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Hello, Sorry in advance but this will be a long post. I'd love some advice! Long story short, my son was sent to ER in January with severe abdominal pain. CT Scan showed mesenteric lymphadonitis and slight inflammation of the appendix. Appendix was removed.
A month later he was really sick again and ended up having Mycoplamsa in his throat. All through the summer he had stomach pains. Speeding up to currently, his pain is so bad for about 3 months. Had multiple CT's done which only ever showed constipation. They did a week long clean out even though he always had a bowel movement daily. Now he struggles to have bowl movements and takes Miralax every day. I swear the clean out just made things worse.
We switched pediatricians because his previous one gave up on him and said he needed counseling. His stomach pain is so bad i can't rest my arm on him, he has difficulty bending over, difficulty walking, he can no longer participate in PE. He doesn't play with his friends much outside anymore because every movement hurts his stomach. The pain is located around the belly button area.
He had an endoscopy done which showed high eosiphinills at the base of his esphagus. This indicates a possible food allergy. Gastro doctor said he doesn't feel that would cause such severe pain. He only thinks IBS and again he suggested counseling. Both the pediatrician and the GAstro refuse to order an MRI. Gastro doctor ordered a Calprotectin test to check for inflammation and I just gave the stool sample today.
I feel like no one believes my son and my son feels so defeated and is tired of being in pain. We've gone the probiotic route, peppermint oil, acid medicaiton, prescriptions from ER, etc. Nothing helps. I've called a therapist today to have him talk to someone about his pain. He also has a ticking disorder that is REALLY getting out of control. His ticking is usually brought on by illness and stress and I'm sure hurting for so many months cannot be easy for a 12 year old.
I feel lost that I haven't been able to help him. Do you all have any ideas of what is going on? I'm praying the poop shows high inflammation just so finally we have a reason for his pain but I'm afraid it will show nothing.
Any advice? Thank you for reading htis long post!!!
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