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Spasms: Origin unknown!!

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KEMYST
KEMYST

Hi This is a post of desperation!! I have spasms - big ones - big enough to jerk my whole body. They are so bad that I loudly yelp when I have them. There is no warning and not a lot of physical pain but mentally I am at rock bottom. They cant find anything wrong with me. (Im, 76 and have had these for three years now). Brain MRI OK; CT scan OK, Spine MRI OK ; Neurologist OK; Spinal surgeon OK. Went down the anxiety route nothing worked -the medication just made me feel awful. I get these spasms when Iay on either side for any length of time - they go when I stand up - but then restart when a lay down again. Sleep is very fitful. I sit down a lot and the spasms seem to originate either on my lower back. my hips or my buttocks. Endocrinologist says that all bloods tests are OK. Tried L-dopa did nothing. My GP says it can`t be anything nasty or it would have appeared by now - but nasty is relative. I would be so grateful if anyoenhas had something similar. My own view is that a nerve is getting trapped and released - so any ideas please? Thanks in advance

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