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I'm 61, male, and inherited the family tendency to Graves' disease which was diagnosed in 1999, though I suspect I had had flare ups previously. I was energetic, successful and outgoing, and controlled occasional problems since diagnosis with Carbimazole. Life was not too bad. Now, following radioiodine treatment in 2011, I can hardly get out of bed and life is a struggle.
My symptoms reached a new level of severity and I agreed to treatment with radioiodine in 2011. It appeared not to have worked and I was left to myself over the summer, when it unexpectedly kicked and in eventually did its job , but I became severely hypothyroid in the absence of adequate monitoring. I eventually started thyroxine replacement and my thyroid hormone levels became normal within a few months, though I was left with a 15kg weight and symptoms of fatigue, poor memory, etc which persist. My thyroid hormone levels suggest I should be in good health, but I still feel dreadful; lacking energy, poor concentration and slower thinking and speech. I have no other health problems that I am aware of and have a regular annual medical to keep on top of things. My doctors are no good at all and just put my symptoms down to age, which is curious as my 83 year year old mother had her thyroid removed surgically in 1975 and has taken thyroxine ever since. She is full of beans.
Any advice as to supplements or foods that might help me get back to good health would be appreciated. I eat like a sparrow and avoid bread, flour, rice, potatoes, sugar, salt, preserved meats, soft drinks, dairy products, alcohol, cakes, biscuits and puddings yet I still look like the Michelin Man. My lifestyle is moderately active, though I am able to do much less now because of fatigue. Sleep etc is quite good. I take 200 mcg of Eltroxin daily and supplement that with another 100 mcg 3 times a week which is what I need to keep my levels normal. Has anyone tried natural dehydrated thyroid hormones?
It seems that the radioiodine treatment is the important variable between my mother's reaction to replacement thyroxine and my own. Any ideas about that?
The information available online seems to be mostly for people with 'natural' hypothyroidism who want to rev up their thyroid function, which is intact if a bit sluggish. Any idea about good sources of information for people whose thyroid function has been chemically terminated?
I would never recommend radioiodine treatment to anyone. I have not had a day of wellness since treatement and might have given up if I did not have a loving and supportive partner. I was better off with Graves' disease.
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