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Some aches and pains

Posted , 7 users are following.

anne28129
anne28129

I’m down to 7mg of pred but having quite a lot of leg pain and neck pain! 

I take my pred at bedtime as I found if I took it in a morning I felt dizzy and out of sorts all day!

I’m due for blood tests on tomorrow so hopefully they’ll be ok.

0 likes, 5 replies

5 Replies

  • lynda62707
    lynda62707 anne28129

    Posted

    Hi anne, Lynda here...you mentioned you're down to 7mgs. Down from how much? And, were u doing alright at your previous dosage? If yes, maybe you tapered down too quickly. I know, cuz I've been there, done that! I'm glad 2 hear you're seeing your doc. today as hopefully that'll give u some answers. Keep us posted. Good "vibes" 2 you!!

    • lynda62707
      lynda62707

      Posted

      Ps....I used 2 take my prednisone in divided portions throughout the day for much the same reasons as you, (dizziness, etc.), but I now take it all in the am (as the mornings are pretty brutal),.and it took a bit of time but now I've found my body has adjusted and there's no more dizziness. Sometimes it just takes a bit of time to let things settle!

    • anne28129
      anne28129 lynda62707

      Posted

      Hi, I was diagnosed last November with PMR and GCA and put on 40mg. If come down to 7mg over 8 months! I did get down to 6 but them the rheumatologist suggested going back to 7 for 3 months
    • lynda62707
      lynda62707 anne28129

      Posted

      Wow....that seems like a pretty quick taper 2 me, ( but to be clear, I'm NOT an expert!) I started at 15mg. about 2 1/2 mon. ago after being dx w/pmr. I was SO anxious 2 get off prednisone asap, that I (along w/my doc), tapered Way to quickly. The upshot 2 all that is now I've had 2 start back at square 1, and I'm on 16.5mg!! So I really blew that one Big Time! Anyway, as I said, maybe your bloodwork will give u some answers as to where 2 go from here! My thoughts are w/you. Please keep me posted.

  • EileenH
    EileenH anne28129

    Posted

    If you have PMR-type symptoms  it doesn't matter what the blood tests say - it is probably a flare and you have reduced a bit too far for the moment. 

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