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Spirits lifted / spirits downed

Posted , 2 users are following.

georgeGG
georgeGG

I suppose that those using this forum are doing so as sufferers from PCa. They might be a patient or a loving carer. They come here for information and to find some ease to their distress and pain. Yet some find it a negative experience. I wonder what is happening that some of us are unhappy with their experience? While looking at that, it is worth also recording some of the things that make this forum successful and rewarding to the members

0 likes, 9 replies

9 Replies

  • Dudley71081
    Dudley71081 georgeGG

    Posted

    Hello George,

    Firstly,  I hope you are feeling not too bad and are coping reasonably well?

    The topic you have raise is overdue,  interesting and pertinent.  ( I probably see your o/night posts before others as the new day starts 8-10 hrs earlier,  here in Australia ).

    As a fellow Man of Faith it seems that accordingly we have our fair share of Haters, Baiters and Snipers.  I  too am perplexed at the tone and lack of charity of some of the Posts.

    And I for one,  with the background of a tough upbringing,  have not always been able to rise above and ignore the mean-ness,  as I should have.

    Also there are perceivably,  issues of doubtful accuracy and veracity which obfuscate some topics submitted for consideration. In other words there does not seem to be any quality control of Original Posts and I see that omission,  as one which has  potential to do significant harm. 

    This is is my only means of communicating with you but I am nevertheless,   whatever the consequences,  going to direct you to Forums on an American site ' You Are Not Alone Now ' with the suggestion that your sensibilities will be less troubled there on.

    Go well George

    Kind Regards

    Dudley

     

    • georgeGG
      georgeGG Dudley71081

      Posted

      Hello Dudley, Many thanks. Things are going quite well. I got to tollerate the HT quite well. It was a little dodgy to strt with. Tincture of Sage has greatly reduced the flushes. With the flushes gone the memory and logic muddles went too. I thought of this discussion when I had noticed that some had had negative reactions to responses they had received. I hope that by airing the sorts of things that lead to those painfull reactions plus the kind of responses they have found helpful we will all benefit. Happily I am not myself in a twitch at present. Thank you for reminding me of YANA. I don't think I have time at the moment. Perhaps I should say, if I don't pick up some pace I will never have time. RT is getting closer too. How arethings going with you? GeorgeGG
  • Dudley71081
    Dudley71081 georgeGG

    Posted

    Hello there George. You sound in good form !  It is good to know that you are coping reasonably well with the HT and receiving benefit from the T of S.  That is one for me to remember,  if and when ... 

    Thankyou for asking :  I finished my 42 EBRT's on 3rd June . My PSA on 10/9  was 3.6. The Oncol was very pleased with that and predicted it would fall even lower mentioning, 1.8. ( My original diagnosis was Gleason 4+3,  PSA 10,  T2b and I had to have a med -TURP and BNI,  before I could have the EBRT ).

    Side effects have been, in order of onset:  Fatigue,  Acute Radiation Proctitis and Urethral Stricture.  RP has lessened considerably and Fatigue level is improving.  US was initially less than it is now when,  I am on meds and only one step ahead of catheterisation.  

    I am not yet incontinent nor impotent,  although literature seems to indicate that I will in all likelihood face those issues within the next 24 months.  Pre- seminal fluid is still being produced but semen has changed consistency ( thicker ) and the degree of retro is probably 60-70%

    But, life is good.  We are coming into Summer and my biggest hope,  is that when the sea warms up a little I can swim,  without it stopping me urinating altogether.  Right now,  that seems to me the worst thing that could happen ( i.e,  no swimming ) and I know,  the sharks would be disappointed !

    Altogether though and come what may,  I feel very lucky.  Because 6 months ago I was told I had ' a significant amount of moderately aggressive Prostate Cancer '.  And the reality is that although I now have to deal day to day with a few minor life-style impairments,  I never think about it.  There is no doom nor gloom.  God,  is good.

    i hope you continue to go well.

    Best Regards

    Dudley 

     

    • georgeGG
      georgeGG Dudley71081

      Posted

      Hi Dudley,

      Thank you for your kind interest and words. Yes, I am happy and anxiety mostly under control. I am imensly grateful to you and all the members of forum who have supported and indeed continue to support me. What a difference it makes. I do not know where I would be if I hadn't stumbled on the forum at the outset when I was at my worst. You all knew how to treat me and bring me through. I have been blessed indeed.

      I am glad to read that you have found the benefits of your treatment far outweighing the disadvantages. It is what our professional advisers urge us to believe will ha[ppen when they give us their recommnedation. Your account helps me to step forward with a firmer step and stouter heart as the start of radiotherapy on 30 October draws nearer.

      Thank you for your good wishes. I do hope your health continues on the up and up.

      George

  • Dudley71081
    Dudley71081 georgeGG

    Posted

    It's no worries George that you will continue to go well.   So far, you have taken everything in your stride. 

    Yes, maybe just a little bit wobbly to start with when the weather forecast  was at its bleakest,  but that was both understandable,  long ago and now, far behind.   For sure, you have shown good courage and  will not be re-visiting,  those darker days.

    The noble way you have overcome things must surely give hope and encouragement to many others.

    Best Wishes,

    Dudley

    • georgeGG
      georgeGG Dudley71081

      Posted

      Thank you Dudley. You have born with me bravely. You will never really know how much your straight taking helped. At times your words were like a mirror so I could see myself as others see me. You helped so much to put the stuffing back into me. Thank you, a true friend and I your ever grateful friend.
  • Dudley71081
    Dudley71081 georgeGG

    Posted

    Cue... The Kop Choir and Gerry and The Pacemakers..........

    We are all rooting for you George.

    • georgeGG
      georgeGG Dudley71081

      Posted

      Dudley, thank you - and for bring that musical army to assist.

      Am I such a burden you needed an army to help? < chuckle="">

      Thank you all very much. You saw me at my blackest hour, and black, black it was too I was reacting so badly.

  • georgeGG
    georgeGG

    Posted

    Thank you for being in touch. My topic entirely failed in its intended purpose. I have enjoyed our exchange of notes. Perhaps I should have directed this topic in the chatroom. I probably shall do so now.
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