So Many Symptoms. No one believe me. MS?
Posted , 12 users are following.
I have been suffering from many undiagnosed symptoms. Unfortunately, no one believes me. So, i created a running list with the hopes someone will help me.
Frequent bad headaches/dull, sometimes piercing, throbwbing
Blurred vision/trouble focusing. Seems to be getting worse in left eye
Body tightening/tense
Pain in left eye. Cluster heachache?
Muscle twitching in extremities and now face
Trouble holding/grabbing things
Tounge tingles, pins and needles, mouth/lips
Vertigo
Clumsiness/tripping
Dizziness
Running into things
Injuries/cuts without recollection
Confusion
Space out/stare out for what seems to be a long time and can't remember what I was looking at or doing
Isolating
Depression
Mood swings
thoughts of violence
Increased/decreased sexually
Cannot find things that I just had in my hand
Cant remember why I walked into a room
Social anxiety
Clothes inside out to work on several occasions
Crave and eat nothing but sweets most days. Appetite for nothing else
Putting things in odd places, phone in fridge or freezer
Getting lost in places I always go to and having to use GPS to get home
Feel like bugs crawling/falling on me/itching
Unexplained left ear pain, feels clogged all the time
Can feel/hear sinus moving when rolling over to opposite side
Chest flutters/skips beat
Periodic dry cough
Sweat/then cold chills
Cold fingers
Paranoia
Anger
Dry mouth
Lack of fluid intake/output .never thirsty
Chest tightness and occasional pain (not panic)
Feel heart beat in ear
Sometimes When I look at someone i feel like I'm looking down a tunnel of bright light that intensifies. then the persons voice gradually gets lower. I zone out then I can't hear or remember what they've said.
Cant focus on conversations
Repeating myself and stories like I've never told them before
Switching tasks without recollection
Can't remember words to songs that i use to recite
Having trouble remembering/forming words or sentences. Forgetting words all together
Memory impairment with job duties
Shaky, on the inside
Extremities fall asleep quickly
Loss of muscle mass/strength
Severe, severe, constipation
Stomach pain/cramping in upper left quadrant
Reoccuring bladder infections
Hands tight like rubber bands are pulling them closed.
Carpal tunnel feeling in right hand/arm (occasional)
Feet and hands tingle
Intermitten/Random pain/burning sensations on localized parts of the body. Sharp pricks like a splinter
Foot pain, arch/side of foot. Gait change
Food tastes strange at times
Hightened sense of smell
Spelling/writing issues
Forming words
Moments of not remembering what I was doing or saying.
Dry eyes. Burning then constantly have to blink
Left Face pain and sinus burning
Nausea
Increased appetite
Decreased appetite
Weight gain
Swollen painful breasts
0 likes, 9 replies
Treezie christina1424
Posted
Fotopet54 christina1424
Posted
I've had so many of the same symptoms for years, had no idea they were MS symptoms until a few years ago I hired a groomer to work for me and she had it. I was talking to hew one day about the fCt that the bottom of my right foot suddenly went numb and stayed that way, along with some other things....she said omg you have ms! I was shocked! Had heard of ms of course but had no idea what it was. She gave me a crash course and I went and saw a neurologist....he sent me for an MRI brain scan...results showed I have several lesions. BUT...he refused to officially diagnose me even though he said that he thought I have it. I know others that have had the same thing happen. Have had to wait for years and years and then literally couldn't walk before they were diagnosed. I have no idea why I'm the USA some doctors are like that!! I know a couple other people who had some numbness with no other symptoms and got diagnosed. I have relapsing/remitting and fortunately mi e has been very slow going. But I am now 62 and things are getting much worse. I have given up on doctors even listening g to me....had to get a new primary care doctor last year, told her about all of my symptoms and the MRI....she totally ignored me. I hope you have better luck in finding a doctor who knows you have it and will 'officially' diagnose you.
faye70665 christina1424
Posted
I too have all this going on but with one other thing.I
can be watching TV or talking with someone and this
little black thing comes down into my vision.Mostly in the right
Eye.It will just be there and suddenly gone.I can't get diagnosed
either.
ClassyChick christina1424
Posted
I can relate to this so much. My mum has MS it took ages for her to be diagnosed years in fact. Initially they said she had Fibromyalgia then numerous TIAs. She recognised a lot if her symptoms in me and asked me a couple of tears agon to go and be checked out but I tight she was over thinking. However last year after a very stressful time a lot if my symptoms which I often ignored suddenly seems to exacerbate. I was told by mum's MS nurse that although MS is not generic the fact I have had shingles and glandular fever could lead to MS therefore I consulted my gp he referred me to a neurologist I had an MRI which showed neurological changes to which he then referred me to another neurologist who requested an mri with contrast I get my results on the 6th February I have copied your list of symptoms and edited it to my symptoms to take with me. I feel like I'm making it up and going mad. Your list is Brill and a massive help. I wish you all the very best and hope you get sorted.
suzanne68414 christina1424
Edited
I know this is a very old post but would be interested to see if you ever got a diagnosis.
LexaRice christina1424
Posted
its very common to not be believed im going through the same thing
ms is caused by a variety of infections with a disciplined treatment program it is possible to put the symptoms in remission indefinitely look up pam bartha and thhe live disease free program
genevieve81764 christina1424
Edited
I have some (though not all) of these symptoms. I am not believed either.
My symptoms:
Severe fatigue, mood swings, anxiety, paresthesias, odd sensations with numbness and tingling, temporary loss of feeling on right side, difficulty grasping objects, weakness, headaches (migraine), IBS (diarrhea most days), overactive bladder, occasional nausea and blurred vision, brain fog and memory lapses, insomnia alternating with severe tiredness, increased appetite and sometimes decreased appetite, limbs feel heavy. But apparently this is all "clinical depression"
debbie84914 christina1424
Posted
I wrote a long answer elsewhere, but I would like to offer a possibility you probably haven't heard yet. Parkinson's Disease. I too had a multitude of symptoms and was undiagnosed for six years. Get a referral to a neurologist who SPECIALISES in Parkinson's... that's important. I saw two neuros who didn't pick it up, wasn't in their field of knowledge. Medication changed my life! Good luck.
sam6187 christina1424
Posted
I too have lots of these symptoms.. also no one believes me I have seen 4 neurologist a they want is my health insurance details then send me to another Dr ... sick of it all. have a look on YouTube for Arron Borster he is amazing on the MS subject