1. Community
  2. Bones, joints and muscles
  3. Rheumatoid Arthritis

Sometimes one thing say's it all

Posted , 11 users are following.

gaz1234
gaz1234

Upbeat downbeat and everything in between. Pretty sure its not just me but sometime's-; Everything's a bloody battle. (Just having a moan)

2 likes, 15 replies

15 Replies

  • Gigimel
    Gigimel gaz1234

    Posted

    I feel your moan Gaz and I’d like to join you. Today mines a little more like a soft groan. We can harmonize 😕

  • MR._BELLA
    MR._BELLA gaz1234

    Posted

    Know the feeling, try to smile and keep on fighting.
  • linda23834
    linda23834 gaz1234

    Posted

    Definitely agree and feel your pain Gaz. Tomorrow might be a better day.  That’s if the dam weather would give us all a break, it doesn’t help.
  • raymond72422
    raymond72422 gaz1234

    Posted

    I guess this is the nature of the disease. Some days I wake up and feel like I can take on the world. The next day, I wake up crying "why me". I try to take advantage of the "good" days and live them to the fullest. The worst part of the whole ordeal is I can't even "cry in my beer". Just when you feel like you are getting better, the whole thing falls apart with pain that come on with no apparent reason. One thing for certain, I am glad I was 62 years old when I was diagnosed. Nothing could be worse than having to live 40-50 years with this beast.

    • MR._BELLA
      MR._BELLA raymond72422

      Posted

      Raymond I feel the same. I just don't understand how one day I feel I could climb Mt. Everest and the next day I can't step over a mole hill. I am 72 years old and before I got this stupid PMR I was on top of the world now the world is on top of me, but I am not going to let it defeat me. Fight, fight, fight is the only thing that will keep us going. Have a good day and God bless.

    • gaz1234
      gaz1234 raymond72422

      Posted

      I'm 60 now and ive had it 17 yrs now.I was having a proper moan n downer before but most of time i fight to keep myself up. I still work. Its tough going sonetimes but i find it keeps my mind concentrating on other things. Day by day is the only way. Take care of yourself mate

  • linda23834
    linda23834 gaz1234

    Posted

    Wow, it’s sad to hear everyone saying similar things and feelings. It helps me to hear and realise I’m not on my own feeling As I do . Iv realised that when I have a good day, then I try to do as much as I can and enjoy the day. I know that I’ll probably pay for it the following day. I guess pacing yourself is best, but hard to do. 
  • diane77471
    diane77471 gaz1234

    Posted

    Ugh, just got up an hour ago and pain shoots through me every time I move. I've had this disease for 3 mo and already on short term disability. I'm 61 and always worked in a very physical job. What will I do if I can't work? Need the money and the good feeling I get from the people I work with. I'm just waiting to see what will happen. Thanks for letting me dump.

    • gaz1234
      gaz1234 diane77471

      Posted

      Hi Daine

      Know that feeling all to well.

      I'm 60 and have had RA a good few yrs.

      Have pain every day in differing forms of severity. I work for myself well its me and my bro weve got our own little building firm so i do have a bit of support when i take time off, which isnt very often or probably as much as i should but thats to do with similiar reasons to yours.

      I also need to work ( wages etc) but i'm probably bull headed and just refuse to give in. Saying that ive just had 2 weeks off and now another week with all this snow because the pains just got to me.

      But you knowwhat the pains still there when i'm sitting there dossing.

      So my thing is to get myself up and out to work and i do do the manual stuff(bricky by trade) then i'm concentrating on something else and not focusing on pain and discomfort.

      Thanks for replying, its easy to say but so important to stay focused and keep on keeping on.

      Take care and stay well. BTW whats your job?

  • gurpreet54807
    gurpreet54807 gaz1234

    Posted

    Totally understand the un- predictablity of this disease is the worst - can’t plan ahead and after some

    Good days the bad days are harder to get through.. your not alone.: must keep fighting though 

    Wishing u strength and pain free days

  • chris65956
    chris65956 gaz1234

    Posted

    We all need to have a moan sometimes and feel 'why me' Gaz. This weather is doing me no favours at all but it won't last for ever and I am very lucky to be going to Spain on Tuesday for a week for R and R. can't wait to feel some sun and a drier atmosphere at least for a little while. All the best.

  • diane77471
    diane77471 gaz1234

    Posted

    Hey gaz, thanks. I'm a licensed physical therapy assistant. I do a lot of heavy lifting and transferring. I love my job. Anyway, nice to know I'm not alone. I may have to stop this job but god willing, I will get another in my field. Take care to everyone.

  • mary76396
    mary76396 gaz1234

    Posted

    I know just how you feel. I couldn’t wake up this morning 9:45 I staggered out of bed and sat for half an hour before I could face having a shower. A friend who lives 50 metres from my house rang and invited me for coffee. I started walking wondering if it would hurt my knees too much if I crawled there. I’ve got a sore throat, headache and fatigue but I know that tomorrow it could disappear and that it’s not flu developing. Thank god for this forum where we can have a moan with people who know that it’s just for today and tomorrow just might be better.
    • diane77471
      diane77471 mary76396

      Posted

      Hi Mary, I can't believe it! I woke up pain free today. Is it all the meds I'm on or is this the ups and downs of this disease. I am so grateful today. I pray you, too, get some relief. And yes, I'm also very grateful for this forum. Good luck everyone.

Back to top

Report or request deletion

Thanks for your help!

We want the community to be a useful resource for our users but it is important to remember that the community are not moderated or reviewed by doctors and so you should not rely on opinions or advice given by other users in respect of any healthcare matters. Always speak to your doctor before acting and in cases of emergency seek appropriate medical assistance immediately. Use of the community is subject to our Terms of Use and Privacy Policy and steps will be taken to remove posts identified as being in breach of those terms.