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spinal cord stimulator stage 2

Posted , 2 users are following.

graham6214
graham6214

hi as  anyone had a scs satge 2 as ive had it done on 10/08/14 and have had nothing but problems with it including spasama of my back around t8/t9 and was wonderjng if this is the norm or should i be worred thanks in advanc graham

2 likes, 19 replies

19 Replies

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  • debbie27473
    debbie27473 graham6214

    Posted

    Hi.

    Just so you know someone is reading your post, I thought I would say Hi. I am hoping someone will answer you as I am due for my permanent implant on 22-9-14 and would like to be as prepared as possible regarding what to expect. What condition have you got? I have congenital spinal stenosis complicated by also having Polymyalgia Rheumatica. Unfortunately pain fromboth conditions can overlap, so until I've had the implant a while (I had the trial for 9 days but this wasn't really long enough), I won't know what I,m left with. I am thinking you must be due for your follow up appointment soon. Hopefully they can adjust the impulses to stop the spasms at least. Please let me know how you progress. It is very helpful to share this experience with someone who understands. Take care, Debbie

    • graham6214
      graham6214 debbie27473

      Posted

      hi debbie ihave degenrative disc disorder syatica and ostio arthritas at the moment i whish i had never had the scs as the spasams are more painful than the pain ive had the scs reprgramed once already and have a second follow up on 05.09.14 any movement i do make when the scs is on alters the strength or area coverage the only time it works fine is when i lay down but i cant spend the rest of my life on my back lol will post on friday how i get on with the follow up hope this helps you a bit more and hope all is well as it can be graham
    • graham6214
      graham6214 debbie27473

      Posted

      hi debbie i forgot to say yesterday that your not allowed to drive with the scs switched on because if you do and have a acciedent your insurance will be viod the techs didnot tell me this until after it had been implanted and i was in recovery and just to let you know that my scs is now only working down my right side (not good ) so ive switched it off until tomorrow when i see the consultant 
    • graham6214
      graham6214 debbie27473

      Posted

      hi debbie its all gone wrong theld  scs has stopped working like it should and feels like its pulled muscles in my back can hardley move mabey your hart prob is a sign not to have this done to be honest i wished i had not have left a message with the contact i was given on friday will let you know what they say all the best graham
    • debbie27473
      debbie27473 graham6214

      Posted

      Graham, I am so sorry. You must be very upset. I am starting to wonder if your'e right. Have been talking to someone else on the forum and they have had their scs removed altogether. He said his speciallist told him lots of people are starting to do the same. He is now surviving on injections. It is very worrying. Have you got ny Tramadol or something to relieve the pain? I really hope you get a quick response to your call. Let us know if you can. Take care, Debbie
    • graham6214
      graham6214 debbie27473

      Posted

      hi debbie yes i have morphine aswell as tramadol and i to think that its not worth all the agro because im in more pain now than before i had the scs . not had a reply yet exspect it will be next week some time will let you know how i get on thanks graham
  • dawnylou68
    dawnylou68 graham6214

    Posted

    Hi there

    ive not had it and haven't heard of it but am following your post so yes I'm reading them too, soz I can't advise! But u never know I may need one one day so sharing and all that.

    wishing well with your appt on the 5th hoping you get sorted 😁👍

    • graham6214
      graham6214 dawnylou68

      Posted

      hi dawny thnks for the support it nice to know people are showing interest 
  • debbie27473
    debbie27473 graham6214

    Posted

    Hi Graham

    Yes, I knew about the driving thing. We went for a special induction talk before the trial implant and they told us there. Also after the first year you have to get insurance cover. Hope your situation improves after tomorrow. I went for my pre-op Tuesday and they have discovered a potential heart problem, so they have cancelled my implant surgery until they sort it out. Bit scary. Best of luck tomorrow.

    • graham6214
      graham6214 debbie27473

      Posted

      debbie im so sorry to hear that do you know what the problem is and if so can it be got round if you dont know try not to stress to much im sure they can fix the problem can i ask who your consultant is mine is dr v metha at barts in london will post agian tomorrw after my follow up all the best graham
    • graham6214
      graham6214 debbie27473

      Posted

      hi debbie just got back from pain clinic saw two techs one frm spain who flew in this morning the other one from london told them whats been going on and they said not to worry its only teething problems whith thaat they started to reprogram my scs to be honest the london fellow seamed like he was winging it but the one from spain was very good with his knowlage and under standing ofthe scs any way the bottom line is they managed to re program it back to the way it was working before and would see me agian in three months and also gave me a direct contact number incase things go wonky so for now all is well in my world will keep you updated if theres any improvement in pain reduction or any probs all the best and let me know how you get on good luck with everything graham
  • debbie27473
    debbie27473 graham6214

    Posted

    Hi Graham

    Glad you got sorted out. Hope it lasts this time. I am still having various tests. Looks like it could be a while before I get my implant. Starting to wonder if somebodys trying to tell me something! Take care.

    • graham6214
      graham6214 debbie27473

      Posted

      hi debbie well where do i start its all gone wrong the one remianing lead i have has gone arteral which as far as i know it has done a108 and bent forwardthe hospital are now talking about replacing it with a paddel lead which gets stitch into place atnd they said they would bring me into to disscus this but to be honest i think i will hae the scs removed as this will be my 7th op and ive had enough will let you know what happens hope you are keeping well graham
    • debbie27473
      debbie27473 graham6214

      Posted

      Hi Graham. What a horrid decision to have to make. I hope that whatever you decide will be the right thing for you. Only you know what your body is telling you. I hope you can get some straight answers about your options. Doctors are so good at being vague. I can only imagine your disappointment after going through all the build up to having the SCS, only for it not to work. I know some people swear by regular pain killing injections so maybe that's one thing to look into.

      I am still undergoing investigations into my heart problem. Have just had 24hr ECG monitor removed so will hopefully know more once that is analysed. Take care, Debbie

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