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  3. Polymyalgia Rheumatica and GCA

Status on the "PMR" diagnosis -

Posted , 10 users are following.

krillemy
krillemy

As promised, here is the latest news. Last week I saw a dermatologist who specialises in connective tissue diseases. It was a professional connection of mine that made that happen. She asked a lot of questions about my skin, and took a biopsy for dermatomyositis. It could explain everything, but was earlier ruled out due to a normal muscle biopsy. Anyway that same night I was admitted to the hospital for acute asthma! I thought I no longer had asthma, however it was brought on by a virus that my family brought home from a trip to London. So I was unable to breath and all blood samples where completely off. I stayed in the hospital for 5 days, and during those, they actually stated to look at the PMR "condition" as well - might be connected. So they called the special unit for inflammatory disease and now it seems that they all agree that something is wrong, and that it is not PMR but a connective tissue disease like polymyositis/dermatomyositis, Lupus or the like. So I was put on 37,5 mg pred. for 10 days for the asthma, and I am feeling good in my arms and legs 😃. I was in my summer house when it happened, and omitted to a country hospital. They seemed just more professional, and less stressed out there. Sometimes it has to be very bad I guess before it is better. I hope for a diagnoses soon so I can get the best treatment and plan ahead with life and work... but let's see - it might still go wrong, and I will be back here 😃

1 like, 3 replies

3 Replies

  • Kdemers
    Kdemers krillemy

    Edited

    One step at a time right? You know more now. Interesting about the Lupus. My sister has Lupus and I always wondered if my PMR and GCA were related. The thing about Lupus is that one never knows what body part of function it will attack......Good luck!!

    • EileenH
      EileenH Kdemers

      Edited

      They are related in that they are all autoimmune disorders - and the question is really whether all autoimmune illness is just a spectrum and each patient sits at one place on that spectrum. There isn't lupus, or PMR or GCa or whatever just EileenH syndrome or Kdemers syndrome or krillemy syndrome ...

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