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I am a 33 year old female with Juvanile Myclonic Epliepsy which I have had since the age of 12. I have been taking Epilim ever since, however I was only informed about the complications during pregnancy 5 years ago which meant I had to try different medication as I was of 'child bearing age'. Itried Keppra but got the depression side effect so had to go back to Epilim. I fell pregnant in August 2012 and was advised by my specialist to reduce my Epilim whilst introducing Lamotrogine. I only managed to get down to 600mg daily from 1000mg daily of Epilim and suffered a relapse. My pregnancy was induced a couple of weeks before my due date as my Epilepsy was getting worse so the safest thing was to bring the baby early. I had quite a traumatic birth as my daughter was not breathing for the first 20 mins after birth, she was in intensive care for 5 days. However she is absolutely fine now and we count ourselves very lucky considering all the complications, physical and mental, which could have been wrong due to the Epilim still being in my system throughout my pregnancy. After my daughters birth I had to increase my Epilim again but was unable to come off the Lamotrogine as I was relapsing, this means that I am on too high a dose as the Epilim doubles to lamotrogine dosage. Now we are looking to plan a pregnancy for next year so have to discuseds this with the Epilepsy nurse. She has advised me that I need to come off Epilim all together before starting to try for another baby. I am very concerned about this as I have my daughter to look after all day and am scared of having a seizure whist alone with her. Its easy for nurses/doctors to plan this for you but in reality it is a scarey situation to be in. I have been prescribed Zonisamide and told to start it gradually this means I will be on 3 medications at once which worries me as the side efects of this medication are drowsinss, dizziness, double vision and kidney stones - again these are quite worrying as I have my daughter to think of and would not like to be carrying her and go dizzy or similar.The only other outcome is to change our plans and have no other children, my partner is very supportive but ultimatley the decision is mine and I really dont fell happy having to make the choice.Part of me feels i should give it ago before dismissing it all together but the other half is scared for my daughters safety and my own. I just wondered if anybody else has been in a similar situation? Sorry for the essay!!
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