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Something that has helped me

Posted , 7 users are following.

ianstokes66
ianstokes66

After reading a post from airyfairy85 about advances in FM, It says that pain is caused by the blood capillaries reducing the blood flow especially when it is cold.

I have for the first time in my life started to wear thick pyjamas and thermal sock at night. So far I have managed to go 1 week pain free at night. I have now bought some thermal tops and long johns to help during the day as I have noticed that when I feel the coldI get pain.

I will also say that since I have been doing this my pain has reduce that much that I don't need to to pain killers.

This may all be a coincidence, I am not sure but at the moment I am a lot happier and pain free..

2 likes, 10 replies

10 Replies

  • Lucyred
    Lucyred ianstokes66

    Posted

    Yes I do dress warm as I can, I am going to get some of those long johns that people that ski use today if they have them at Macy's today. You are very fortunate that you have not had to use pain killers. I hope that works for you!!  Where do do live at? I am usually up all night heating up heat packs to keep my pain under control! After 4 plus years I have done so much reading and a certain percentage of peoples pain never goes away, I feel like I am in that group. My pain has went up as far as numbers. Now my highest when reporting to the pain specialist it's a 8 to 10.
    • ianstokes66
      ianstokes66 Lucyred

      Posted

      I hope it works.  When I say pain free,  I mean that on a scale of 1 - 10,  I am about 2.  It does come and go but compared to how I was before,  it's a massive improvement. 
    • Lucyred
      Lucyred ianstokes66

      Posted

      That is awesome! Right now I am about a 6-7 and I took my pain meds about 4 hours ago. Crazy! Use a lot of essential oils also! Going to get back on my supplements to see if they make a difference. 
  • tiswas24537
    tiswas24537 ianstokes66

    Posted

    that all makes total sense hun but how do you cope when your like me boiling hot one minute and cold the next .. if i sleep with all my body covered i get so hot, but if i put a leg or arm out of the covers then that limb gets so cold and painful . so glad your winning hun.
  • joy47826
    joy47826 ianstokes66

    Posted

    Keeping  WARM is essential, I wear socks to bed all year round and rub vicks on my feet every night......grape seed extract keep the circulatory system working much much better.....I'm on this great antioxidant 19 yrs....4 yrs before the FM hit me....

    I was at the right place at the right time with grape seed ex info.....Joy

  • sarah-jane57
    sarah-jane57 ianstokes66

    Posted

    Hello ian, I agree. Cold - wether i is a cold wind opening the freezer/fridge or faling or getting into water tha is cold makes fibromyalgia worse.

    I saw a new neurologist last friday who said that the brain works differently when you have fibromyalgia. You feel pain when people who do not have fibromyalgia simply feel cold. I feel cold all the time to the touch - inside I feel as though I have freezing cold water under my skin. People stare at me I've often been called a poor cow because I am wearing hats gloves scarf and thick cardigan or jacket even in summer. The circulation has been rewired somehow with Fibromyalgia.

    I have tried every alternative therapy there is and every alternate medication or herbal remedy there is. Devils claw worked in the beginning and Arnica is useful when you've had a fall and suffered bruising or after surgery. I had a `mild' Heart attack 3 weeks ago and now I am in one of the worst flare ups I've ever had. My thoughts are this when I start thinking why me : there is always someone worse off than yourself. My son has told me that as I look well (fibro unfortunately gives you a glowing healthy appearance when you feel as if you are dying inside) and has said that as I look well it must be all in my mind and that I cannot see my grandchild until I stop being ill! He's not a stroppy teenager he's nearly 40 and should be ashamed but he's not. That has broken my heart but not my spirit frown I say to everyone who has fibromyalgia - We are not being neurotic we are being very brave and are coping the best way we can surprised - I will continue to look after myself and will continue to wear my thermals, flannelette pyjamas and welly socks in bed and longjohns, long sleeved thermal vests, hats, ear muffs, and mittens when I'm up and about .... Knitting keeps me sane smile Hand knitted socks anyone

     

    • joy47826
      joy47826 sarah-jane57

      Posted

      Granted cold air on us is hard to take...I live in So. Cal. and we've had a really HOT spell for over 5 months and its' cooler now and yesterday I was playing bridge and the people's house have air vents and some air blowing on me, it was light air, but it was cooler and I had to cover the vent or move..    Thyroid and FM are definitely connected...poor thyroid can also mean cold extremeties.   Joy 
    • tiswas24537
      tiswas24537 sarah-jane57

      Posted

      i am a strange one the trunk of my body is nearly always hot so much so that i get blisters on the inside of my thighs if i sit to long with them close together. but then my hands and feet can be freezing , and pain ful. .when i am moving i get really hot and start to strip of its the middle of november and i am still wearing summer sandels even when i go out, unless its raining. and i am still taking ice packs to bed with me . i tell you this condition is sending me crazy, some times i get so cold i just cant get warm fire on fleece blanket wrapped round me then i get to hot and have to peel everything of , maybe its my age 54 and the menopaus mixed with fibro getting conflicting symptoms .but all i know its crazy . annoying .good for you standing up for your self you have to take of you . i find hot or cold damp weather the worse for me.
    • anne90395
      anne90395 sarah-jane57

      Posted

      Hello Sarah-Jane,

      How upsetting that must have been from your son. My children try their best to understand this, but I know they don't, truly, when they ask me to babysit at a moments notice! I will keep on trying to educate them! As for the keeping warm, I can totally relate to that. Strangely, my left foot is always cold, rarely warms up, even with socks thermals etc.

      Take care, Anne

  • nitropilot
    nitropilot ianstokes66

    Posted

    This is very interesting.

    So were you normally cold at night or do you think wearing tighter clothing helped, like full body compression stockings? 

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