some good news

Posted , 5 users are following.

Just wanted to bring some good news to the forum. I was diagnosed in June and on the usual (metotrexate, hydrchloriquine, naproxene, codine, paracetamol, just coming off the steroid and also taking extra folic acid and a stomach thing) - and the good news? Its all working! I've just done a 3 day hike in Australia that frankly looked extremely unlikely a few months back and whilst not entirely pain free yet am certainly 80% pain free which feels amazing! Hope it lasts, and if it doesn't, hope the next lot of meds get me back here fast. Long live the NHS and long live the meds!

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5 Replies

  • Posted

    Hello jo. That's great news. Well done and thanks for sharing that with us all. I agree with you when you say long live the NHS. We are very lucky compared to a lot of other countries
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  • Posted

    I know our health service isn't perfect but I agree with you, we are very lucky to have the NHS, I've certainly no complaints.
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  • Posted

    Hi Jo, I'm so pleased for you too and I would also like to add that we are so very lucky as you say with our NHS having had a discussion with another lady on the forum only to discover that she cant access a fraction of what we have in the USA.

    I've also got some good news today too. I had a phone call from my Doctor giving me the latest results of my cortisol blood test. The level is now at 123 which is amazing as my last reading a month ago was at 38 so finally my remaining adrenal gland is kicking in. I had an op in may to remove an adrenal tumour and my body went into shock giving me almost overnight rheumatoid arthritis.

    I have been on hydroxychloroquine, naproxen, steroids etc and I am finally getting my life back. Prior to the op in May I was walking around 5 miles per day. I think I could do at least half of this now and am slowly working my way up to it. I am still stiff in the mornings but loosen up quite quickly now. The only part of my body that plays up are my hands (fingers and knuckles) when I do a lot of gardening or typing!

    Thank god for the medicines and thank god for the NHS!

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  • Posted

    Hi Jo, That is wonderful news indeed! Thanks for sharing something positive. I live in the USA and wish I could give a thumbs up to our medical system like you, but unfortunately, our system lacks in all areas. But to hear that the meds are working for you give me hope. I just started taking leflunomide along with folic acid a month ago. Apparently it takes 3 months to start working and I'm patiently waiting. smile Keep us updated and let us know when you're at 100%!
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  • Posted

    I'm so very very pleased for you! You must of never thought you would be able to hike when doctors put you on the medication. Have fun now you can feel better, its nice to hear a uplifting piece of news, thanks for sharing it. 
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