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Some help and advise please

Posted , 6 users are following.

jennifer63403
jennifer63403

I have suffered with this condition for years now and over time it has got worse. I have been referred to the hospital on numerous occasions and still no help.

My concern is I am getting married in 3 months and I am terrified on the day the rash is going to be up due to stress of the big day. I am on antihistamins 4 times a day and that help the itch but it's the rash I'm more worried about on that day.

What have people found that help that I could give a go for a while to help not feeling so low on my big day because of this?

Thanks in advance

0 likes, 7 replies

7 Replies

  • iqbal_45667
    iqbal_45667 jennifer63403

    Posted

    Nice to hear good news about you. I wish you a happy/healthy long life.  I suffered from urticaria for more than a year long back in my young days and thank God, I got rid of it using very simple/inexpensive anti allergy medicine. God willing you should also be getting rid of it some day though I appreciate your agony for so many years. One has to try many antihistmines, ultimately it goes. I know some other people also who suffered from this problem and ultimately got rid of it. Wishing you the best
    • jennifer63403
      jennifer63403 iqbal_45667

      Posted

      Thank you for your response.

      Can I ask. How many and how often did u take the antihistamins?

    • iqbal_45667
      iqbal_45667 jennifer63403

      Posted

      I used to take antihistamine only when the problem occurred. This was an ordinary antihistamine syrup; a very cheap stuff. Initially an army doc used to give me some injection which worked but not too much. I was about 25 years of age at that time. My urticaria was very itchy with swelling on my eye and eruptions all over thge body. Try antihistamine syrups incl the cheaper ones. Good luck.
  • wendy62425
    wendy62425 jennifer63403

    Posted

    Hi Jennifer

    I suffered from Chronic Urticaria several times in my life.  When I was younger like you I was able to treat it with Antihistamines.  This condition could be autoimmune issue.  Try eating a lot of good organic vegetables....stay away from breads, potatoes, rice (although avoiding the breads etc will cause you to lose weight.  Take a GOOD probiotic.  Sometimes our Gut gets messed up and "reacts"....... with hives.  Also drinking water is important..  Healthy eating is so important.  Grass fed meats good too as well as wild caught fish like Salmon.  I also take L-Glutamine. 

    No stressing allowed on your special day. 😉 Think positive that all will be wonderful!

    i wish you well and many Blessings.

    wendy

    • jennifer63403
      jennifer63403 wendy62425

      Posted

      Thank you so much for this. I will defenatly give this a go. I think I do eat alot of the wrong foods. Sometime I wake with a swollen mouth where I have eaten the completely wrong dinner. My doctor wouldn't offer support because there was so much involoved in finding out the route cause.

      I try not to stress over the big day but it just happens sad fingers cross it will all fall into place and be perfect

  • siobhan37552
    siobhan37552 jennifer63403

    Posted

    Hi Jennifer,

    Congratulations on your wedding! What an exciting time! I can understand your concern! I have had this condition for 18 months now. I've done a lot of research and it does seem that everyone is different in terms of what work for them to help control. I haven't managed to get rid of the condition but I have found something that makes me hives so much worse and that is my diet. I have a sensitivity to salycilate which is found in many natural foods, synthetic food colourings and things like alcohol and caffeine. I did the royal prince Alfred hospital elimination diet, and that has been the only time I have had it under control with hardly any medication. I also get swellings like you. Unfortunately because I am very very sensitive to salycilate and some other food chemicals like preservatives (also in lots of products), sticking to a diet is near impossible for me so I manage it with diet and antihistamines. I wonder if it is worth you looking this up? Especially if you have noticed that you react badly after certain foods. When I did my elimination diet I treated it as a wellness quest and I built in lots of stress reducing things, like visiting a flotation tank, doing some mindfulness etc. The whole approach of being kind to yourself and your body could help to reduce stress.

    I wish you all the best for your big day and ongoing health xx

  • January20
    January20 jennifer63403

    Posted

    I am cutting and pasting this:

    Basically, hives are due to release of Histamine so antihistamines are the #1 drug, which may need to be taken in excessively high doses (up to 4-fold recommended dose). So block the histamine using nonsedating-2nd gen drugs like citirizine, loratidine, etc in addition to 1st-gen antistamines like hydroxyzine, benadryl, if 2nd gen don't work. Steroids may need to be started and tapered- steroids help with the angioedema and histamine release. You might need to be on a higher dosage of doxepin.  I take 1st gen drugs q3-4 hours around the clock (I set an alarm) when hives are present in addition to all the other drugs which helps tremendously- takes 2 full days for the hives to disappear if all over my body and less time if just mild presentation. 

    In the USA, an allergist is the specialist of choice because hives is a systemic problem that presents as itchy skin but is not truly a derm problem. A Rheumatologist would be an alternative since they also deal with autoimmune conditions as do dermatologists.  Yes, the disease sucks but you have to learn to live with it because what is the other option..... death? Hives will not defeat me.

    Best

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