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I'm hoping this is the most appropriate forum for this. I'm looking for any advice people may have.
I'm 37 and I have had a long history of digestive issues, from the age of 11 (diagnosed with IBS) but managed to mostly resolve this through drastic lifestyle changes about 10 years ago. I still had occasional problems but usually put it down to lapses in my eating. I've always been healthy weight, exercised regularly (weight lifting was my main hoby), don't smoke, very infrequent alcohol use and have built up a good knowledge about nutrition (I'm the collegue who is eating quinnoa and avocado on pizza day!). But around 2 years ago I started having a whole list of health problems. My stomach started 'acting up' which was extreme bloating where I went from a flat stomach to looking like I was 7 months pregnant, with all the swelling from my belly button down, coupled with lower back pain, constipation/diarrhea, fatigue, a rash on my face and just generally feeling awful. I also have progressively had a feeling of pressure/inflamation in my pelvis which can get extremely painful. I get unbareble pain when ovulating but my periods have become lighter and don't cause much pain. My last smear test which was about 8 months ago was extremely painful.
I dismissed my 'stomach' issues as a flare up of IBS but went to the doctor with my face rash, they diagnosed as impitigo at first and put me on several courses of anti biotics and as that didn't help, they started treatment for a herpes type infection but that also didn't help. I continued experiencing fatigue but thought this was because of the medication. Over a year ago my fatigue got extreme, I couldn't work, had awful brain fog and a doctor suggested coeliac disease so I spent a year waiting and undergoing testing for that (bloods and endoscopy), which all came back negative. I was discharged from gastro with a diagnisis of IBS and felt I came to a dead end with my doctor so I started seeing a nutritionist in October and followed a very restrictive gut healing diet (autoimmune protocol but with low SIBO and FODMAPS) but my symptoms got worse. As it was not resolving, the nutritionist suggested further tests so I went to a doctor I hadn't seen before to request tests for for heliobactor pliori, SIBO and EBV, while there, the doctor asked to examine my abdomen and then suggested I get an ultrasound. She also added on other blood tests to the ones I'd requested but didn't mention this to me. The tests I requested all came back negative but the ultrasound showed that I have a 'bulky retroverted uterus' and 2 fibroids, a 5.1cm arising from posterior uterine wall and 2.6cm from uterine fundus. The other bloods she tested for were CA125 which came back as elevated (75). I was told this is a marker for ovarian cancer but as it wasn't extremely high, she said to run it again a month later. My lymphocyte levels have also been gradually falling and were slightly low. This was on 22nd Dec so I'm sure you can imagine me having a nice relaxed christmas!! The test was done again last week and the resutls are that it's risen again to 120 so I've now been referred urgently to gynocology.
My fatigue is awful. I can't work and my daily activity is now 5 mins of stretching and a 15 minute walk, some days I can't even manage this. I'm exhausted from just going to the toilet. I have a constant feeling of pressure in my pelvic area and a constant feeling of constipation, even if I have emptied my bowels. I have pain and swelling under my arms and neck. Pain in hips and a strange choking feeling in my throat. I'm naturally terrified that I have ovarian cancer, particualry as this has all been going on about 2 years.
What I want to know is, can all my problems be explained by having fibroids? As I understand it, mine are not very big so I'm wondering if they can explain my symptoms, patricualrly my fatigue as my periods are not heavy at all.
Sorry if this is very long and all over the place. I've tried to sumarise as much as possible and my brain is like mush!
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