sorry me again , a complaint!

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i am sorry i need to post this,

​i am really angry at doctors and hospital! we are suffering from disabling illness, impacting everyday life, we cannot go out or do anything, we do not stop telling the doctors what is wrong, we have to see different specialists even if we can not properly move, take a taxi as is it even too hard and the doctors do not search , do not let us stay in a hospital checking everything , and also medecines issues and so on, i am angry at the doctors, i am sorry to tell this, but for some people like me, we suffer and no one really is concerned that much except doing a mri , after wait for another specialist, then wait for another one, i am so sick of them! i wish i could meet a doctor house!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!! i am so desperate and angry, i am sorry

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  • Posted

    I am sorry to read your post - you are obviously desperate.     I'm afraid my response is that the medical world is far from perfect, they don't know everything and they are under huge pressure all the time.   And what's more they are not miracle workers. I am sad to say we sometimes have to accept our lot.  I  know I am growing older and that things are wearing out.    I am just so deeply grateful that I don't lie in Aleppo.    Don't think this will help you much - but maybe you could give it a thought.     Best wishes.

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    • Posted

      you are right Paula, being angry does not help, but i  cant stand someone suffering and medical profession being like accustomed to it, i have things, and i experience things at the present which are not tolerable , i know they do what they can but i dislike the fact that a doctor does not trust the patient complaint , once i had a pulmonary infection the doctor told me i had nothing, i told him i know i have something and i had something really severe, i experience something similar now ;of course i have a short temper it is my default, i wish i can be like you
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    • Posted

      i also realized when you are depressed they do not trust you comparing when you are not depressed, they behave differently and tell you that all is in your head, of course they are right but not for all the symptoms ...sorry for my english i may be harsh i dont know , i m French so the translation may not be perfect
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    • Posted

      Helo again.   I've just been to a party in my village.   Had to drive cos can't walk far.  I decided to wear shoes with a little heel for a treat.    Bad mistake !    In my wildest dream I didn't realise that there would be a day when I would never dance again (my favourite thing - I'm from the rock n roll era!)  There's nothing wrong with being angry, but the anger can't change anything - and I doubt it makes you feel better, and could put up your blood pressure !.    Could you try doing what I do (when I have a minute or two) - I close my eyes and focus hard on seeing a rose - and then I paint it in my head.   I usually do a reasonably job - but couldn't do it at all with my eyes open !    Hope you can find a way to be calmer, you would feel very pleased with yourself.   All good wishes.

       

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    • Posted

      ​paula, oh yes i have to try what to do i think it is the hardest work on me , i read buddhism, and so on...but do not put it in practise i dont have the words because you are right to say this

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  • Posted

    If they cannot find anything on your scans or find a cause for your neuropathy they stop looking. I think that they often miss the obvious by looking for obscure reasons for your condition. We need a bit of lateral thinking on their part.

      

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    • Posted

      yes i am sure it is nothing that so severe but every different specialists are not in accordance....and i spend a long time before they finally make concrete exams which is not done yet , i have to take several appointments to finally have an exam or to change medications
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  • Posted

    Anne, tell me what is going on?

    What country are you in.

    I will try to help you.

    judith

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    • Posted

      I am in North Carolina and I experienced the same doctor trouble in my area. It has taken me 2 years to finally get a good neurologist who listens and cares. Don't give up!

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    • Posted

      3tarhraling- what doctor and office do you go to? I go to a functional neurologist in Durham who is AMAZING. I live in Raleigh. Please share who you go to. I would love to know... especially since you seem

      Pleased. Thank you!

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