Speech problems

Hi Deb,

I can sympathise with you as I experience a similar symptom where I cannot speak clearly and many times cannot understand what has just been said to me. It is when I am like this that my family understands that I am in a bad way and need to rest completely. I find this mental fatigue the worst of the many symptoms we have.

My only suggestion is to show your family a list of symptoms from e.g. the ME Association and rest, rest and then rest again whenever you need to. 

Take it easy and merry Christmas!

Liz

Extract from ME Association symptoms and diagnosis page:

"Brain and Central Nervous System symptoms include cognitive dysfunction (problems with short-term memory, concentration and maintaining attention), clumsiness, disequilibrium likened to ‘walking on rubber’, and word finding abilities. Problems with control of the autonomic nervous system results in palpitations, sweating episodes and symptoms associated with low blood pressure/postural hypotension (e.g. fainting)."

Dear Deb, I find that  my tongue or cheeks can be tired too, numb like, and then it is a bit hard to talk. The jerking I cannot say, only that I have heard others talk about this.

The thought I will pass on is this: We have an illness. We have to learn Not to play normal, healthy people. We are not, and it is too exhausting to try.

We must learn not to be embarresed about such symptoms as not being able to follow the conversation, I feel it like a pair of scissors cutting my line of thinking. Other people have symtoms, people who cannot walk, talk, control their limbs, etc. If our family and friends cannot handle that, drop them. It is too costly in energy to keep up.

If the problem is with you, please work on accepting these symptoms as part of you, now. Underneath we are still Us.

I hope you will have a good Christmas after all, even if you do not think so right now :-)

 

Hi Deb 

when I was a child I used to stutter a lot and learnt to control it by concerntration and speaking slowly.  However since becoming ill the stuttering has returened, although mildly.  I would say speaking slowly is still the best method which helps me and if I cannot think of the world that I need to say, then the word becomes "bob" that is what helps me. Oh and saying sorry a lot. :-) 

Hope you get better soon 

regards

Andy

Thank you all for your advise, it is good knowing that there is someone to listen  who understands the problems.

Merry Christmas every one x

And to you too :-)