Posted , 4 users are following.
Hi guys I have had me/cfs for 4 years sometimes not getting out of bed for a few weeks.i do not socialise now as I have a new symptom, so l would like to know if any one has the same.
my speech is mumbled and I stutter when I have family round, it is so bad when out I can not get the words out or remember what I'm ment to say so I just say nothing. Also I have days when my arms and legs keep jurking, when this happens I have to just sit down or I can fall when my knee jerks.
does any one have these symptoms
I am so down as Christmas is round the corner and I know it will happen with people coming and going.
can anyone help please.
0 likes, 5 replies
I can sympathise with you as I experience a similar symptom where I cannot speak clearly and many times cannot understand what has just been said to me. It is when I am like this that my family understands that I am in a bad way and need to rest completely. I find this mental fatigue the worst of the many symptoms we have.
My only suggestion is to show your family a list of symptoms from e.g. the ME Association and rest, rest and then rest again whenever you need to.
Take it easy and merry Christmas!
Extract from ME Association symptoms and diagnosis page:
"Brain and Central Nervous System symptoms include cognitive dysfunction (problems with short-term memory, concentration and maintaining attention), clumsiness, disequilibrium likened to ‘walking on rubber’, and word finding abilities. Problems with control of the autonomic nervous system results in palpitations, sweating episodes and symptoms associated with low blood pressure/postural hypotension (e.g. fainting)."
The thought I will pass on is this: We have an illness. We have to learn Not to play normal, healthy people. We are not, and it is too exhausting to try.
We must learn not to be embarresed about such symptoms as not being able to follow the conversation, I feel it like a pair of scissors cutting my line of thinking. Other people have symtoms, people who cannot walk, talk, control their limbs, etc. If our family and friends cannot handle that, drop them. It is too costly in energy to keep up.
If the problem is with you, please work on accepting these symptoms as part of you, now. Underneath we are still Us.
I hope you will have a good Christmas after all, even if you do not think so right now :-)
when I was a child I used to stutter a lot and learnt to control it by concerntration and speaking slowly. However since becoming ill the stuttering has returened, although mildly. I would say speaking slowly is still the best method which helps me and if I cannot think of the world that I need to say, then the word becomes "bob" that is what helps me. Oh and saying sorry a lot. :-)
Hope you get better soon
Merry Christmas every one x
Join this discussion or start a new one?New discussion Reply