Sphincter of Oddi

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Ihave been hospitalized the last two weeks for severe pain caused by SOD. It is mind boggling to me that people in the medical profession can be so ignorant and expect for pain to be textbook. I was reaching out to see if anyone had any good ideas on treatment options. With that being said I have had a sphincterotomy performed several years ago and now I am starting to have more pain and nausea (obvious by my hospital admissions). The only analgesic that is able to help the pain at all is Dilaudid, can't be morphine as this causes more spasms. I had an MRCP tonight, will talk to doctor in the AM and find out results. Please let me know what's worked/not worked for you and any treatments/tests that you have had done. 

Thanks, 

Amanda smile 

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5 Replies

  • Posted

    I havent been diagnosed with SOD yet. Ive had cat scan , mrcp, mri; endoscopy. Nothing showed. They tell me its stress. I tell them no it isnt. I just went for lots of blood tests and stool. Waiting for results. Its been 2 years now. The first episode lasted 1 yr. I lost 30 pounds. I could only eat boiled chicken meatballs with white rice. Little rice krispies and yogurt. Then i started to feel better and started eating more and then more and more with a bout here and there for a couple days. So i was ok for a year and it just came back 2 weeks ago again bad. No coffee no fat little at a time. No pop i just drink water now. Ive been researching myself. I went for a second opinion to another gastro. I took all my tests he said theres nothing more to do. Your ok and gave me an antidipressant.

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    • Posted

      I had my gallbladder out when I was 19 and Im 55 now. Codeine is not good if youve had your gallbladder out. It gives me pain like a gallbladder attack. Im still searching to find out whats wrong.
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  • Posted

    Hi, Amanda, I've never heard of your condition, but I want to extend my best wishes to you.  I am hopeful that with proper treatment you improve.  Best of luck to you!  Please let us know how you're doing!
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  • Posted

    After having my gallbladder removed 4 years ago I have been experiencing increasingly severe episodes of "gallbladder type" pain and vomiting. After much trawling through the Internet I firmly believe it to be SOD.

    My doctor prescribed me tramadol for the pain which really helped, but switched me to dihydrocodeine which made it a lot worse! This has left me confused. Both are opioids, so why would one help an attack and another worsen it? It seems a bit strange to me.

    I am being sent for a regular gastroscopy in 2 days' time, mainly for the vomiting I get alongside the upper right quadrant pain. WIll this show anything regarding the SOD or will I need a more specialised test?

    Sorry for all the questions. I'm just scared, in a lot of pain, and sick and tired of being sick and tired. Speaking of which, is extreme tiredness another symptom? The past 6 months I have been utterly exhausted and struggle immensely to just get out of bed. I'd love to hear from anyone in the same miserable boat as me.

    I'm really sorry to hear you've been in hospital for so long with this. Hopefully your results have shed some light on your condition and you can get some help for this! Xxx

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  • Posted

    Hi I hav had Botox injection which was temp for 4 months several ercp several spinchtertomy and metal stent which was supposed to stay in for 8 months but came out 5 weeks later due to the horrendous pain again nothing helps just awaiting to see my consultant again not till beginning of April .
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