Stage 3a

Really pleased you are seeing results for your efforts long may you do so 😊 Diet can and does play a part yet I for one have never had any instruction for this I have had to find things out myself so I can understand people being a bit bewildered by it all. Thank you for your positive input.

What good news that a diet has helped your son.  Just this week my GP told me that if I avoided protein for 12 hours before my next blood test it might give a better result.  However, I hadn't eaten protein for more than 12 hours before the last blood test so we've ruled out  trialling that.

I would be very grateful to hear what the dietician recommended for your son which has improved his numbers.  Long may he continue to do well - one thing when us older people have problems but so unfair in youngsters.  I spent the first 12 years of my life being ill until they discovered the problem lay with a kidney which they then removed and I have been incredibly lucky for very many years.  Need a magic wand now though! 

From what I understand each person with ckd is a little different.  So the dietician takes your blood work and creates an individualized meal plan for you.  For example, my son has a build up of potassium in his blood so he can't eat anything high in potassium.  His ckd has caused him to have parathyroid issues and there are certain foods that he avoids due to that as well.  So mainly he avoids high potassium and high phosphous foods.  Do you have to avoid potassium?  If you do, I can give you a list of los potassium foods.  Just let me know.  Also, I took it a step further and took him off of as many processed foods as I could.  Lowered his salt intake drastically.  I also started buying as many organic fruits and veggies as I could afford to. Also, Protein is hard on your kidney so reducing that on a regular basis is also good.  Hope this helps

Oh yes that is so helpful, Elenna - thank you.  In fact, I was doing a bit of online research last night and found the very reliable Mayo Clinic recommended low phosphorus/low protein diet  for CKD.  

Yes, I agree that each person with CKD could need a different diet approach, I suppose depending on the cause of their particular CKD.

At the moment, I am lucky in that apart from my creatinine and eGFR, all other bloods are normal, or were until I started all the different BP meds, with some being stopped because they adversely affected my urea, potassium and sodium levels.

I have always tried to avoid as many processed foods as possible, and those containing salt.  We, too, try to eat as much organic food as possible - expensive but if it helps we think it's worth it.  Although meat is high protein, we do stretch our Sunday joint (chicken every other week, with lamb and beef inbetween) making it last for about three days,by mincing the cold meats and making it into things like Shepherds Pie, Lasagne, Bolognaise, risotto, etc so not too much meat at any one serving.

What did surprise me when doing the research last night was how many foods I eat on a regular basis that are high in the unwanted phosphorus, such as salmon, mackerel, non-fat yoghurt, hard cheese, wholemeal bread - wow, I shall be wondering just what to eat!

You obviously do the very best for your son diet-wise, and I do hope he will continue to thrive on it.