Someone help me, docs tomorrow
Posted , 6 users are following.
Ok so bit of back ground first.
I am 32 and have suffered from an under active thyroid for 2 years and they have been unable to stablise me and I am currently on 300mcg levothyroxine. I was referred over to endo but they cancelled and I am back on waiting list for appointment at end of April now.
Basically in 2 years I have gained a load of weight , I am 5 ft 6 and I weigh 16 stone 11lbs and it upsets me immensely. Doc put me on orlistat and my daily food routine is along lines of breakfast biscuits, soup for lunch and chicken, salad and rice of small amount of potato. I sometimes have fruit as snacks and I drink no added sugar squash. I won a years free membership to gym but it is so hard to go as I weigh a lot and I suffer slipped discs which doc said my weight isn't helping but I can't seem to lose the weight. I am on anti depressants as this is really getting to me. I am seeing doctor tomorrow and will be telling him all this but I wanted to see if anyone can give me any advice as what I should present to doc.
I am 32 if I run up a flight of stairs or walk fast I get
Out of breath and my chest hurts. I have a 12 year
Old daughter and I am petrified of leaving her if something happens to me.
I am so depressed as this has been going on for
2 years.
I remember being top end 14 stone and now I am nearly 17 and so upset. Will someone help me . Tia xx
0 likes, 17 replies
christine1956 kelli04340
Posted
looks like the same symptoms all us levothyroxine takers suffer from welcome to our world lol
People who know a lot more that me will be able to advise you on blood results and vits.
I advise you to look at the discussion on this site which looks at the side effects of levothyroxine this might help.
keep sane
Tutu123 kelli04340
Posted
It may be that you don't convert t4 hormone (which is what levothyroxine is) into T3 (which we also need). Have you tried levothyroxine alongside liothyonine? This is a t3 drug which is available on the NHS but some GPs are reluctant to prescribe as it is considered expensive compared to levothyroxine.
Also might be worth having your cortisol tested as it can affect your conversion of T4 to t3 if it is too high.
shellyC19 kelli04340
Posted
My name is Shelly and I am a nurse in the USA. I also have Hashimoto thyroid disease since 1987.
Sorry to hear what is going on with you. That dosage of Levo is very high and many of us can't take Levo. the heart can be bothered by too high a dose and it can cause a fast heart rate.
I myself, had to switch off of it years ago. I am 54 and when I was diagnosed in 1987 I was on Levo. I took it and never had good TSH or T4 levels. It did nothing for me!!!
Today I am on Liothyronine T3 only. My TSH is normal and I feel the best I ever felt. Levo has to convert in the thyroid to useable T3 hormone. If the thyroid can't do it the body will not have enough T3 for energy.
The thyroid makes 4 hormones but for this conversation we will talk about T4 -thyroxine and T3-Liothyronine. There seems to be a problem in some of us and T4 justs sits in the body, but does not convert into T3. It can be from a damaged thyroid.
Thyroid disease can come from a family trait and also from a virus called Epstein-Barr also known as Mono. It can damge the gland badly. Also it can come from a lack of iodine in the diet. It can also happen from stress on the gland and after pregnancy.
You need blood work to include a T4 level, T3 level, TSH, and a TPOA antibodies test. Also a mineral panel. Sometimes Levo will not work if Ferritin is low. So you need a panel to include, Ferritin, Poatssium, magnesium, calcium, sodium, iron, Vit D and B-12. Ask for these tests. All of this is blood work! It is very important to do all of these.
Levo must be atken on an empty stomach and you must wait an hour before eating. Food will block the medication.
There are other meds, such as Liothyronine, Liotrix (T3 & T4 combo med), NDT (natural thyroid), such as Armour Thyroid, Thyroid S, Thyroid W.
NHS, has a narrow formulary and some weird policies and rules and since NDT comes from a pig's gland it can not be on a patent and licensed. NHS will not prescibe it. So you can get it off the internet and many on here do that.
Please keep us posted, if you have any questions, just ask.
Shelly
Mrsfullof kelli04340
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barbara98940 kelli04340
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kelli04340 barbara98940
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barbara98940 kelli04340
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If you are still getting HYPO symptons despite being on this high dose it also suggests something else is going wrong in the thyroid process. For example, not converting T4 (levothyroxine) to T3 (liothyronine) that your body needs. Ask him to maje your appointment to the endo urgent. You've suffered long enough.
Re diet, try eating fewer carbohydrates and more protein (e.g. chicken) and vegetables. Porridge made with skimmed milk in the morning is good for you (try to get used to it without sugar etc), is filling and is low in calories. Trouble is, being wrongly medicated for a thyroid problem leads you to put weight on, yet leaves you ravenously hungry and craving carbohydrates.
kelli04340 barbara98940
Posted
Up about 3 times a night for a wee,
Always tired and no energy
By 230 in afternoon I need to sleep otherwise I get grouchy.
Hair falling out
Weight gain
Always hungry
Depression
Achey
Heart racing
I think this is to name a few. I get so upset as well as I'm scared
kelli04340
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It's like watery ear and it's itchy, when I put fingers there to itch it's wet.
Don't know if that's a sign as well x
Tutu123 kelli04340
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Tutu123 kelli04340
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kelli04340 Tutu123
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barbara98940 kelli04340
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kelli04340 barbara98940
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Tutu123 kelli04340
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barbara98940 kelli04340
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Tutu123 barbara98940
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