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sore vulva

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Guest

Hi, i am waiting to go back to vulva clinic the 15th this month, went there in november last year,. a doctor thought i had lichen planus, but the gyno at hospital didnt think it was, and when  i saw her it was clear , i did show her a picture of what it was like, a week and a half ago , my vulva was really soar,  then i got a lesion which was very painful, i,ve not had any itching, after seeing 3 different doctors at surgery, got perscribed dermovate, which seemed to ease it, but today its really sore again, i didnt put so much dermovate on early this morning as im not sure how much of the cream you are suppose to put on, on the enclosed leaflet it saids how much for everywhere else apart from the vulva, any advise would be appreciated. thank you.

0 likes, 4 replies

4 Replies

  • catharine69497
    catharine69497 Guest

    Posted

    Hi,  I have lichen sclorosis and lichen Planus, what you describe sounds like it may be lichen sclorosis .  The treatment is Dermovate.  A small pea size amount is what I was told to apply and I was told to use it every day for one month then as needed .

    i hope this may be information you can ask Gynea about.

    Catharine.

  • annc68
    annc68 Guest

    Posted

    I was prescibed deromvate as well. Seems to be main" weapon" against this awful problem. I was advised by my hospital that the best approach with a flare up is to hit it hard and then gradually reduce the usage. Twice a day for up to 3 weeks and then on a reducing scale. Once a day for a further week, then every other day for a week and then maybe twice a week to finish off. It does work for me but I do think it's very much down to your own body chemistry, so good luck finding what works for you! 

  • linda45090
    linda45090 Guest

    Posted

    Hi, you only use a very small amount, that's the advice when I saw my dermatologist with the same problem as yourself, and only when really needed as it's a potent cream.

  • ginger05274
    ginger05274 Guest

    Posted

    I have OLP and vulvar lichen sclerosis.  I was diagnosed with lichen sclerosis first.  It was misdiagnosed as yeast at first.  What you have sounds like sclerosis to me too.  I was prescribed Clobetosol ointment.  Don't know if that is the same as what others have been prescribed.  It works for me.  Seems like both diseases have flare ups.  When my LS acts up I do like someone else said, hit it hard for the first few days and then just as needed.  When I was first diagnosed, I didnt use much because of something I read, but I've learned it takes a little bit more during a flare up.  

    The oral lichen planus has been harder to treat.  I was living on yogurt for awhile, but it has gotten better (or I'm just getting used to the pain).  I'm still looking for something I could treat the lesions on my tongue with.  My doctor prescribed this horrible grainy paste that was too hard to use.  I'm wondering if I could use the Clobetasol orally too.  Hope you get a difinitive diagnosis soon.  Unfortunately, I think the only way to diagnose the LS is with a biopsy.  I didn't care much for that sad  , but it was bearable.  

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