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Starting Acterma and nervous

Posted , 15 users are following.

edsteve09
edsteve09

Hi everyone I seldom post but read your discussions often. I live in the US and have been approved to take Acterma injections. I have GCA and PMR diagnosed last July. I haven't been able to taper very much off steroids. I would love your feedback about the medication and especially if you are taking it. Pray for me  that Ive made the right decision. 

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  • darlene36688
    darlene36688 edsteve09

    Posted

    I live in the US.

    Have been getting Acterma infusions for 7 months.

    The only problem I had was with the 1st. infusion. I got terrible indigestion. Spoke with my doctor and he advised I take a 75 mg. Zantac along with my regular script for Prevaci & I could take 4 tums with me to chew during the infusion if I felt like I needed them. 

    Never had a problem after the 1st. infusion.

    Actemra is helping to reduce the prednisone.

    You will be fine with the Actemra.

    I have NO inflimation, but my doctor wants me to continue with the infusion.

    About 6 weeks ago I saw my rheumatologist & I was on 20 mg. of prednisone but he reduced it to 10mg. & if all is good when I see him in 3 weeks he will reduce it to 7.5mg.

    This prednisone rollercoaster is not fun.

    It has been a long year.

    I need to write a post later this evening to let everyone know what is going on with me regarding the GCA/PMR and another something to go along with it.

     

  • mjhollywood
    mjhollywood edsteve09

    Posted

    Hi  I was giving myself a shot once a week for 6 months of acterma.   Down to 2 mil predsone.   I started to have blood in urine and I could feel my lungs hurting   Very tried.  I stop two week ago.   Very scary  Still on 2 mil predsone .. crazy. Doing great back at gym 5 days. ,,,,feel great.   Don’t understand. !!!!!mj. 
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