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Hello everyone, I've decided to post on the forum because I'm a little bit unsure of what steps to take next. Since January this year I have been experiencing some unsettling symptoms.
- sudden weakness in the arms and legs
- sudden blurring of the vision in my left eye
- severe joint pain, most prominently in my right knee and wrist
- memory lapses (whole periods where I have no recollection of where I've been lasting over 30 minutes) and inability to remember information, appointments, meetings etc.
- headaches and left eye pain
- difficultly with changing lights (from darkness to brightness and with flashing/bright lights)
- poor balance and occasional falls from my legs going weak
My GP has been wonderful and referred me firstly to a gastroenterologist (as I have suffered from digestive issues and lower left side pain for four years now) thinking it may be a nutrition problem causing the weakness. When my symptoms became worse she then referred me to a neurologist and I was seen very quickly as my GP felt it was urgent.
I visited the neurologist at the start of the week. She did not think I needed any tests, or scans and didn't take a blood sample. She simply advised me to wait and see whether the symptoms 'settle down' and if they don't, go back to my GP. She also advised me that she didn't think there was a neurological problem and would have preferred me to see an endocrinologist but she didn't feel the need to refer me on to an endocrinologist as I have previously seen such a doctor with severe sweating and he felt everything was normal with my hormones.
I am B12 deficient and have injections every 3 months. I also take iron supplements as my blood count is persistently low. The neurologist did not enquire about either of these, she just took a note of the medication.
I am slightly unsure what I am supposed to do whilst 'waiting for it to settle down' as the weakness often strikes my right hand making me unable to write (which is necessary for my work as a PhD student). My vision and memory problems can also be quite debilitating. For example, my GP advised me not to drive, yet the neurologist says I can (even though I am not taking anything to stop my vision problems occurring).
My partner was very unhappy that the neurologist did not explain things more clearly to me and has not done any tests or scans and feels I should return to my GP and enquire further. In my consultation with the neurologist I felt unable to challenge her - she said until my supervisor complained about my work then the symptoms were not affecting my work. She also said I was taken to A&E with a 'migraine' last year when I fact I was re-admitted two days following that visit and told I had viral meningitis and should never have been allowed home. I don't know whether I should visit my GP again or just try and deal with the symptoms as the neurologist told me.
I am a 24 female who cycles regularly and other than my digestive/lower left side pain (which has caused me to be admitted to hospital and visit A&E over the four years) I am quite fit and healthy.
Any advice would be greatly appreciated.
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