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Spinal Cord Stimulator

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william65322
william65322

I have been living with CP for almost three years now and during that time I was a walking pharmacy with all the pain medicines (Morphine, Dilaudid, Oxycontin, Percocet, etc.)  I then wised up and went to see a pain specialist and it was decided to implant a Spinal Cord Stimulator (SCS).  The SCS is implanted in the lower back area and 32 small electrodes are attached to the spinal cord.  What the SCS does is tell the brain you do not feel pain, you feel a tingling sensation.  It does not cure or stop the CP, but it can give you a better quality of life.  With the SCS, I have a remote that can be programmed with several settings and lets me change the area of focus as you know the pain from CP seems to effect every part of the body.  The SCS does not work for everyone one, but prior to the full implant a test period of the device is done for about 2 weeks to see if it will work.  It can hopefully get you off of the strong opitate painkillers.  I also would encourage patients to question their doctors as many in the medical community try to write of CP as being something else.  Finally, I would encourge everyone to use this site as it offers a great exchange of information and the support of people going through the same things.      

0 likes, 6 replies

6 Replies

  • Babalishous
    Babalishous william65322

    Posted

    hi, when u say cronic pacreatitis causes symptoms all over your body?

    i have been having worsening symptoms for a year now... it started off with electric shock type pains in between my shoulder blade and mid back.. after five months of this I had horrendous upper and mid abdominal pain which radiated through to my back... this was constant for a full month... had diarrhoea here and there but not loads.. anti nausea here and there I was sick once and had traces of blood in it. one symptom that kept coming was the electric shock type pain is mostly in my back. i've had CT, mri endoscopy... and just recently had an EUS... I was convinced I had a pancreatic tumour. they convince me I didn't after I had the EUS as I know that this can pick up anything small, but again everything was normal. I have started to think and read that chronic pancreatitis cannot always be seen on the scan is until there is a lot of damage. one doctor did go back over my scans and said my pancreas does look on the plump side, but has now said that is probably just the way my pancreas is, as nothing can be found on any of the scans for any blood tests...

    I have a permanent ache around my shoulder blades sometimes it's worse than other days, but it is always there. more strangely please electric shock type pains have now started on my knees my elbows buys my hips and randomly sometimes the odd finger or toe.... what seemed to start off as a digestive problem somewhere has now escalated over my body, I have symptoms from my head to my toe. when I read you said chronic hungry titres Kalafat all parts of your body did you have similar symptoms to this??

    • Babalishous
      Babalishous

      Posted

      sorry about the random words in there i was dictating it to my i phone, iv just read it back and some parts make no sense sorry
    • lesley05714
      lesley05714 Babalishous

      Posted

      Hi there,

      read some of the alternative studies on health problems...the best book in my opinion is, the china study by cambell. A lot of the western illnesses/problems are down to the western diet, and can be reversed in many cases. This isn't a quick fix as it needs understanding, but it has transformed a lot of lives and it makes you realize how important nutrition is. Let me know how you get on, I encourage you to read the book, available on line.

      Blessings,

      Lesley

    • william65322
      william65322 Babalishous

      Posted

      The pain has predominatly been in the abdomen, shoulders, back, neck and chest.  I have had it rediate to my upper left arm and jaw.  It just seems to find a new path every now and again.  Sometimes the pain feels like a heart issue, almost like a heart attack in some ways.
    • william65322
      william65322 lesley05714

      Posted

      I do agree with you 100%.  Prior to the implantation of my SCS, I did do some eastern remedies such as accupuncture and mind based stress reduction.  However, I'm willing to try more of a diatary approach as well.  Western and Eastern Medicine can co-exist with great benefits.
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