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Steam cell treatment for als

Posted , 3 users are following.

leylah64487
leylah64487

have you heard of successful stories about this treatment for als patients? Do you know any clinic? 

0 likes, 7 replies

7 Replies

  • OntarioDude
    OntarioDude leylah64487

    Posted

    Hi Leylah, 

    There is no known successful stem cell therapy. There is a clinical trial going on by a company named BrainStrom-Cell and they claim they have had successful results preliminary results. Their official Phase II results should be out in mid 2016 so we'll see then if there is any truth to their claim. Are you a ALS patient or an ALS care giver?

    • leylah64487
      leylah64487 OntarioDude

      Posted

      Care giver - a family member is seek and found information about stem cell - he is optimistic about it
  • OntarioDude
    OntarioDude leylah64487

    Posted

    Sorry to hear to that one of your family member has been diagnosed with ALS, It's truly a terrible diseases, I'm going for an EMG soon myself to find out if my symptoms are also due to ALS. It's a devastating disease and the absolute lack of treatment is so frustrating. How old is your PALS? 
    • leylah64487
      leylah64487 OntarioDude

      Posted

      Hopefully it will something else! He is 75 - and it has been very fast - first symptoms were in April and now he is barely walking. What are your symptoms ?
  • OntarioDude
    OntarioDude leylah64487

    Posted

    I'm hoping so too, I'm in my late 20s and middle-eastern and the odds are statistically quite low for my age and race but I have ALL the symptoms like muscle shaking, twitches, cramps, shortness of breath, fatigue, tingles, hyperreflexia etc. now for roughly 3 months. Have you thought of what type of breathing assistance you are going to use eventually? (BiPAP vs Trache Ventilator)
    • leylah64487
      leylah64487 OntarioDude

      Posted

      Here we can get from government bipap - so probably it will be bipap.

      You are too young for ALS - should be something else.

      He never had muscle shaking - he started falling on the streets and fatigue also just started now - did you do all blood tests?

    • OntarioDude
      OntarioDude leylah64487

      Posted

      yeah have done most of them like thyroid and ck and stuff. I saw an ALS neurologist yesterday and the EMG and nerve conduction tests were normal so it's most likely not ALS. The neurologist I saw was amazing. Not sure where you are but if you live in Canada I would highly recommend him. He runs an ALS clinic and has won awards for his work and I got to see why he is so highly thought of...
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