So scared I might have cancer, ultrasound showed thickening of the lining of the womb,

Hi Fab? I am a touch confused so I would like to state how I see your post. You are 53, not in menopause. You are having a hysterectomy AND a D&C. WHY?

If you are not in menopause a thickened uterine lining is normal. That is what happens every month. After a period the lining is narrow again.

Please clear up for me.

I was having unusual uterine bleeding straight for almost 5 months, ,I thought it was menopause, since no older females in my family who I couls ask..My Mom passed away in 1994 from Cancer,,my oldest Sister lost her breast at 39 yrs. Old and her full hysterectomy at age 41.I was told by Drs. To go to the ER for labs for blood count,which was low 30's,and put on iron supplement in Oct. Was given and external and internal ultrasound where my uterine lining was to thick at 13 mm.and at my age should be at 4 mm.booked an appointment by Hosp. DR. For the next day with a Gynecologist. .who was concerned with the thickness as well,since I have never skipped a menstrual cycle,,but ran one month directly into another,and another. Biopsies done in office,,came back negative, ,wanted me to have a IUD done with progesterone to counteract the high levels of estrogen found by my labs....My younger Sister had her Breast and 3 lymph nodes removed in November. .her onocologist wanted to have all of us other 4 sisters genetically tested ,since that sister had a unidentifiable cancer gene..I was advised under no circumstances to allow any extra hormones by having an IUD,with family history dangerous. .I continued to bleed ,and was ordered a sonohystergram, which could not be performed due to heavy bleeding,,2 Drs. Consulting advised biopsies done in OR during the hystercospy and D&C. .started bleeding 1 day after D&C, and was advised my recent ultrasound done showed more thickning and abnormalities on the endometrial lining,,very suspicious, ,so now I wait for Pathology. .hope this makes more sense.....if Not any advice would be appreciated.

Thanks.

Fab five

Shazanne,

So sorry that you feel so afraid and alone during this scary situation ,I am currently awaiting my scheduling for a hysterectomy, ,my biopsies came back showing I have hyperdysplasia in the simple form,,and I refuse any other hormones either orally or by slow releasing in a iud. My Dr. And her partners understand FINALLY, why I am pushing the hysterectomy now..I am scheduled to have my genetic test in Feb. And am working with a great Dr.in preparation for having both my breast removed and undergoing reconstructive surgery,,since I have calcification showing up in my images there also...I feel I am a time bomb just waiting to go off..you have to advocate for yourself, because the fear of going through this again is unfair. .if you are sure you want a hysterectomy, ,fight for it,,I feel the Insurance companies try to make a decision for us,,because of cost vs. necessity. .Good luck,and I will keep you in my prayers..

Hi kymmarie. I have my biopsy on Monday next and I will share my results with you when I get them. While there may not be any positive outcomes on this particular thread I have read them on other threads and it appears that the majority of people so not have a bad biopsy result. In most cases it turns out to be a hormomal issue that is either rectified by adjusting the dose of HRT or going on HRT.

So please don't worry. The word 'biopsy' terrifies all of us, but many people don't realise that biopsies are looking for any abnormalities and not just solely cancer. There are other reasons that can cause thickening of the lining of the uterus and your doctor should explain that to you. Mine didn't explain anything to me so I started asking questions and getting opinions and it took a great deal of the fear away. Yes, I am still concerned that I have to have this biopsy - but I'm trying to stay positive and, if I can, I will help you to do the same.

The moment I get my results I will share them with you and we'll get through this together. Big hug to you (((  )))

Hi Kim,

So over the course of three months (October - early January) I had light abdominal cramping. As well, my pelvic exam caused discomfort and was described as enlarged.

I had TWO transvaginal ultrasounds, both revealing a thickened uterine lining, at roughly 11 mm.

*****Editing in to say...I had both ovaries and Fallopian tubes removed, due to cysts, at 23 years old. I am now 47 years old and have not had a menstrual cycle since I was 23 years old. As well, over the last 14 years I have not taken ANY hormone replacements*****

It was decided that I have a D&C, which I had two weeks ago and just received my pathology report last Wednesday. I DO NOT have cancer. I do not have pre-cancer cells. I had a polyp, approximately the size of a dime. My uterus looks great and is healthy, leaving me no additional surgeries or care.

It ended up that my entire uterus was not thickened, just one area and this is where the found the polyp.

I understand how worrisome this is!!! It is difficult to sit and wait. Just know that this could be dozens of different things. If I trusted WebMD, I never would have woke up from my D&C...sigh. I am such a worrier!

Please keep us posted.

Oh Barbara, thank you so much for your quick reply I know I didn't give a lot of information here but I think I remember back in my 20s I was told I had precancerous cells but no cancer! Which is a great thing by Dr. didn't say anything about that this time just said everything looked good but there was thickening in the lining of the uterus and they wanted me to go to a gynecologist. I found this site and here I go . I am happy to hear that you do not have cancer that is awesome but you went through a lot! I'm 53 years old and have never had any children. So maybe I'm premenopausal I don't know yet but they're gonna call me tomorrow with an appointment ... I was just reading everybody's entries here and everybody is telling what they had but I'm not seeing anybody coming back and say what the results were but I appreciate your time thank you so much again and I will keep you posted I promise I'll keep everybody posted what happens good bad or ugly. Thank you !

Thank you so much Shazanne for your quick response! Every little bit helps and I do appreciate it more than you know you ladies are taking the time to encourage me and help me not be so afraid and I promise I will get my results back to like I said in my comment before to Barbara good bad or ugly! This is very nice of complete strangers to get back with me and make me feel comfortable her a little bit at ease thank you again!

I have updated where I am currently with my results as of coming back 10 LONG days after biopsies were done...I was diagnosed with hyperdysplasia and in the simple vs. A typical type,,but since cancer is very prominent in my family,,we are going with a soon to be scheduled hysterectomy. ..Good luck with your current situation, and get more than one opinion,,advocate for yourself, and educate yourself as well.U am sorry it took me do long to get back on,and post where I am as of hystercospy was done.

Hello Fab Five... thank you for taking the time to get with me I appreciate it very much and I'm happy that you were going to be having that hysterectomy I think you're making the right move and to advocate for ourselves is also very smart . my appointment is not until February soonest they could get me in as a new patient. I will keep you posted thank you again for responding to me you have a great day thank you

Hi Kim! All of a sudden there seems to be a rash of posts guess I need to check more often.

As to your question about the biopsy - it is my understanding that several locations are sampled. Did they hit the right ones? Who knows. My biopsy showed no irregularities but, the unusual bleeding still happens. 

Have you had an internal/external ultrasound? Again IMO much more beneficial and loads more comfortable. 

I have a consult meet with my gyn on 2/27. We will be discussing a date for hysterectomy. D & C was offered but I don't want to go through all this worry for the rest of my life.  I will probably have to fight the insurance company to get it approved but, since my Mom and maternal grand both had uterine cancer I think I have a good case.

Are you in menopause? Age?

Try not to torque yourself up too much. Ha I know it's harder than people think. I wish I could just go to sleep and wake up and it is all over. This waiting is what eats me up.

My best to you.

You are so right Sherrie - the waiting is so tough. I have my biopsy on Monday - no idea how long I have to wait for results.

I agree 100% with your decision to skip a D&C and go straight for hysterectomy. That is my plan too if there is a problem found. In fact, if its a case that there is nothing sinister found but I will have to put up with random bleeding in the future that will result in going through all this again, then I will be pleading for a hysterectomy anyway. At 55 I have no use for this body part any more so its better off gone in my opinion if its causing problems.

Hi kim.i do have thicking of the uterus went to ultrasound a week ago and they want me to get a biopsy check for cancer.im only 52 yrs old .hadn't had a period for 9 months.but did spot few weeks ago that why I went to see Dr to make sure I'm ok I am scared. I have my appointment in 2 weeks it's so far out.ill let u know what they say.

Hi Barbara!

I am having my 2nd d&c soon due to thickening of the uterine lining . Was the removal of your ovaries painful? Am considering that due to history of breast cancer .

Well, not to sound like a doctor but...you're removing organs so there is discomfort.

They performed my surgery through a laparoscopic procedure but, understand that they can now go through the vagina to do this...less invasive and quicker recovery maybe?

I was down (in bed) for about a week and off work for about 6 weeks. Again, discomfort but, nothing some good pain medicine couldn't take care of.

I was always happy they were removed for fear of ovarian cancer. I would do it again today!

Hello Shelly and thank you for your response sorry it took me so long to get back to you just want to let you know that I went for my procedure for the biopsy I got myself all worked up for nothing! The worst thing you can do is watch a YouTube video listen all the horror stories when everybody is saying really, it wasn't bad at all I took 800 mg of ibuprofen for every eight hours for 24 hours prior to the procedure the whole thing lasted like two minutes honest to God! Don't be afraid just make sure you take your ibuprofen before hand. I get my results back next Thursday I will share with everybody but I want everybody to be calm and don't get yourself all worked up because it really is nothing. The only reason it's going to hurt is if you don't take your ibuprofen you don't need to be passed out to do this.

Hi shahzanne

I am new to this forum and read a few posts.

All seemed well till a week ago and I suddenly found blood in my urine which freaked me.

Eversince there has been vista's to docs and tests, my gynaec used the word biopsy and I haven't slept since then. My uterus lining is 6mm.

Haven't had a period for over 2 years. No pain nothing.

I am going into the hospital on wed for a d&c and a hysteroscopy, a camera inside to check the uterus.

Wish me luck guys and will update you all.

Thanks. Your posts have been reassuring

Happy at your news god blessed you amen 🙏🏻