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Son with anal fistula due to crohn’s, treatment options??

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Manda2829
Manda2829

looking for advice. my 21 year old son has crohn's and has a fistula that keeps getting irritated. they could not find the opening to install a seton. they say his only option is a bag. he refuses. he is on full stength humira which isnt helping. they just clean it and put him on antibiotics each time it gets unbearable. looking for options other than bag. we are in canada. willing to go anywhere for treatment.

please help!

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1 Reply

  • markLDN83
    markLDN83 Manda2829

    Posted

    Hi Manda,

    I'm so sorry that your son is in so much discomfort. I can relate some what to what he is experiencing. I don't have crohn's myself, but I've been suffering with a really bad anal fistula. And as a result of how severe it was, I have a temporary colostomy bag. Can I ask, are they advising your son has a temporary bag, or a permanent one? Also are you dealing with a colorectal specialist?

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