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I'm new to this site, and found it after researching Chiari Type 1. I was diagnosed with it about 18 months ago, along with syringomyelia. My symptoms are mainly terrible migraines, nausea, neck pain (including a 'rice crispie' clicking noise when I shake my head), and, strangely (at least to me, probably not to a specialist) chest pain on the ribs near the heart. This last one the specialist says is the syringomyelia as it's in line with where the cyst is located in my spine and is likely the nerves being compressed causing pain around the side/front.
I hadn't really had back pain until recently, but lately I even have trouble moving around and am in agony virtually all the time, so am worrying the cyst may have expanded.
Anyway, I saw a specialist in Brussels, where I live, who is something of a celebrity here as he's had his own reality TV show following him around the ward. I'm told he's a leading authority on Chiari and syringomyelia. Unfortunately he was rather brusque and I didn't get to the bottom of things as I'd hoped. What he did say though, was that there were two forms of surgery available to me: the first is less invasive, has an 85% success rate and - the surprising bit - has a recovery time of just two weeks! The second is more invasive and takes longer to recover from. Naturally he advises having the first procedure.
I was going to go have it, and then I read on here some of the comments from people about their recovery, and they sounded a lot worse than two weeks. So I'm wondering, has anyone had a quicker, simpler procedure where they were back at work two weeks later?
I know it sounds a bit crazy, but this guy is an authority on it and I wonder if it's a procedure that he himself invented?
Thanks in advance and wishing you all well.
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