Stage 5 CkD gfr 7

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I am currently waiting on my op to have my pd catheter fitted for dialysis whilst I wait for my transplant. I was just wondering if anyone else experiences extreme tiredness but isn’t anemic? Drs can’t do anything about the tiredness as there isn’t anything causing it apart from the kidney failure itself of course. Just to put you in the picture I am 25 working and otherwise healthy! Thanks!

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  • Posted

    hey Pegg,

    i was not anemic prior to going on haemodialysis ans was wacked out 85% of the time. im not sure how my anemia progressed during 5 years of dialysis asi just didnt care.......they gave me IV stuff straight in thev lines and i neverasked what it was. i guess it was epocrit but as i said, i cared not a jot.

    i never found a cure for thefatigue, loss of staminaetc., but maybe others on here might do.

    i hope your transplant comes soon......arelative / friend or are you going on the waiting list?? anyway.......fingers crossed for you for a quick one.

    matt.

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    • Posted

      Yeah I have two people being worked up for live donation and I am also on the transplant register so hopefully shouldn’t be too long! Just hope pd makes me feel a little better - did you find dialysis helped? 

      Thanks 

      Pegg 

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    • Posted

      I won't lie or it defeats the object, but dialysis just made me feel as tired, if not more so. It obviously has it's clinical benefits (clearing the creatinine and rubbish) but I didn't feel tangibly changed for the better. That comes the moment you open your eyes post transplant. I hadn't felt as good for 10 years!!

      When on dialysis, the fluid restrictions really got to me too. I was down to a max of 3 cans of soft drink a day tops!! You man not be restricted depending on your urine output

      Its good you have a couple being worked up and on the list.... all bases covered!!! I really hope one of them works out for you real soon. Good luck.xxx

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  • Posted

    Pegg, I'm not using dialysis yet but expect I will be within the next year or so. I just wanted to wish you well as you start PD. And, I have heard several onnthis site say they felt better 3-4 weeks after they started PD. I suspect that is a very individual situation where some fell better and others don't. Regardless, I'm hoping you find some improvement when you start PD. And, you've got real hope with a transplant in the future.

    Marj

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    • Posted

      Thanks marj. Yeah I have heard it helps some people and the way I’m feeling at the moment I imagine it can only get better haha definitely don’t feel 25 at the minute that’s for sure! Op is in two weeks and then it will take another two weeks to heal before they start me on dialysis so I’ll be glad when the time comes! X
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    • Posted

      Keep us updated! I can only imagine how much you're hoping for improved feeling and functioning after you start on dialysis!

      Marj

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  • Posted

    Hi Pegg92, My egfr is 22 ans I have been experiencing extreme tiredness for several years now. It's worse in the morning, I can't stand for too long and need to rest if I have to walk more than 3-400 yards. Its the pits, let's hope stem cell developments or artifical kidney comes online soon. Good luck.

     

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    • Posted

      Ireland, I experience the same issues with weakness and difficulty with stamina that require frequent rest throughout the day. (So I do most daily chores in small, short periods of time throughout the day.) I, too, am worse in the morning. 

      I've had severe anemia for the past 5 years. It is under regular treatment. The treatment has helped a lot. That and a daily mild exercise routine have helped me quite a lot.

      Do you have anemia as well? Also, how is your blood pressure? (Mine used to run very low which further contributed to the weakness and inabilities Lott to stand for very long.)

      Marj

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    • Posted

      Hi Marj, 

      Thanks for your comments. I do not have anemia and my BP is on the high side(meds for that). I do feel my condition is deteriorating as I'm getting tired quicker. The kidney specialist wants me to undergo a biopsy but I've said no to that as you can die during it and the benefits only put a label on your ckd, beyond that there's nothing more can be done.

      Good luck and try to remain positive.

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  • Posted

    Sorry for my ignorance, but I am surprised, though happy for you, that stage 5 ckd qualifies for both transplant and dialysis.  My relative is 45 and has been told that he qualifies for neither.  can anyone give an idea why this might be so?  He has also developed heart problems.
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