Sorry for the long post..can anyone advise

Posted , 7 users are following.

Hello, I'm new! Came across this site whilst looking for some information.  I will try and keep my story brief

For years now, ive suffered with terrible fatigue, mood swings, lack of energy or motivation, weakened immune system, headaches, irrational thoughts, general feeling of malaise.  I was eventually diagnosed with chronic fatigue syndrome by a specialist around 4 yrs ago.  At this point, I had frequented my doctors regularly for blood test, anaemia tests, blood pressure tests etc always to be told I was normal and sent on my way.  I was told I was depressed, needed anti depressant and cbt.  I felt like no one took me seriously and even doubted myself as an hypochondriac when nothing came back on any of the tests time after time.  

Moving on on a few years, the CFS is still present, however last year i developed double vision.  Being 42 i suspected I was needing an eye test.  To cut another long story short, I was diagnosed with a brain anuersym last April after a MRI (done privately as once again my own gp's blamed depression as the reason for my headaches/visual problems) 

I was assigned a neurosurgeon and after several scans and meetings it was decided that the anuersym posed no major threat and that risks of surgery far outweighed the other risks.  I was relieved to hear this as the thought of brain surgery obviously was quite a worry.   However having lived with the brain anuerysm now for 12 months Im now beyond fed up.  My headaches are horrific, my vision is all out of sync, I'm full of brain fog and have felt out of it now for months.  

I asked the neurosurgeon on my last check up whether the intial CFS diagnosis could be linked to this anuerysm but he didn't think it was.

The reason I'm writing is Im now suspecting my thyroid isn't functioning properly due to the pressure of the anuerysm as its very close to the pituatary. However as my blood tests always read normal how likely am I to getting this taken seriously.  I honestly feel my CFS is a result of my anuerysm but if the neurosurgeon won't operate on the anuerysm & the CFS never goes away then where do I go next as Im feeling so dreadful and weak

Thanks for reading

 

5 likes, 36 replies

36 Replies

Prev
  • Posted

    Thankyou Jean, I hadn't noticed the typos...my visions rubbish at the mo, im getting by on one eye most days! Thankyou, it's nice to chat with someone who understands how it feels with an invisible medical situation.  We can only live in hope like you say, remain positive and pray tomorrow brings results and better health.  

    Kind regards x

Report or request deletion

Thanks for your help!

We want the community to be a useful resource for our users but it is important to remember that the community are not moderated or reviewed by doctors and so you should not rely on opinions or advice given by other users in respect of any healthcare matters. Always speak to your doctor before acting and in cases of emergency seek appropriate medical assistance immediately. Use of the community is subject to our Terms of Use and Privacy Policy and steps will be taken to remove posts identified as being in breach of those terms.