Some SVT Advice

Posted , 6 users are following.

(apologies in advance for the ‘wall of text’, but those of you that have been around on this forum for a number of years can at least console yourselves with the knowledge that it will be my last post. ....)

Not all medics are good at their jobs. If you don’t already have a GP who cares and you trust, then change, and if necessary keep changing, until you have one. It is they who will find the best specialists etc. for your particular case.

SVT triggers, and symptom patterns and severities, vary from person to person. Explore this forum in depth (going back several years if necessary) to identify those most similar to yours, and then cautiously try out some of the tips associated with minimizing or alleviating those.  

Unfortunate people who have bad experiences of particular treatments are far more likely to post stuff in forums than those that have had good experiences (perhaps because the luckier ones no longer have to worry as much about a particular ailment and just go away and get on with their lives). Please bear this in mind when making your own choices about treatments because the less fortunate ones may be only a very small minority.  

Anxiety illnesses and SVT have some very similar symptoms but it is very important to establish which you have because the right treatment will probably be very different.  If you do have SVT you then you will probably also have more debilitating anxiety in your life then someone that does not have SVT.  

If your symptoms seem very similar to SVT but you have not yet been diagnosed then always go to A&E with every episode until your heart’s behavior while having those symptoms is captured on diagnostic equipment (or pester medics until you are fitted with a portable monitor long enough to capture episode symptoms).

Electing to use off-the-shelf heart behavior monitors (like Fitbit etc.) can make you obsessed with your heart’s behavior to the point where harmless fluctuations cause you unnecessary anxiety and stress (which is a known SVT trigger for some people).

Ablation is available as a complete cure for most SVT sufferers (if not at the first attempt then almost always on a second one). Although, from personal experience, I would very strongly recommend having one done if your specialist says you are suitable, I do understand why some people worry about any procedure on or near the heart. But to my mind at least, the minute risk of this straightforward procedure making your life worse or shorter, is beyond all reasonable or rational comparison with the near certainty that it will make your quality of life, and that of your loved ones, so much better.

Wishing you all the best.

Over and out. 

0 likes, 5 replies

5 Replies

  • Posted

    I actually agree with everything you said and have posted a positive experience relating to my daughter who unfortunately now has a hypoxic brain injury. Nothing to do with ablation but more to do with arrhythmia management which does throw up huge challenges for some clinicians who tend to 'dive in' without a full understanding of possible underlying causes. Please do read her story 'Jessica's Story'

    https://jessicaraerudland.com/treatment/catheter-ablation/atrioventricular-nodal-reentrant-tachycardia/

    Be very careful with emergency medicine management, their opinions (doctors) and level of expertise, especially in ED/A&E where they have no Cardiologists on call varies greatly and remember. After the beta-blocker, Adenosine, Magnesium and Cardioversion have failed to control your heart rate you can stop, get up and leave if you are unsure where this is going? If you are well enough to leave, come back when more experienced doctors are on duty. Have complete confidence in your treating clinician.

    Importantly and not very well published IV beta-blocker therapy (Metoprolol) followed by IV Calcium Channel Blocker therapy (Verapamil) concomitantly can cause conduction reduction/failure across the AV node. Without fully assessing the LV function of your heart this therapy is not recommended in any circumstances.

    So be warned and ask questions, read up on the NICE SVT treatment pathways in the UK. It could save your life.

  • Posted

    Hi Ciaran. 

    Thanks so much for this advice and all your advice on my own posts. It’s been such a relief to find others in the same boat and get some words of wisdom that made my decision so much easier! smile 

  • Posted

    Thanks  for all of your contributions.  You've helped lots of us.  I appreciate and much agree with your last thoughts for us.  Please take the best of care of yourself.

  • Posted

    Ciaran,

    Thank you so very much for all of your knowledge along the way, I have been reading your posts since my first episode back in feb.16. You have given me encouragemnt, strength and have relieved a lot of anxiety in me. I will miss your kind compassionate responses always in a positive matter.

    Will miss your wonderful posts, Wishing you the very best 

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