Some advice please

Posted , 4 users are following.

Hi, hoping for some advice what I shall I do.

I have basically accepted death even thoe I have no diagnoses. I am 26 years of age and now finding it physically difficult to do basic tasks even in the house.

I have a severe undetected condition with my heart and the doctors have now have put me down to overthinking my symptoms and not taking me serious enough because the first doctor had wrote that it has now become a chain. When i explain my symptoms they completely now disregard what i am saying like im crazy and dont know my body.

I went to the ER had a ECG sent home. Went to GP "overthinking" your symptoms your fine. So I

I paid privately for a ECHOCARDIOGRAM which took about 5 minutes was rushed report was normal. learning later a ECHO should not be that quick.

I am declining severly and tbh i dont know how i am still standing.

Blood pressure and hr all normal at this time, was a smoker for 10 years started pretty young. Quit 4 years ago as had hypertension. so changed my diet got healthy and reduced my blood pressure naturally.

Its not stress its not anxiety its not in my head, and now i have no energy left to even bother to go to the doctors or a&e again because i just feel like i have to convince them to believe me which is sad.

Symptoms started with general weakness about 2 months ago, then gradually got worse and worse. Symptoms now

chest pain

arms and head feel floppy almost like they are struggling to get blood, ive not had a stroke or anything i dont think. its more of a circulation problem as i can feel the blood actually struggling to go down the arms 24/7 and sometimes feel like the arms are dead and head droopy.

dizziness loss of balance

my heart can be a regular a normal rate but a very strong beat almost like it struggling.

breathless doing anything

waking up gasping for air, think it is sleep apnea

Im losing my balance and have passed out so now i just sit most of the time as my heart just cant cope

My thoughts are i could possibly have heart disease as i did neglect my body for a long period of time, smoking, obese, bad food etc.

Doctors not taking me serious, dont want to go back to ER or GP as i just have not got the physical strength and also have to convince them something is wrong and get sent home after. am truly wasting away, lost alot of weight also about my shoulders and down my arms.

there is 100% a problem with the heart as i was active guy going out doing things non stop, now suddenly this.

Truly believe it could be heart disease and severe narrowed arterie or something, lack of blood getting to my heart. I dont know what to do have given up and just accepted the fact i am going to die and have already written letters to beleive behind. that is how bad my symptoms are right now.

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8 Replies

  • Posted

    Probably the only thing that would convince you would be an angiogram showing that your arteries are wide open and clear and that is a drastic choice although there is now a CT version. I have three times has stress ECG's that were shown to be false positives when I had an angiogram

    With your echo cardiogram it only takes longer when they see some thing that needs a closer look at. Mine normally take about twenty minutes but I have a lot to be checked,

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    • Posted

      Thanks for your reply, I was actually just looking up about getting a CT angiogram. I called in to try and book in privately however they said they need a refferal from GP. I dont think my GP would give me the referral as of course on my medical files i am fine and overthinking. Not sure what to do

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    • Posted

      Sadly for you I agree with your doctor on his daignosis . I know that it is difficult to accept but stress is the cause of so many symptoms and it is extremely difficult to accept. I doubt if pills will be the answer as they create their own problems.

      Do you have someone who you can initially start taking short walks with to give you some health confidence ? Or even start cleaning the house that is good exercise. No one can really help you apart from yourself.

      Good wishes

      Derek76.

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    • Posted

      Lol, that's just what i need. I really am going crazy seems like im in a dream. No one is listening or believes me even online lol

      If anything im the most laid back person in the world.

      Cant do no exercise at all due my symptoms. But thanks anyway for your first reply, I will hopefully try and get a CT angiogram done somehow.

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    • Posted

      Another thought is to see a hypnotherapist who would not need a referral.

      Presumably all of this did not start at once but had a gradual build up. He could presumably take you back to when the first sign showed and take it through its stages.

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    • Posted

      Explain to your GP that it gives you an answer one way or another but what would you do if was completely clear ? Overall it may be the cheapest answer.

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  • Posted

    The CT angiogram seems like a good idea. Or better yet, maybe you should get a second opinion from a superior cardiologist. But seriously, you might want to spend your money and time on a visit to a psychiatrist to get their opinion if you have anything more than anxiety causing your disability. My best wishes to you.

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  • Posted

    Have you had any blood tests? If not get a full set of bloods, get your vitamin and mineral levels tested and get a d-dimer blood test. Your heart can be affected by other illnesses as well so it maybe a good idea to see if you are deficient in anything as it could be an indicator to what may be wrong.

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