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Someone with MD in Singapore?

Posted , 6 users are following.

Remle
Remle

Hi,

I was diagnosed with MD in 2014 at SGH. I'm taking Betaserc 24mg x3 /day. Last week, I have experienced my first worse vertigo attack lasted for 2 hours. I'm 43 y/o and appreciate if you can share your experiences in dealing with MD. Thank you.

0 likes, 14 replies

14 Replies

  • Terence_14
    Terence_14 Remle

    Posted

    you must have met Dr Chan at SGH. Hang in there Remie, its not easy there is no known cause to each attack and no known cure. Just take all precautions and get use to the awful feeling. It's never easy..... take it a day at a time, hopefully after 2 to 3 months the phase should pass. 
    • Remle
      Remle Terence_14

      Posted

      Hi Terence,

      Yes, Dr Chan Yew Meng is diagnosing me. Is he your doctor? How are you now? How long is your MD? 

  • eleftherio33095
    eleftherio33095 Remle

    Posted

    Can you please describe the characteristics of the attack.  Is it like your previous attacks, or did it start differently.  Was it spontaneous (on its own) or did it start with a change in head position?

    Eleftherios S. Papathanasiou, PhD, FEAN

    Clinical Neurophysiologist

    Fellow of the European Academy of Neurology

    • Remle
      Remle eleftherio33095

      Posted

      Hi eleftherio33095,

      I think it is an spontaneous attack as I was just seating when it happened. I have tried to jerk my head or sudden change in head position few times but no attack of vertigo. Thank you.

  • victoria86526
    victoria86526 Remle

    Posted

    Hi - if you read below you will see many people sharing the details of their experience. Many things in common and many different. After you read through, let us know if you have specific questions. Good luck!
    • Remle
      Remle victoria86526

      Posted

      Hi victoria86526,

      I got two episodes last year 2015, Jan - April & July - October. I noticed that the average span is ~ 3 months with intermittent hearing loss, tinnitus and aural fullness then my right ear will back to normal after 3 months. Is it like that?.

  • terry48784
    terry48784 Remle

    Posted

    Hi Remle,

    I was diagnosed March 2015 in New Zealand. I am taking Vergo (Betahistine Dihydrochloride) which I think is the same medication as you have but I am taking 48mg x 3 times per day with no vertigo or dizziness since April 2015. Still have aural fullness and tinnitus. My Ear Nose Throat specialist said i could go to 64mg x 3 times daily but by increasing the daily amount by 16mg(1 pill)each week till my symptoms stopped I got to my current total. 

    • Remle
      Remle terry48784

      Posted

      Hi terry48784,

      Let us know if there's a significant improvement on your symptoms when dosage was increased.

    • terry48784
      terry48784 Remle

      Posted

      Remle,

      When I was diagnosed with MD I started taking 16 mg betahistine once a day for a week and increased the dose by 16mg each week till my vertigo and dizziness symptoms stopped. I now take 48mg(3 pills) 3 times per day and have had no vertigo or dizziness symptoms since April 2015. At some stage I would like to reduce my medication and  see what happens but when I did have vertigo and dizziness it was not pleasant so I am not rushing into it. I would suggest those on low doses of betahistine talk to their Ear Nose and Throat specialist about increasing their dosage as I was still having vertigo attacks when taking 32mg x 3 times per day. I have had no adverse effects from the betahistine and try to run three times per week as I read this can help. I find it is also good for anxiety as during your run you focus your mind on taking that next breath, not stepping on any dog poo and trying not to keep looking at your watch to see how much time you have to go!! I find the only way I can find time for running is to enter local 10km fun runs which gives me a reason to train.

    • Remle
      Remle terry48784

      Posted

      Hi Terry48784,

      Thank you for your reply. It's good to hear that your vertigo is under control. I will seek advice from my doctor for increasing the Betahistine dosage. Currebtly, I'm taking 24mg x/day and my last vertigo is last month April. 

  • eleftherio33095
    eleftherio33095 Remle

    Posted

    If you find that betaserc is no longer working for you, you can try intratympanic corticosteroid.  This will go direct to the problem.  Its usefulness has been proven on many occassions.

    Eleftherios S. Papathanasiou, PhD, FEAN

    Clinical Neurophysiologist

    Fellow of the European Academy of Neurology

  • Bomquah
    Bomquah Remle

    Posted

    Hi Remle, I was recently diagnosed with MD and initially I thought my world has just crashed. For me, it is more of the tinnitus and distorted sounds that's so torturing. Everything sounds so weird to my left ear. So far I haven't got a big issue with Vertigo. May I know if you are also experiencing tinnitus, and for how long will the distorted sounds last for each attack? Thanks in advance!
    • Remle
      Remle Bomquah

      Posted

      Hi Bomquah,

      My attack is episodic for duration of ~ 3 months. Within these 3 months, my right ear has tinnitus, hearing loss on low frequency, distorted or muffled hearing, ear fullness sensation, dizziness  and recently Vertigo. My recent episode is March 2016 until now, so far I got only one Vertigo attack. I'm taking Betaserc 24mg x 3 per day. Btw, are you living in SG? How long have you been experiencing this symptoms?

    • Bomquah
      Bomquah Remle

      Posted

      Yup, in SG. I have been having plugged left ear and distorted noises for 2 weeks now and each day seem to be worse. It's my first and hence doctor recently diagnosed me with MD, I'm still in a panic mode and wonder when will all the weird noises go off. Luckily for me, I have very very mild dizziness. I'm on Betaserc too, but doctor only prescribe 24mg ONCE daily. Sigh, no idea when this will stop.
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