of  cortizone, which makes my life back to normal. 

     Why can't they just do shots , instead of oral steriods/medrol etc.  I feel great today!

       Back to the Paleo AIP/ Plan.  I'm telling you I lost 6 lbs in a week! I'm not sure if its coming off medrol quickly or this diet.  But also, I felt terrible this morning after eating some grains dairy, etc. yesturday. I had heartburn last night and am so bloated this morning.  I really think this paleo diet is absloutly great for anyone with  an auto immmune disease as is PMR.  after following it for  30-60 days, u can add more items, because your diestive system/ which is 85% of your immune system is healing.  I am reading the books, The Paleo Approach/ reverse auto immune disease and Heal your body, by Sarah Ballantyne, PhD.

      I will read about M. Mosely thank you again for all your wonderful words,  Take care, Marie Louise

    • EileenH
      EileenH marie_loui19398

      Posted

      Because the steroid shots they use in shoulders can only be used a few times a year because they can weaken ligaments and the effect wears off after a short time. There are intramuscular steroid shots that can be used instead of oral pred but they also have side effects.

      I'm not going to get into a dispute about the diet and autoimmunity - but I will say that to say the digestive system is 85% of your immune system is being seriously simplistic. Just because it appears in a book doesn't make it true!

      Of course you are losing weight and you feel better - you have removed a whole load of junk from your diet. Removing carbs means you lose a lot of fluid quite quickly and eating them again after a period of abstinence will upset your stomach. I know if I have eaten more carbs than normal!

      But if you feel well and can manage to maintain the diet that is good. However, do be careful you don't become short of nutrients - it is quite difficult to get enough calcium for example without dairy and B12 without cereals. Be watchful.

    • Guest
      Guest marie_loui19398

      Posted

      Sometimes a new day of information is such a help. So glad you have several huge issues resolved. I just received a note from my rheumy ... Sed rate went from 95 to 21 in 5 weeks and heavy prednisone. My other blood work, kidneys liver was normal but blood sugar has to be repeated soon. Guess we are what we eat😁..just need leafy veggies, lean meat and no sweets, very light on carbs. I need to read more on the diets just mentioned...now up on the blankity blank treadmill!
  • charlie44644
    charlie44644 marie_loui19398

    Posted

    Many operations are performed on people taking steroids. Make sure that your surgeon and anesthetist know what medications you are taking and post op make sure that someone has ordered your prenisone until you are back under your own power and thought.

    Charlie 44644

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