So many symptoms so little answers, please help!
Posted , 2 users are following.
This is going to be a long one so if anyone can get through it and offer some advice thankyou in advance!
In january 2018 i ended up having a migraine for around 5 days. With the migraine i also had light sensitivity and flashing lights, exaustion and weakness to the point where i couldnt even raise my arms. Finally the migraine went away and i thought it was over but the worst was yet to come. For around two months after this other things started to happen. i started getting numbness and pins and needles in my arms and legs, vibrating sensation in my spine, more weakness, more exhaustion, a twitchy eye, my sciatica worsend (which i was alredy diagnosed of, i struggled to walk in a straight line and blurred vision in one eye. i also couldnt seem to speak properly, i was stuttering a lot! (i dont think i had ever stuttered in my life before this!).
anyway i was referred to a neurologist as the doctor suspected it may be MS. the neurologist sent me for a brain scan which i didnt get till months after the symptoms stopped. it came back fine. anyway i was still having some symptoms through the time since then such as the twitchy eye, vibrating sensation in spine, pins and needles and migraines... ive also had allot of pains in my wrist. so my neurologist reffered me for some tests and i do have carpel tunnel but it isnt bad enough (at the moment) for him to concider doing anything about it. i have also recently been diagnosed with Trigeminal Neuralgia which is the worst most painful thing imaginable!
anyway on the 3rd of this month i had another migraine and it didnt go away till the 17th! after 14 days of going through a constant migraine it finally went away... then monday night i was hit with the worst migraine ive ever had! i was having flashing lights, sensitivity to lights, hurt when i closed my eyes, hurt when i opened my eyes, shaking, weakness, sickness, exhaustion. it lasted around 4-5 hours this time. It was exactly the feeling i had when it all started back in 2018. And sure enough ive been having pins and needles in my fingers and leg, exhaustion, stuttering again, worsened sciatica and worst of all i still feel extremely sick from the migraine i had on monday!
i just need someone to help! i dont feel like any of my doctors are doing anything and im starting to feel soo alone with this!
0 likes, 2 replies
bamagal08 jade60046
Posted
Dear Jade, You have to be your own advocate. I'm sure you know that MS is a tough disease to diagnose. Their are a lot of doctors who will have their on opinion on how MS should look. I can tell you that from my own experience. The newest Neurologist I saw a year ago decided I looked to good to have it! I was diagnosed in 2007 and I moved had to get a new neurologist. So , I looked at him and said wow, why would I have been put on medication an had infusions all those years? So anyway I got a new MRI , he said it looked fine!! I said really! Well as he was sitting there going through my scans he got way down in it and lo and behold a huge white mass deep in the brain. The radiologist missed it! So what I am saying is go to a new neurologist and don't let them make you feel crazy. Demand they to take you serious. Educate yourself! Go in with facts and a list of symptoms where and what. Don't take no for an answer.
Good luck and don't give up!!
bamagal08 jade60046
Posted
Dear Jade, You have to be your own advocate. I'm sure you know that MS is a tough disease to diagnose. Their are a lot of doctors who will have their on opinion on how MS should look. I can tell you that from my own experience. The newest Neurologist I saw a year ago decided I looked to good to have it! I was diagnosed in 2007 and I moved had to get a new neurologist. So , I looked at him and said wow, why would I have been put on medication an had infusions all those years? So anyway I got a new MRI , he said it looked fine!! I said really! Well as he was sitting there going through my scans he got way down in it and lo and behold a huge white mass deep in the brain. The radiologist missed it! So what I am saying is go to a new neurologist and don't let them make you feel crazy. Demand they to take you serious. Educate yourself! Go in with facts and a list of symptoms where and what. Don't take no for an answer.
Good luck and don't give up!!