Posted , 8 users are following.
Hi i have balance disorder and vertigo. No body understands . I dont k ow how to make people my friends and relatives believe me. Everytime i have hear some bitter remarks. Does anyone hear face the same ? Its very difficult to make everyone understand our problem
1 like, 25 replies
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Elise93 Soni9
Posted
Hi Soni!
I'm so sorry to hear that.
socializing is a horrible problem for me as well! It's so difficult to talk to people. I'm blessed enough to have an understanding mom, boyfriend, and twin sister. I talk to them all the time about how I feel. I'm sorry you can't talk to someone! I highly suggest seeing a counselor just to talk and discuss your condition! I'm seeing a counselor soon. You can dm me if you ever need to talk!
Elise
Soni9 Elise93
Posted
Thankyou . Fortunately my husbad and son are very understanding and helpful. 🌝
Waffalobill Soni9
Posted
I have problems looking at ppl when I speak to them when it's real bad. Makes me real dizzy. Have to tell doc Everytime so they don't think I am not making eye contact trying to hide something. Talking on the phone can even be bad.
Soni9 Waffalobill
Posted
Waffalobill Soni9
Posted
Been dealing with it over ten years. Just got worse to the point it won't stop.
Elise93 Soni9
Posted
Yea it's mostly when it's so much talking and sensory overload my systems just shut down! I'm glad you have an ubderstanding family. It makes everything a lot better!
elaine91835 Soni9
Posted
Yes it is because they don't know how we feel and how we can't live our life's because we are afraid of the dizzy spells my work does not understand some days I have to leave early they all stare at me like I'm lying so I try to fight through it not pass out then try to drive home I'm miserable no one will find the problem
oxalic16986 Soni9
Posted
Soni9 oxalic16986
Posted
Sukey421 oxalic16986
Posted
So true, I gave up trying to explain my condition to family and friends because they just can't understand.
And I myself still can't totally understand. 😞
Waffalobill Sukey421
Posted
My problem is I spent my savings, retirement, everything trying to find out what was going on. After suffering for years and struggling to pay bills I found out it runs in my dad's side of the family. Noone ever told anyone about it. I was mad to say the least.
Elise93 Waffalobill
Posted
That's terrible I'm so sorry!
what is it that you're diagnosed with or that runs in your family?
Waffalobill Elise93
Posted
Waffalobill Elise93
Posted
Was told 11 years ago I had bppv. But it may be menieres. Am losing vestibular response in my left ear. Have a 3 hour drive coming up Friday to a specialist up north. vertigo won't stop and dizzy all the time. Been unable to work or drive since August.
Waffalobill Elise93
Posted
Was told a couple months ago my grandmother, dad, and a couple cousins gave it and it's menieres
Elise93 Waffalobill
Posted
Oh gosh thats horrible
I know that BPPV can be treated with the roles maneuver multiple times, but I've researched meneires and know how hard it is to treat and deal with. Good luck with your appointment, i hope you find answers!!!!!
Waffalobill Elise93
Posted
Been to therapy many times. Done all kinds of meneuvers. Excersizes don't seem to work anymore either.
oxalic16986 Sukey421
Posted
I think people around me think I'm faking it.
Soni9 oxalic16986
Posted
Waffalobill Soni9
Posted
I said it before. I wish everyone would get it once a year. Just so they know what it's like. But they can't pick when they get it. Same as us. It will hit them randomly. No warning. Live with that for a while. Not knowing when it will hit. How bad it will be. Where you will be when it hits. My brother got a taste a couple years ago when he got a bad ear infection. He called me up just about in tears wanting to know how I live with it all the time. Told him if I had a choice I would choose to not have it. Lol. This last bout cost me my job. 28 years down the drain.
Soni9 Waffalobill
Posted
Sukey421 Waffalobill
Posted
That's awful, I'm sooo sorry 😞