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As anyone been diagnosed with SS and hEDS? I can still do all the tricks of double jointed fingers and toes. I read the muscle, joint, bone pains are also part of hEDS. I haven't been to the rheumatologist yet to confirm if i have hEDS or SS or both. Since 2017 the criteria for hEDS has somwhat changed and must include a family member with it. I don't think my siblings are like me except i know my mother was very 'flexible' .
The reason i want to know is so i can stop taking Plaqenile ( i already have secondary cataracts and AMD and would rather not be on it ). i tested strong positive for SS via blood test in 2015 and 2017 (change of rheums so had to get another test) I was also told i had fibromyalgia.
i did google if plaquenile can help with hEDS pain. Couldn't find anything but then again my googling skills are somewhat lacking ( i blame it on my age 😃 ) Appreciate any thoughts on this.
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