Social Security/Long Term Disability and Chiari

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Has anyone lost their job or had to resign from their job due to the symptoms of their Chiari, AND applied and qualified for short term or long term disability benefits? 

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  • Posted

    Yes I have but wish so badly I could go back to work because disability income is NOTHING compared to what I Use to bring home. I'm a single mother and literally struggle every single month from one check to the next. Its very upsetting and people who don't understand our condition along with my MANY MANY other conditions just think I'm lazy and don't wanna work. I've had 2 CM repair surgeries and it's progressed rapidly down to C6/C7 symptoms have gone beyond explanation and worse than ever b4 but nothing can be done for me because no one will attempt a 3rd surgery NIT that I would wanna go through that again. Good luck

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  • Posted

    By the way mine is long term. Even though I get reevaluated every 3 years.
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    • Posted

      I am dreading the idea of the possibility of not working...my wife and I just had our first born baby 6 weeks  ago. She has undergone 2 major neck surgeries over the last 3 years (everything seems good with her neck now), she has had lower back issues so her lower back is fragile. I was the healthy one! Now over the past 2 or so years I’ve slowly diminished to being the sick one. I thought I had a TMJ issue all along because I never heard of Chiari until a few months when I had an MRI done.  I just had the surgery May 8th (which is less than a month ago) with dural patch (my own tissue), and I feel pretty crappy still. Neck is stiff and feels like I was head banging at a rock concert all nite long, back of skull is still numb from the incision, brain fog and concentration abilities are still weak, fatigue when talking with front of neck soreness and facial soreness/fatigue the more I talk, heavy head feeling....

      I am a high school teacher of 8 years and a coach making close to 90k with full health insurance coverage for my wife and kid...I got two months to get better than I gotta go back to work...fml

      If I had to go on disability we’d be in a serious financial problem for sure...it would be selling the house that we just moved in 2 and half years ago, and any other assets we have to pay off other debts we got when we moved in.

      This is a rough situation to be in for sure, constant worrying...

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  • Posted

    Hello, I would suggest you look and see if you have short term disability through your work. I ended up after have my neck, then 3 weeks later my back, then my paralyzed vocal cord, thank goodness I had that, which I fought for, then I had purchased long term dis. After 4 more mos I was awarded it. However it took me 3 yrs to be approved through my state. It was a huge shock, I lost approx $60/70k income. Big adjustment, but I can only do what I can. I wanted to let you know I finally saw my chiari on my cd, got my pain dr to write my referral and I will be calling Monday am for an appt. best wishes!! If you have any ?’s feel free to p/m me with any ?’s! 
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