So many question's???
Posted , 8 users are following.
Hi All, I have not been able to talk or listen alot lately~ Too many doctors appointments! lol Unfourtunetly its true!
I went to new Rhuemy here in Florida, He dosen't think I have Pmr, and has cut me down from 4mg 2x a day of Medrol, to slowly come down 1mg....about 8 months till off. He also sent me to Physical therapy 3x a week. Too help my VERY weak upper arms. He thinks that my sed rate was not ever that high? It was 32 at its highest. I don't know the difference you use in Britain~
Then I went to allergist, who told me a plan to come off this medrol in 8 weeks! so He can do allergy tests?
Now I have to have the full Hystroctomy next tuesday. Done by the new Davinci robot.
Then I went to My gp/regular Doctor, who said you have to come off the steriods now, in order to have this surgery, they don't want me to have an infection/low immune system. He said just do 8,7,6,5 etc in a few weeks you'll be off them.
Do you beleive all this! Anyway, does anyone know if its ok to have this surgery/ or any, while on steriods? I am in last stage before cancer sets in, and need this done now. Today I go see Gp again, will get New blood results fro Lupus, Lyme diseae, etc, they are testing me for everything. I also Had x-rays of both shoulders, and will learn about them today too.
also I have been on this new diet plan who promises to beat this auto immune disease. Its called Auto immune Paleo Diet. Has anyone ever heard of this? They say PMR is all caused from eating incorrectly and I have a leaky gut!
I am so confused about everything! Worried too about surgery this tuesday the 28th.
Im hoping Eileen and you all, can please try to answer all these questions. I really do appricate it, Thank u all, and Bless your hearts~ Marie
3 likes, 20 replies
marie_loui19398
Posted
I've got the ok for surgery, no problem with medrol.
My GP gave me a shot in each shoulder of cortizone, which makes my life back to normal.
Why can't they just do shots , instead of oral steriods/medrol etc. I feel great today!
Back to the Paleo AIP/ Plan. I'm telling you I lost 6 lbs in a week! I'm not sure if its coming off medrol quickly or this diet. But also, I felt terrible this morning after eating some grains dairy, etc. yesturday. I had heartburn last night and am so bloated this morning. I really think this paleo diet is absloutly great for anyone with an auto immmune disease as is PMR. after following it for 30-60 days, u can add more items, because your diestive system/ which is 85% of your immune system is healing. I am reading the books, The Paleo Approach/ reverse auto immune disease and Heal your body, by Sarah Ballantyne, PhD.
I will read about M. Mosely thank you again for all your wonderful words, Take care, Marie Louise
EileenH marie_loui19398
Posted
I'm not going to get into a dispute about the diet and autoimmunity - but I will say that to say the digestive system is 85% of your immune system is being seriously simplistic. Just because it appears in a book doesn't make it true!
Of course you are losing weight and you feel better - you have removed a whole load of junk from your diet. Removing carbs means you lose a lot of fluid quite quickly and eating them again after a period of abstinence will upset your stomach. I know if I have eaten more carbs than normal!
But if you feel well and can manage to maintain the diet that is good. However, do be careful you don't become short of nutrients - it is quite difficult to get enough calcium for example without dairy and B12 without cereals. Be watchful.
Guest marie_loui19398
Posted
charlie44644 marie_loui19398
Posted
Charlie 44644