1. Community
  2. Gut, bowel and stomach
  3. Crohn's Disease

Some answers needed please!!

Posted , 5 users are following.

SaiA
SaiA

Hi All,

So I am new to these forums and I'm not sure how to start. Anyhow let me try. I am female 28 years old, do not smoke or drink alcohol. Admittedly I have never had the best diets. It started a few years ago and I recall starting to take some vitamin tablets. I found one night that I had severe back pain that came around to my abdomen... It stayed all night until the early hours where I could finally sleep. I stopped taking the vitamins thinking they were the cause. Since then every other month this pain came about and it would usually last for a couple of nights and would then go away. I went to the GP and as expected they said it was IBS. I didn't dwell on it too much as the pain was not frequent and I felt as though not eating helped the pain somehow. This year February I had two incidents of diarrhoea and vomiting with severe stomach pain. GP did tests and found I had h pylori. I was given the triple therapy medication for this which knocked me out. I was in bed and constantly needing to go to the toilet. The GP advised that I finish the treatment. Since February I have not been right. I have persistent cramps and there is no rhyme or reason for this. It has taken over my life, I have lost over a stone in weight and again went back to the GP and demanded to know what was going on. GP continued to think it was IBS but it was the locum Doctor who thought I might possibly have IBD. I gave another stool sample which came back positive for inflammatory bowel disease. To some extent I was relieved to know the cause of the pain and I still don't think this news has sank in yet. GP seemed to think I have UC and has referred me to the specialist. I am not seeing the specialist until the end of June 2015. Subsequently I went to the emergency doctor because the back pain returned more severe and he seemed to think I have crohns. I continue to get cramps every day and I don't mean to sound ungrateful because I know it could be worse but I am utterly fed up. I stay in bed most days because I don't have the energy or the appetite. Sometimes the eating helps and at others it triggers it. I go to the toilet once or twice a day and there is no blood in my stools. Main issue is the stomach cramping... I asked if they could somehow quicken the referral and their response was no. I genuinely feel as though I cannot wait until the end of next month just to be seen by the specialist as I presume after this he will do a colonoscopy. I have enquired about going private but the cost is too much. I am currently off work and just feel overwhelmed by all of this. And they have prescribed me buscopen which doesn't help whatsoever.

Any help and advise would really be welcome :-)

Apologies for the life story

Saima

0 likes, 19 replies

19 Replies

Prev
  • Joyalb
    Joyalb SaiA

    Posted

    I just forgot to say that my pain is the inflammation and was told could cause a stricture sounds like your pain is similar, the waste cannot get through
  • SaiA
    SaiA

    Posted

    Hi All, just wanted to give you an update. Despite going to the GP, nothing was happening and they just wanted me to wait until next month until I saw the specialist. One of the doctors recommended that I take codeine 4 times a day for the pain. I tried this and became even more ill with it. Anyway I paid to see a private consultant (rang BUPA on Monday and saw the consultant on Wednesday). He was a good consultant and I felt as though he was empathetic towards what I am going through. Anyway as expected he said that I needed a colonoscopy and ct scan to determine what is going on. He gave me the option of doing this privately. I explained that I couldn't really afford to go private and bless he explained that he works for the NHS and will request the tests through NHS as soon as possible. He also said that I should not take codeine as it can cause other problems. After seeing him I got a call to ask if I could attend for a colonoscopy for this Sunday. Of course I agreed to this, the sooner the better. I understand I am now under this consultants care though NHS. I feel relieved that I have managed to make some headway. Really nervous about the colonoscopy and the result of this!!!
Back to top
Prev

Report or request deletion

Thanks for your help!

We want the community to be a useful resource for our users but it is important to remember that the community are not moderated or reviewed by doctors and so you should not rely on opinions or advice given by other users in respect of any healthcare matters. Always speak to your doctor before acting and in cases of emergency seek appropriate medical assistance immediately. Use of the community is subject to our Terms of Use and Privacy Policy and steps will be taken to remove posts identified as being in breach of those terms.