Posted , 7 users are following.
I have MD since Febuary this year and seem to be getting worse by the week. I have now noticed my speech is slurring and i'm forgetting what i'm talking about !!! I am 47 not 97 so am feeling a bit concerened. Has anyone else had this. Also my spinning attacks are happening from nowhere, i can be fine one minuite then all of a sudden it's there .. Any advice apart from calling the Drs Monday..
0 likes, 18 replies
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dara1958 vicky39230
Posted
I will tell you that when I had an attack several months ago, I too had a day or two where I felt very forgetful (happens a lot at 57!) and I could tell my words weren't right, but didn't seem to be able to help it. It passed, thankfully, but now I have a fear of that also. Hope you can find help and get past this attack - sending good wishes!
vicky39230 dara1958
Posted
jacki999 vicky39230
Posted
Mine is exactly the same : speech coordination - I lose it all. Mine started 3yrs ago (aged 47). Finally controlled on 16mgs x 3 three times a day. Breakthrough episodes when I have viral illlness - it's the the congestion that triggers it. Nothing licensed in the U.K. Works for me - so I have to take to my bed for about 48hrs.
In between episodes - everything is good.
So I live life to the max - when I'm well.
Coordination and speech doesn't last long - it'll all return
vicky39230 jacki999
Posted
david4242 vicky39230
Posted
My attacks are always sudden and without notice. Fortunatly I haven't had one while driving. I'm 70 and have had this for three years now. They seem to be occuring approx every 3 months. Some a level 9 or 10 then others are milder about a 2 or 3 where I can't walk a straight line or focus on any object without it moving. I think is a good idea to get a medic alert necklace or bracelet.
vicky39230 david4242
Posted
Brookiana vicky39230
Posted
Hi Vicky! My speech gets bad too. My words get muddled up, my brain can't focus. I've researched it and it's called brain fog. I hate it, I get so depressed too. I'm only 38 and it makes me wonder if I'm 90 and losing the plot or if my brain is just giving up. But it does go away!!! Honestly, it does! I've been bad for three weeks and off work but now I'm back to normal and fully functioning.
Keep the faith, good luck 😊
vicky39230 Brookiana
Posted
Brookiana vicky39230
Posted
Hi Vicky, I take betahistine three times a day, 16mg each time. I also have something to take whenever an attack of vertigo occurs but I have not had one since January!
I consider myself a lucky MD sufferer. The doctors are not sure I have it anyway. I have all the symptoms but the vertigo rarely happens. I have brain fog a lot and a constant dizziness which is like a floating feeling. Full ears and tinnitus. Fatigue. My hearing loss is not typical of an MD one though, it's called cookie bite. I haven't made any dietary changes because my triggers are stress and tiredness and too much alcohol (my nights out are now limited to a couple of drinks).
I would go to see the doctor if I were you , for reassurance and help. I agree with getting a button, it might reduce your anxiety if you know that help will come quickly if you have an attack.
Good luck
JMJ Brookiana
Posted
Hi Brookiana,
I was wondering about the cookie bite shape of your hearing loss....Does that mean you've lost both the high and low frequencies? Or have you lost all the mid level, and kept the highs and lows?
Thanks!
J-
JMJ vicky39230
Posted
Hi Vicky,
I agree with everything that's been said to you here. But I also think you should call your doctor on Monday, and report your concern. When I've been in the middle of a Meniere's crisis, I've always had Brain Fog. It's horrible: I get so muddled and just can't think straight. Then, when things calm down, some clarity returns. I've only lost my speech during the worst attacks, which also resulted in hospitalization. I've had 12 inner ear steroid injections which have had miraculous effects for me, for many weeks now. However, until I have a few months of vertigo-free time under my belt, my doctor has advised me to continue to wear my emergency button. It's like a mini cell phone - If I need help, no matter where I am, if I push the button, they summon an emergency team to my location, who will be completely informed about my condition. I live in fear of being dismissed as being a drunk, vomiting on the street, or in my car. I remember the first time my neighbors called 911 when they found me incapacitated on the living room floor, and unable to communicate or to stop vomiting. It looked pretty bad to someone unfamiliar with MD!!
So, i don't think it would hurt to call and tell your doctor about the slurred speech, just in case. And it definitely wouldn't hurt to wear and emergency pendant or medic-alert bracelet.
It sounds like you're going through a horrible time. I can totally relate. The unexpected nature of the attacks is maddening...it used to make me continually anxious about when it would hit me again.
I carry my rescue meds everywhere I go, and I stay under 1500mg of sodium per day. Also , I've given up caffeine. Fluid balance and stability seem to be key.
I feel so sorry that you're going through this, but with the right treatments, and learning about your own triggers, things can get better. Youo'll find a lot of support and great experience in this forum. Everyone here has helped me tremendously!
Take good care...
J
david4242 JMJ
Posted
Hi Guys,
I've tried to limit my computer use. I have a PC and don't own a smart phone but was spending way too much time staring at the computer screen scrolling up and done, up and down to the point that it may have been affecting me in a negative way. Give it a try you have nothing to lose.
JMJ david4242
Posted
Was staring at the screen and scrolling up and down, giving you dizziness or vertigo?
Take good care...
J
david4242 JMJ
Posted
JMJ,
After spending too much time in front of the screen I would start to feel dizzy. It might not affect someone using a smaller screen such as a smart phone. I'm not sure. Just trying to figure this out like everyone else.
JMJ david4242
Posted
David,
It's hard to figure this out...that's for sure. Thanks for your response. I could see that dizziness happening pretty easily with the scrolling of the computer screen...MD seems to make us hypersensitive to the signals coming in with head and eye movements. Part of my PT was doing eye movements without moving my head, and vice versa....trying to desensitize the vestibular system. Ugh. Caused a lot of dizziness and nausea at first. Staring at the computer screen and dealing with the scrolling, seems like a similar thing?
Take good care...
J
david4242 JMJ
Posted
I tried the exercises you mentioned and unfortunately didn't work for me.
JMJ david4242
Posted
It's so individual, in terms of what brings relief to people (... the " mirror trick" mentioned on a recent thread, is amazing!). This whole thing s#%!s... no doubt about it! I wish you all the best!
J-